You searched for subject:(intellectual disability)
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1.
Viscidi, Emma W.
Autism Spectrum Disorder: Comorbidity and Etiology.
Degree: PhD, Epidemiology, 2014, Brown University
URL: https://repository.library.brown.edu/studio/item/bdr:386141/
► Background: Autism Spectrum Disorder (ASD) is a neurodevelopmental disorder that is estimated to affect as many as 1 in 88 children. Epilepsy is a common…
(more)
▼ Background: Autism Spectrum Disorder (ASD) is a
neurodevelopmental disorder that is estimated to affect as many as
1 in 88 children. Epilepsy is a common comorbid condition in
persons with ASD, but little is known about the prevalence of the
disorder or clinical characteristics of individuals with ASD and
epilepsy. While the cause of ASD is unknown, there is evidence that
prenatal factors may play an etiological role. Objectives: To
examine clinical characteristics of children with ASD and epilepsy
and the association between prenatal risk factors and ASD. Methods:
The association between epilepsy and ASD and prenatal risk factors
for ASD were studied using several large samples. Participants were
drawn from genetic collaborative datasets and population-based
samples, including the Collaborative Perinatal Project (CPP).
Multivariate regression modeling was used to control for
confounding, in particular confounding by cognitive functioning.
Results: Various clinical correlates of ASD and epilepsy were
identified. Low IQ was found to be the best predictor of epilepsy
in children with ASD. Children with epilepsy had more autism
symptoms and maladaptive behaviors than children with ASD alone.
Several prenatal characteristics that increase risk of ASD were
identified including older maternal and paternal age at birth,
bleeding during pregnancy, and edema.
Intellectual disability was
found to be a mild confounder of the association between prenatal
risk factors and ASD. Conclusions: In a large sample of children
with ASD, low cognitive ability emerged as a strong independent
predictor of epilepsy. Children with ASD and epilepsy showed
greater impairment than children with ASD without epilepsy, and
this was mostly explained by the lower IQ of children with
epilepsy. Prior associations between prenatal factors and autism
were confirmed in a large population-based cohort study. This study
paves the way for future research on ASD in the Collaborative
Perinatal Project (CPP).
Advisors/Committee Members: Triche, Elizabeth (Director), Buka, Stephen (Reader), Morrow, Eric (Reader), Spence, Sarah (Reader).
Subjects/Keywords: intellectual disability
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APA (6th Edition):
Viscidi, E. W. (2014). Autism Spectrum Disorder: Comorbidity and Etiology. (Doctoral Dissertation). Brown University. Retrieved from https://repository.library.brown.edu/studio/item/bdr:386141/
Chicago Manual of Style (16th Edition):
Viscidi, Emma W. “Autism Spectrum Disorder: Comorbidity and Etiology.” 2014. Doctoral Dissertation, Brown University. Accessed February 27, 2021.
https://repository.library.brown.edu/studio/item/bdr:386141/.
MLA Handbook (7th Edition):
Viscidi, Emma W. “Autism Spectrum Disorder: Comorbidity and Etiology.” 2014. Web. 27 Feb 2021.
Vancouver:
Viscidi EW. Autism Spectrum Disorder: Comorbidity and Etiology. [Internet] [Doctoral dissertation]. Brown University; 2014. [cited 2021 Feb 27].
Available from: https://repository.library.brown.edu/studio/item/bdr:386141/.
Council of Science Editors:
Viscidi EW. Autism Spectrum Disorder: Comorbidity and Etiology. [Doctoral Dissertation]. Brown University; 2014. Available from: https://repository.library.brown.edu/studio/item/bdr:386141/

University of Cape Town
2.
Goldberg, Cole.
“Life’s About Choices”: Exploring the everyday occupational choices of young adults with intellectual disability in a community context in South Africa.
Degree: MPhil, Psychiatry and Mental Health, 2019, University of Cape Town
URL: http://hdl.handle.net/11427/31382
► Background: It is well documented in the literature in the intellectual disability field that choice people with intellectual disabilities is limited. The human need to…
(more)
▼ Background: It is well documented in the literature in the
intellectual disability field that choice people with
intellectual disabilities is limited. The human need to experience and inform everyday life choices, and the limited opportunities to do so, results in a contemporary health and human rights issue. Research Question: This study aims to explore what informs the everyday occupational choices made by young adults with
intellectual and developmental disabilities in a community based setting in South Africa. Method: Qualitative interviews and a focus group were held with six young adults, who were recruited through a local non-profit training organisation. Results: Respondents identified (1) being different, (2) having limited choices, (3) accepting and staying small or (4) challenging and growing up, were the four core themes that arose from the interviews. Conclusion: It became evident that everyday occupational choices are co-constructed in context, where factors that were identified are consistent with those from the international literature which show that people with
intellectual disabilities are widely stigmatised and prohibited from choice making, for several reasons, both intrapersonal and contextual. Implications: This study highlights the influence and importance of raising awareness and consciousness in society so that counter-hegemonic practices can promote occupational and social justice and change attitudes to ensure that people with disabilities have the choice to engage in balanced, meaningful occupations.
