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Penn State University

1. O'Neill, Tara Anne. Perspectives of Parents of Children with Cerebral Palsy on the Supports, Challenges, and Realities of Integrating AAC into Everyday Life.

Degree: 2018, Penn State University

In order to ensure long-term adoption and use of augmentative and alternative communication (AAC) technologies, they must be designed to support children to participate within everyday activities and routines that are prioritized by families. Nine parents of children with cerebral palsy who used AAC technologies participated in semi-structured interviews to provide their perspectives of how AAC technologies were integrated into the functional contexts of everyday life. Five major themes emerged from the discussions: (a) integrating AAC into life, (b) AAC technologies, (c) child needs and skills, (d) parent responsibilities and priorities, and (e) AAC process and decision-making. Children were able to use AAC technologies within a variety of everyday contexts with various partners; however, challenges included access to AAC within physical and outdoor activities and partners who lacked knowledge regarding operational competencies and effective interaction strategies. In order to integrate AAC technologies into life, parents prioritized technology features including ease of programming, improved physical design (e.g., lighter, wearable, easy to mount, durable), features to enhance efficiency and ease of access (e.g., brain-computer interface, sentence prediction), and availably of multiple functions and features (e.g., facial recognition software, augmented reality, projection capabilities, capability to control wheelchair). AAC manufacturers and mainstream technology developers should work to ensure that technologies are responsive to the supports, limitations, and ideal features identified by parents. Future research should seek input from a larger group of stakeholders and use longitudinal methods to examine perceptions of AAC technologies over time. Advisors/Committee Members: Krista M Wilkinson, Dissertation Advisor/Co-Advisor, Krista M Wilkinson, Committee Chair/Co-Chair, Janice Catherine Light, Committee Member, Carol Anne Miller, Committee Member, Rick Owen Gilmore, Outside Member.

Subjects/Keywords: In order to ensure long-term adoption and use of augmentative and alternative communication (AAC) technologies; they must be designed to support children to participate within everyday activities and routines that are prioritized by families. Nine parents of children with cerebral palsy who used AAC technologies participated in semi-structured interviews to provide their perspectives of how AAC technologies were integrated into the functional contexts of everyday life. Five major themes emerged from the discussions: (a) integrating AAC into life; (b) AAC technologies; (c) child needs and skills; (d) parent responsibilities and priorities; and (e) AAC process and decision-making. Children were able to use AAC technologies within a variety of everyday contexts with various partners; however; challenges included access to AAC within physical and outdoor activities and partners who lacked knowledge regarding operational competencies and effective interaction strategies. In order to integrate AAC technologies into life; parents prioritized technology features including ease of programming; improved physical design (e.g.; lighter; wearable; easy to mount; durable); features to enhance efficiency and ease of access (e.g.; brain-computer interface; sentence prediction); and availably of multiple functions and features (e.g.; facial recognition software; augmented reality; projection capabilities; capability to control wheelchair). AAC manufacturers and mainstream technology developers should work to ensure that technologies are responsive to the supports; limitations; and ideal features identified by parents. Future research should seek input from a larger group of stakeholders and use longitudinal methods to examine perceptions of AAC technologies over time. Keywords: technology design; augmentative and alternative communication; parents; cerebral palsy; service delivery; technology design; family

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APA (6th Edition):

O'Neill, T. A. (2018). Perspectives of Parents of Children with Cerebral Palsy on the Supports, Challenges, and Realities of Integrating AAC into Everyday Life. (Thesis). Penn State University. Retrieved from https://submit-etda.libraries.psu.edu/catalog/15513tao5012

Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation

Chicago Manual of Style (16th Edition):

O'Neill, Tara Anne. “Perspectives of Parents of Children with Cerebral Palsy on the Supports, Challenges, and Realities of Integrating AAC into Everyday Life.” 2018. Thesis, Penn State University. Accessed January 22, 2021. https://submit-etda.libraries.psu.edu/catalog/15513tao5012.

Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation

MLA Handbook (7th Edition):

O'Neill, Tara Anne. “Perspectives of Parents of Children with Cerebral Palsy on the Supports, Challenges, and Realities of Integrating AAC into Everyday Life.” 2018. Web. 22 Jan 2021.

Vancouver:

O'Neill TA. Perspectives of Parents of Children with Cerebral Palsy on the Supports, Challenges, and Realities of Integrating AAC into Everyday Life. [Internet] [Thesis]. Penn State University; 2018. [cited 2021 Jan 22]. Available from: https://submit-etda.libraries.psu.edu/catalog/15513tao5012.

Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation

Council of Science Editors:

O'Neill TA. Perspectives of Parents of Children with Cerebral Palsy on the Supports, Challenges, and Realities of Integrating AAC into Everyday Life. [Thesis]. Penn State University; 2018. Available from: https://submit-etda.libraries.psu.edu/catalog/15513tao5012

Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation

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