Advisors/Committee Members: Kleintjes, Sharon (advisor), Adnams, Colleen (advisor).
Subjects/Keywords: Intellectual Disability
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APA (6th Edition):
Goldberg, C. (2019). “Life’s About Choices”: Exploring the everyday occupational choices of young adults with intellectual disability in a community context in South Africa. (Thesis). University of Cape Town. Retrieved from http://hdl.handle.net/11427/31382
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation
Chicago Manual of Style (16th Edition):
Goldberg, Cole. ““Life’s About Choices”: Exploring the everyday occupational choices of young adults with intellectual disability in a community context in South Africa.” 2019. Thesis, University of Cape Town. Accessed February 27, 2021.
http://hdl.handle.net/11427/31382.
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation
MLA Handbook (7th Edition):
Goldberg, Cole. ““Life’s About Choices”: Exploring the everyday occupational choices of young adults with intellectual disability in a community context in South Africa.” 2019. Web. 27 Feb 2021.
Vancouver:
Goldberg C. “Life’s About Choices”: Exploring the everyday occupational choices of young adults with intellectual disability in a community context in South Africa. [Internet] [Thesis]. University of Cape Town; 2019. [cited 2021 Feb 27].
Available from: http://hdl.handle.net/11427/31382.
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation
Council of Science Editors:
Goldberg C. “Life’s About Choices”: Exploring the everyday occupational choices of young adults with intellectual disability in a community context in South Africa. [Thesis]. University of Cape Town; 2019. Available from: http://hdl.handle.net/11427/31382
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation

University of Manitoba
3.
Horodyski, Mary.
“Society seems like it doesn’t even know...”: archival records regarding people labelled with intellectual disability who have been institutionalized in Manitoba.
Degree: History, 2017, University of Manitoba
URL: http://hdl.handle.net/1993/32118
► This thesis examines issues surrounding access to records relating to people labelled with intellectual disability who have been institutionalized in Manitoba. It argues that the…
(more)
▼ This thesis examines issues surrounding access to records relating to people labelled with
intellectual disability who have been institutionalized in Manitoba. It argues that the devaluation of people labelled with
intellectual disabilities, together with the failures and difficulties in acquiring, preserving, describing and accessing records that describe the historical experiences of people labelled with
intellectual disability who have been institutionalized, allows society to continue to seem like it does not know “the wrong they are doing with institutions.” In conclusion, this thesis advocates for means by which the experiences of people who have been institutionalized could be created, archived and more broadly available to the public.
Advisors/Committee Members: Nesmith, Thomas (History) (supervisor), Bak, Greg (History) .
Subjects/Keywords: Archives; Disability; Intellectual disability; Institutionalization
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APA ·
Chicago ·
MLA ·
Vancouver ·
CSE |
Export
to Zotero / EndNote / Reference
Manager
APA (6th Edition):
Horodyski, M. (2017). “Society seems like it doesn’t even know...”: archival records regarding people labelled with intellectual disability who have been institutionalized in Manitoba. (Masters Thesis). University of Manitoba. Retrieved from http://hdl.handle.net/1993/32118
Chicago Manual of Style (16th Edition):
Horodyski, Mary. ““Society seems like it doesn’t even know...”: archival records regarding people labelled with intellectual disability who have been institutionalized in Manitoba.” 2017. Masters Thesis, University of Manitoba. Accessed February 27, 2021.
http://hdl.handle.net/1993/32118.
MLA Handbook (7th Edition):
Horodyski, Mary. ““Society seems like it doesn’t even know...”: archival records regarding people labelled with intellectual disability who have been institutionalized in Manitoba.” 2017. Web. 27 Feb 2021.
Vancouver:
Horodyski M. “Society seems like it doesn’t even know...”: archival records regarding people labelled with intellectual disability who have been institutionalized in Manitoba. [Internet] [Masters thesis]. University of Manitoba; 2017. [cited 2021 Feb 27].
Available from: http://hdl.handle.net/1993/32118.
Council of Science Editors:
Horodyski M. “Society seems like it doesn’t even know...”: archival records regarding people labelled with intellectual disability who have been institutionalized in Manitoba. [Masters Thesis]. University of Manitoba; 2017. Available from: http://hdl.handle.net/1993/32118

University of Otago
4.
Pal, Jaya.
Exploring Falls in Individuals with Intellectual Disability
.
Degree: 2012, University of Otago
URL: http://hdl.handle.net/10523/2392
► Introduction: Falling appears to be a concern for individuals with intellectual disability. To date few studies have looked at falls, fall-related injuries and risk factors…
(more)
▼ Introduction: Falling appears to be a concern for individuals with
intellectual disability. To date few studies have looked at falls, fall-related injuries and risk factors for falls in this population. In contrast, extensive fall-related research has been carried out in older population groups and has used a variety of methods to collect fall data. The use of similar methods to collect fall data might however be inappropriate for individuals with
intellectual disability. Cognitive limitations, consenting issues and using proxy sources for collecting fall data are some research challenges evident in
intellectual disability research. This thesis developed methods for collecting fall data about people with
intellectual disability and tested these methods in two pilot studies. Furthermore, semi-structured interviews were conducted with occupational therapists and physiotherapists to discuss possible mobility/fall prevention strategies and to suggest future fall prevention programmes.
Study Aims: The aims of this thesis were:
1. To develop an appropriate method to collect data on falls and fall-related injuries in adults with
intellectual disability.
2. To develop a method to collect fall risk data in adults with
intellectual disability.
3. To suggest suitable fall prevention strategies for adults with
intellectual disability
Methodology: A mixed method design was chosen for this thesis using a sequential exploratory design. The initial phase of the study involved qualitative data collection (stakeholder consultations and focus group discussions) and analysis, for developing and validating fall forms, followed by quantitative pilot studies (for testing these forms). An initial structured literature review explored how falls data had been collected in older adults, including those with dementia and Alzheimer’s disease, and with people with
intellectual disability. The stakeholder consultations were completed to discuss falls and appropriate methods for collecting fall data. Based on the literature review findings and stakeholder consultations, three fall forms were developed – a fall risk form, a fall incident form and a fall calendar. These forms were discussed in focus group discussions. The fall risk form and the fall incident form were selected as suitable methods and tested in two pilot studies. An additional qualitative study was also conducted wherein therapists working with people with
intellectual disability at risk of falling were interviewed to explore strategies they used to reduce falls. Findings from this latter study together with those from the pilot studies were used to suggest strategies to prevent falls for this population group.
Results:
1. A fall incident form was developed and used to collect detailed fall-related data following a fall incident. A total of 135 individuals participated in two pilot studies and 125 falls were recorded. The fall incident form was considered as a useful and easy tool for collecting post-fall data in individuals with
intellectual disability. The most common…
Advisors/Committee Members: Hale, Leigh (advisor).
Subjects/Keywords: Falls;
Intellectual Disability
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APA ·
Chicago ·
MLA ·
Vancouver ·
CSE |
Export
to Zotero / EndNote / Reference
Manager
APA (6th Edition):
Pal, J. (2012). Exploring Falls in Individuals with Intellectual Disability
. (Doctoral Dissertation). University of Otago. Retrieved from http://hdl.handle.net/10523/2392
Chicago Manual of Style (16th Edition):
Pal, Jaya. “Exploring Falls in Individuals with Intellectual Disability
.” 2012. Doctoral Dissertation, University of Otago. Accessed February 27, 2021.
http://hdl.handle.net/10523/2392.
MLA Handbook (7th Edition):
Pal, Jaya. “Exploring Falls in Individuals with Intellectual Disability
.” 2012. Web. 27 Feb 2021.
Vancouver:
Pal J. Exploring Falls in Individuals with Intellectual Disability
. [Internet] [Doctoral dissertation]. University of Otago; 2012. [cited 2021 Feb 27].
Available from: http://hdl.handle.net/10523/2392.
Council of Science Editors:
Pal J. Exploring Falls in Individuals with Intellectual Disability
. [Doctoral Dissertation]. University of Otago; 2012. Available from: http://hdl.handle.net/10523/2392

University of Otago
5.
Stedman, Kurstyn Vance.
Obesity and Intellectual Disability in New Zealand
.
Degree: 2011, University of Otago
URL: http://hdl.handle.net/10523/1774
► International literature indicates that the rates of obesity are increasing in OECD countries and that there are significant health risks to individuals who are classified…
(more)
▼ International literature indicates that the rates of obesity are increasing in OECD countries and that there are significant health risks to individuals who are classified as obese. Research has also highlighted that obesity is likely to be more pronounced in people who have an
intellectual disability (ID). Despite this association there has been little research into the reasons why this population is overrepresented in obesity statistics. Furthermore, except for the brief report derived from this thesis (Stedman & Leland, 2010), there are no published New Zealand data on the rates of obesity among people who have an
intellectual disability.
In the present study I accessed a database containing anonymous data for a sample of New Zealanders who have an
intellectual disability. Ninety-eight participants out of 141 in the database had complete and up to date data. The group with complete data did not significantly differ from the group with incomplete data in gender or hours of staff support. Participants’ body mass index (BMI) was used to estimate rates of obesity within the sample. Comparisons were made with the general rates of obesity in adults reported by the New Zealand Ministry of Health (2008) using each of the BMI categories; underweight (< 18.50), normal (18.50 – 24.99), overweight (25.00 – 29.99) and obese (≥ 30.00). Obesity was further broken down into classes one (30.00 – 34.99), two (35.00 – 39.99) and three (≥ 40.00).
There were significantly higher rates of people with a BMI ≥ 30.00, in the group who had an
intellectual disability (50.98%; general population 26.50%). There were significantly more adults who had an
intellectual disability in all three BMI classes, with the most significant difference in class three.
While there were more obese men and women who have an
intellectual disability in this sample than would be expected, women were found in higher than expected rates in class two (BMI 35.00 – 39.99) and class three (BMI ≤ 40.00). Research into the causal factors and potential interventions specific to men and women in this population to promote and maintain weight loss are warranted.
Advisors/Committee Members: Leland, Louis (advisor).
Subjects/Keywords: obesity;
intellectual disability
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❌
APA ·
Chicago ·
MLA ·
Vancouver ·
CSE |
Export
to Zotero / EndNote / Reference
Manager
APA (6th Edition):
Stedman, K. V. (2011). Obesity and Intellectual Disability in New Zealand
. (Masters Thesis). University of Otago. Retrieved from http://hdl.handle.net/10523/1774
Chicago Manual of Style (16th Edition):
Stedman, Kurstyn Vance. “Obesity and Intellectual Disability in New Zealand
.” 2011. Masters Thesis, University of Otago. Accessed February 27, 2021.
http://hdl.handle.net/10523/1774.
MLA Handbook (7th Edition):
Stedman, Kurstyn Vance. “Obesity and Intellectual Disability in New Zealand
.” 2011. Web. 27 Feb 2021.
Vancouver:
Stedman KV. Obesity and Intellectual Disability in New Zealand
. [Internet] [Masters thesis]. University of Otago; 2011. [cited 2021 Feb 27].
Available from: http://hdl.handle.net/10523/1774.
Council of Science Editors:
Stedman KV. Obesity and Intellectual Disability in New Zealand
. [Masters Thesis]. University of Otago; 2011. Available from: http://hdl.handle.net/10523/1774

Universiteit Utrecht
6.
Sanders, K.J.V.
The feasibility of a dysphagia procedure for identification, diagnosis, intervention and evaluation of dysphagia in adults with intellectual disabilities: a pilot study.
Degree: 2015, Universiteit Utrecht
URL: http://dspace.library.uu.nl:8080/handle/1874/316335
► Title: The feasibility of a dysphagia procedure for identification, diagnosis, intervention and evaluation of dysphagia in adults with intellectual disabilities (ID): a pilot study. Background:…
(more)
▼ Title: The feasibility of a dysphagia procedure for identification, diagnosis, intervention and evaluation of dysphagia in adults with
intellectual disabilities (ID): a pilot study.
Background: Because of the high prevalence of dysphagia in adults with ID, the major health risks involved and the different challenges managing dysphagia, a health improvement project started in March 2014 led by Ipse de Bruggen, a care provider service for people with ID in the Netherlands.
Aim and research questions: The aim of this study is to examine the feasibility of the dysphagia procedure in adults with ID. The accompanying research question is ‘Is it feasible to implement the dysphagia procedure within Ipse de Bruggen, Zwammerdam?’
Method: Fifty-eight professionals working with 24 adults with ID and an expected dysphagia participated in this study. All the relevant steps of the dysphagia procedure must be executed within three months. Feasibility was evaluated using criteria based on the three groups of participants: speech and language therapists (SLT’s), caregivers and multidisciplinary team members. All the criteria must be met to achieve feasibility.
Results: The SLT’s and the multidisciplinary team members agreed for 100% with their role and content of the dysphagia procedure. The SLT’s did not manage to execute all the steps of the dysphagia procedure for the clients with dysphagia. Also, the caregiver criteria and the criteria for collecting post-test measurements were not achieved. In summary, five of twelve feasibility criteria have been met.
Conclusion: The dysphagia procedure cannot be implemented yet, due to challenges in cooperation between the caregivers and both the SLT’s and the multidisciplinary team members.
Recommendations: Improving cooperation with the caregivers through i.e. qualitative research to investigate the caregiver’s perspective, considering different organisational changes and investigate in train the trainer education.
Advisors/Committee Members: Bastiaanse, L.P., Ewijk, L. van.
Subjects/Keywords: dysphagia; feasibility; intellectual disability
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❌
APA ·
Chicago ·
MLA ·
Vancouver ·
CSE |
Export
to Zotero / EndNote / Reference
Manager
APA (6th Edition):
Sanders, K. J. V. (2015). The feasibility of a dysphagia procedure for identification, diagnosis, intervention and evaluation of dysphagia in adults with intellectual disabilities: a pilot study. (Masters Thesis). Universiteit Utrecht. Retrieved from http://dspace.library.uu.nl:8080/handle/1874/316335
Chicago Manual of Style (16th Edition):
Sanders, K J V. “The feasibility of a dysphagia procedure for identification, diagnosis, intervention and evaluation of dysphagia in adults with intellectual disabilities: a pilot study.” 2015. Masters Thesis, Universiteit Utrecht. Accessed February 27, 2021.
http://dspace.library.uu.nl:8080/handle/1874/316335.
MLA Handbook (7th Edition):
Sanders, K J V. “The feasibility of a dysphagia procedure for identification, diagnosis, intervention and evaluation of dysphagia in adults with intellectual disabilities: a pilot study.” 2015. Web. 27 Feb 2021.
Vancouver:
Sanders KJV. The feasibility of a dysphagia procedure for identification, diagnosis, intervention and evaluation of dysphagia in adults with intellectual disabilities: a pilot study. [Internet] [Masters thesis]. Universiteit Utrecht; 2015. [cited 2021 Feb 27].
Available from: http://dspace.library.uu.nl:8080/handle/1874/316335.
Council of Science Editors:
Sanders KJV. The feasibility of a dysphagia procedure for identification, diagnosis, intervention and evaluation of dysphagia in adults with intellectual disabilities: a pilot study. [Masters Thesis]. Universiteit Utrecht; 2015. Available from: http://dspace.library.uu.nl:8080/handle/1874/316335

University of KwaZulu-Natal
7.
Laalje, Sitha.
Transition to special education : the experiences of parents of children with communication disorders associated with intellectual disability in the province of KwaZulu-Natal.
Degree: Communication pathology, 2015, University of KwaZulu-Natal
URL: http://hdl.handle.net/10413/14099
► Millions of children around the world are affected by childhood disabilities, and are much less likely to participate in schooling than those not affected (Filmer,…
(more)
▼ Millions of children around the world are affected by childhood disabilities, and are much less likely to participate in schooling than those not affected (Filmer, 2008). This study supports the global initiative to ensure that all children, including those with disabilities, are schooled. The aim of this study was to therefore explore the experiences of parents of children with communication disorders associated with
Intellectual Disability (ID), specifically during their children‟s transition to special education. An understanding of the nature of the parents‟ experiences could lead to improved service delivery, which could result in better outcomes for the parent and the child. The researcher adopted a qualitative approach to the study and explored the perspectives of the parents. Focus group and individual interviews were conducted to obtain the data which was transcribed and analysed thematically. The results revealed that at a formal level, parents received inconsistent support from the education structures. Some of their children were removed from school registers, whilst others could not access appropriate education. Assistance was sought from public health facilities and from private psychologists. The parents indicated supportive and non-supportive responses from informal support systems. They also talked about their associated negative and positive emotional experiences during their children‟s transition to special education. The study limitations and implications have been discussed. This study made recommendations for stakeholders involved in the transition of affected children to special education. This new knowledge can be translated into action and act as a tool for improving service delivery.
Advisors/Committee Members: John, Desiree C. (advisor), Pillay, Mershen. (advisor).
Subjects/Keywords: Communication pathology.; Intellectual disability.
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❌
APA ·
Chicago ·
MLA ·
Vancouver ·
CSE |
Export
to Zotero / EndNote / Reference
Manager
APA (6th Edition):
Laalje, S. (2015). Transition to special education : the experiences of parents of children with communication disorders associated with intellectual disability in the province of KwaZulu-Natal. (Thesis). University of KwaZulu-Natal. Retrieved from http://hdl.handle.net/10413/14099
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation
Chicago Manual of Style (16th Edition):
Laalje, Sitha. “Transition to special education : the experiences of parents of children with communication disorders associated with intellectual disability in the province of KwaZulu-Natal.” 2015. Thesis, University of KwaZulu-Natal. Accessed February 27, 2021.
http://hdl.handle.net/10413/14099.
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation
MLA Handbook (7th Edition):
Laalje, Sitha. “Transition to special education : the experiences of parents of children with communication disorders associated with intellectual disability in the province of KwaZulu-Natal.” 2015. Web. 27 Feb 2021.
Vancouver:
Laalje S. Transition to special education : the experiences of parents of children with communication disorders associated with intellectual disability in the province of KwaZulu-Natal. [Internet] [Thesis]. University of KwaZulu-Natal; 2015. [cited 2021 Feb 27].
Available from: http://hdl.handle.net/10413/14099.
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation
Council of Science Editors:
Laalje S. Transition to special education : the experiences of parents of children with communication disorders associated with intellectual disability in the province of KwaZulu-Natal. [Thesis]. University of KwaZulu-Natal; 2015. Available from: http://hdl.handle.net/10413/14099
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation

University of Adelaide
8.
Hynes, Kim Elizabeth.
Molecular genetics of epilepsy and mental retardation limited to females (EFMR).
Degree: 2010, University of Adelaide
URL: http://hdl.handle.net/2440/63720
► Epilepsy and mental retardation limited to females (EFMR) is an intriguing X-linked disorder, which exhibits counterintuitive sex specific phenotype presentation, with heterozygous females affected and…
(more)
▼ Epilepsy and mental retardation limited to females (EFMR) is an intriguing X-linked disorder, which exhibits counterintuitive sex specific phenotype presentation, with heterozygous females affected and hemizygous males spared. Affected females suffer from epilepsy, which typically begins prior to three years of age. Onset of seizures often coincides with developmental regression resulting in
intellectual disability.
• Using high throughput sequencing of the X-chromosome we have identified 7 different mutations in protoccadherin-19 (PCDH19) in 7 families with EFMR (Dibbens et al., 2008), including the original EFMR family published in 1971 (Juberg and Hellman, 1971). The discovery of mutations in PCDH19, a calcium cell-cell adhesion molecule, in EFMR highlights protocadherins and cell adhesion molecules in general, as a novel class of genes involved in
intellectual disability and epilepsy. Publication 1, appendix A, (Dibbens et al., 2008)
• We have conducted follow up screening in three additional cohorts and identified additional mutations in the PCDH19 gene in smaller families and a sporadic case with EFMR. PCDH19 was not found to be a major cause of Rett syndrome or Autism Spectrum Disorder alone. Publication 2, appendix B, (Hynes et al., 2009)
• We have also identified an additional, large, black Afro-American family with EFMR with a missense mutation in PCDH19 that is predicted to result in loss of function of PCDH19 protein. (Publication in preparation).
• We have performed genome-wide microarray expression profiling analyses and identified altered expression of genes involved in axon guidance and cell migration in EFMR females. We also unexpectedly found that EFMR females had a “male-like” expression profile of more than 100 genes and altered expression of 10 genes which function in aspects of estrogen production, activation and degradation or that are known downstream targets of estrogen. This suggests that response to estrogen may be disrupted in certain cells. (Publication in preparation).
• Through genome-wide microarray expression profiling analyses we also identified altered expression of 13 genes involved in the Ephrin / Eph signalling pathway in EFMR females. The altered expression of Ephrin / Eph signalling genes and the parallels identified between EFMR and CFNS (craniofrontonasal syndrome), with respect to inheritance pattern, lead us to hypothesise a potential interaction between PCDH19 and Ephrin / Eph signalling.
In conclusion, we have identified the causative gene for EFMR and gained novel insights into additional genes and signalling pathways that are disrupted as a result of mutations in PCDH19 in females.
Advisors/Committee Members: Gecz, Jozef (advisor), Mulley, John Charles (advisor), School of Molecular and Biomedical Science (school).
Subjects/Keywords: epilepsy; intellectual disability; protocadherin; PCDH19
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❌
APA ·
Chicago ·
MLA ·
Vancouver ·
CSE |
Export
to Zotero / EndNote / Reference
Manager
APA (6th Edition):
Hynes, K. E. (2010). Molecular genetics of epilepsy and mental retardation limited to females (EFMR). (Thesis). University of Adelaide. Retrieved from http://hdl.handle.net/2440/63720
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation
Chicago Manual of Style (16th Edition):
Hynes, Kim Elizabeth. “Molecular genetics of epilepsy and mental retardation limited to females (EFMR).” 2010. Thesis, University of Adelaide. Accessed February 27, 2021.
http://hdl.handle.net/2440/63720.
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation
MLA Handbook (7th Edition):
Hynes, Kim Elizabeth. “Molecular genetics of epilepsy and mental retardation limited to females (EFMR).” 2010. Web. 27 Feb 2021.
Vancouver:
Hynes KE. Molecular genetics of epilepsy and mental retardation limited to females (EFMR). [Internet] [Thesis]. University of Adelaide; 2010. [cited 2021 Feb 27].
Available from: http://hdl.handle.net/2440/63720.
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation
Council of Science Editors:
Hynes KE. Molecular genetics of epilepsy and mental retardation limited to females (EFMR). [Thesis]. University of Adelaide; 2010. Available from: http://hdl.handle.net/2440/63720
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation

University of Otago
9.
McKelvey, Victoria Anne.
The use of oral health services by adults with intellectual disability. A mixed methods study.
Degree: 2012, University of Otago
URL: http://hdl.handle.net/10523/2143
► Objectives The intent of this study was to explore the use of oral health services by a group of adults with an intellectual disability. Methods…
(more)
▼ Objectives
The intent of this study was to explore the use of oral health services by a group of adults with an
intellectual disability.
Methods
The study was an explanatory mixed-methods design. It consisted of an initial collection and analysis of quantitative data, and a second qualitative phase. In the quantitative phase of the study, a clinical audit of oral health services provided for adults with
intellectual disabilities was carried out for individuals who underwent a general anaesthetic for dental treatment at Christchurch Hospital during the period of 1 January 2005 to 31 December 2009.
The second, qualitative phase was then conducted to investigate the experience and perceptions of individuals with an
intellectual disability (and caregivers and guardians) relating to their oral health care. Fifteen semi-structured interviews were carried out with participants for 13 individuals with an
intellectual disability who had a GA for dental treatment at Christchurch Hospital between 1 January 2009 and 31 December 2009.
Ethical approval for this study was obtained from the Upper South A Regional Ethics committee in July 2009. Quantitative data were entered onto a database and analysed using SPSS version 17.0 (SPSS Inc, Chicago, USA). Qualitative data were analysed by manual coding and labelling of the data in order to identify patterns and themes that were expressed by the participants.
Results
The majority of individuals with
intellectual disability who had dental treatment under GA at Christchurch Hospital in the 5-year period lived in care and many had severe medical issues. Most of the individuals had both restorative treatment and tooth extractions carried out under GA.
The major concern for individuals with an
intellectual disability was anxiety related to dental visits. Support people/guardians shared this concern, and played a vital role in helping to manage this anxiety. Many support people/guardians had difficulty identifying dental problems in those with an
intellectual disability, and often relied on detection of changes in the individual’s behaviour or demeanour. While the majority of feedback on encounters with dental and medical staff was positive, problems with continuity of care were a concern. The time spent waiting in waiting rooms for check-ups or treatment was a frequently reported cause of stress to the respondents. In addition, some problems were identified with the way in which waiting areas were set up for this patient group.
Conclusions
As a group, these individuals present challenges for the provision of oral health care, given the severity of
disability and the presence of systemic disease, and many require a high level of support for daily activities. When dental treatment is required, a GA is often necessary in order to carry out the treatment.
There is potential to improve the service with a multidisciplinary approach to coordinate other health services during treatment episodes, the delivery of preventive oral health care, and the utilisation of…
Advisors/Committee Members: Thomson, Murray (advisor).
Subjects/Keywords: oral health;
intellectual disability
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Chicago ·
MLA ·
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CSE |
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Manager
APA (6th Edition):
McKelvey, V. A. (2012). The use of oral health services by adults with intellectual disability. A mixed methods study.
(Masters Thesis). University of Otago. Retrieved from http://hdl.handle.net/10523/2143
Chicago Manual of Style (16th Edition):
McKelvey, Victoria Anne. “The use of oral health services by adults with intellectual disability. A mixed methods study.
” 2012. Masters Thesis, University of Otago. Accessed February 27, 2021.
http://hdl.handle.net/10523/2143.
MLA Handbook (7th Edition):
McKelvey, Victoria Anne. “The use of oral health services by adults with intellectual disability. A mixed methods study.
” 2012. Web. 27 Feb 2021.
Vancouver:
McKelvey VA. The use of oral health services by adults with intellectual disability. A mixed methods study.
[Internet] [Masters thesis]. University of Otago; 2012. [cited 2021 Feb 27].
Available from: http://hdl.handle.net/10523/2143.
Council of Science Editors:
McKelvey VA. The use of oral health services by adults with intellectual disability. A mixed methods study.
[Masters Thesis]. University of Otago; 2012. Available from: http://hdl.handle.net/10523/2143

University of Adelaide
10.
Nicholl, Jillian.
Detection of DNA copy number imbalance using array CGH.
Degree: 2010, University of Adelaide
URL: http://hdl.handle.net/2440/60194
► The association of constitutional chromosome imbalance in patients with intellectual disability with or without related dysmorphism and malformations is well established. The resolution of conventional…
(more)
▼ The association of constitutional chromosome imbalance in patients with
intellectual disability with or without related dysmorphism and malformations is well established. The resolution of conventional cytogenetic examination is limited to imbalances of 5-10Mb. Patients with characteristic phenotypes which allude to a specific microdeletion or duplication syndrome may be investigated using locus specific fluorescent in situ hybridisation (FISH). Subtelomere FISH, a recently new improvement for cytogenetics screening, detects subtelomeric rearrangements in around 6% of patients with idiopathic
disability. However it is evident that for these patients, most do not have a recurrent pattern of dysmorphism or malformations suggesting imbalance in a particular chromosome region.
Array CGH has the potential to detect chromosome imbalances beyond that of current technology allowing the whole genome can be screened in a single hybridisation at a resolution limited only by the genomic distance between the arrayed target clones. The aim of this study was to develop a custom whole genome array and utilize this array to screen a number of diverse patient groups.
Rather than immediately begin with the development of a whole genome array a smaller pilot study was initiated, in so enabling the efficacy of the methodology to be tested. A small clinical/ subtelomere array was designed and constructed to screen for cytogenetic imbalances within the first 5Mb of each chromosome end (excluding acrocentric chromosomes) together with the number of known clinically significant regions.
This clinical/subtelomere array (chapter 3), was ulilised to map the extent of deletion and/or duplication in patients with previously determined subtelomere abnormalities. This was followed with the screening of a small group of patients with idiopathic
intellectual disability (chapter 4). Novel Copy number changes were identified together with a number of changes determined to be non-pathogenic variants.
The methodology used in the utilization of this array could determine copy changes in patients, however it became clearly evident that the effective resolution was compromised when a number of clones were shown to map to other sites of the genome or cross hybridise to multiple sites.
With this knowledge the next stage of the project, a whole genome array, primarily constructed from a FISH validated clone set, reduced the possibility of mapping discrepancies. These FISH mapped clones did not give a even genomic coverage. All clones from this set were mapped using Ensembl resources. Any identified gaps (greater than 1Mb) were covered using clones from a second clone set (32K), giving a resolution of ~0.2-1Mb.
Three diverse groups of patients were screened using the whole genome array. Using a novel scoring system which evaluated degree of
intellectual disability/developmental delay, dysmorphism, presence of malformations and the presence of an apparently balanced cytogenetic rearrangement, twenty five patients with idiopathic
disability were assessed.…
Advisors/Committee Members: Sutherland, Grant Robert (advisor), Yu, Sui (advisor), Connolly, Ashley (advisor), School of Paediatrics and Reproductive Health : Paediatrics (school).
Subjects/Keywords: array CGH; intellectual disability
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❌
APA ·
Chicago ·
MLA ·
Vancouver ·
CSE |
Export
to Zotero / EndNote / Reference
Manager
APA (6th Edition):
Nicholl, J. (2010). Detection of DNA copy number imbalance using array CGH. (Thesis). University of Adelaide. Retrieved from http://hdl.handle.net/2440/60194
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation
Chicago Manual of Style (16th Edition):
Nicholl, Jillian. “Detection of DNA copy number imbalance using array CGH.” 2010. Thesis, University of Adelaide. Accessed February 27, 2021.
http://hdl.handle.net/2440/60194.
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation
MLA Handbook (7th Edition):
Nicholl, Jillian. “Detection of DNA copy number imbalance using array CGH.” 2010. Web. 27 Feb 2021.
Vancouver:
Nicholl J. Detection of DNA copy number imbalance using array CGH. [Internet] [Thesis]. University of Adelaide; 2010. [cited 2021 Feb 27].
Available from: http://hdl.handle.net/2440/60194.
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation
Council of Science Editors:
Nicholl J. Detection of DNA copy number imbalance using array CGH. [Thesis]. University of Adelaide; 2010. Available from: http://hdl.handle.net/2440/60194
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation

University of Limerick
11.
Barry, Aoife.
Perspectives and power dynamics in inclusive research: experiences from an Irish context.
Degree: 2016, University of Limerick
URL: http://hdl.handle.net/10344/5741
► Introduction: The United Nations Convention on the Rights of Persons with Disabilities (CRPD) (United Nations 2006) outlines the accountability that state parties have to involve…
(more)
▼ Introduction: The United Nations Convention on the Rights of Persons with Disabilities (CRPD) (United Nations 2006) outlines the accountability that state parties have to involve people with disabilities in research that affects their lives. Inclusive research has developed to move people with intellectual disabilities away from the traditional role of a research subject, towards a more power-balanced research collaboration that can create individual and societal change.
Method: This study adopted a qualitative methodology guided by critical disability theory.
Semi-structured interviews and one focus group were carried out with seven individuals with intellectual disabilities, two supporters, and five academics, to explore their experiences of engaging in inclusive research in Ireland. Thematic analysis using Atlas.ti software was used to interpret the data.
Findings: Three key themes emerged: „Meanings of inclusive research‟, „Importance of inclusive research‟ and „Power relations within inclusive research‟. The findings revealed a range of definitions of inclusive research. Advocating for change at policy level was a common motivator for participants to engage in the process. Experiences of power imbalances were highlighted, in particular barriers created by academic standards.
Conclusion: Definitions of inclusive research in Ireland can be seen to occur along a continuum. An inherent power imbalance exists between expectations of inclusive projects, and academic research standards across all disciplines, that can prevent the participation of people with intellectual disabilities in research. Occupational therapists are well-positioned to address the recommendations of the CRPD by supporting self-advocates to engage in inclusive research, which can enable them to create change in their lives.
Subjects/Keywords: intellectual disability; Irish context
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APA ·
Chicago ·
MLA ·
Vancouver ·
CSE |
Export
to Zotero / EndNote / Reference
Manager
APA (6th Edition):
Barry, A. (2016). Perspectives and power dynamics in inclusive research: experiences from an Irish context. (Thesis). University of Limerick. Retrieved from http://hdl.handle.net/10344/5741
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation
Chicago Manual of Style (16th Edition):
Barry, Aoife. “Perspectives and power dynamics in inclusive research: experiences from an Irish context.” 2016. Thesis, University of Limerick. Accessed February 27, 2021.
http://hdl.handle.net/10344/5741.
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation
MLA Handbook (7th Edition):
Barry, Aoife. “Perspectives and power dynamics in inclusive research: experiences from an Irish context.” 2016. Web. 27 Feb 2021.
Vancouver:
Barry A. Perspectives and power dynamics in inclusive research: experiences from an Irish context. [Internet] [Thesis]. University of Limerick; 2016. [cited 2021 Feb 27].
Available from: http://hdl.handle.net/10344/5741.
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation
Council of Science Editors:
Barry A. Perspectives and power dynamics in inclusive research: experiences from an Irish context. [Thesis]. University of Limerick; 2016. Available from: http://hdl.handle.net/10344/5741
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation

University of Victoria
12.
Rawlings, Kayla.
The Contribution of Work to Overall Levels of Physical Activity in Adults with Intellectual Disabilities.
Degree: School of Exercise Science, Physical and Health Education, 2014, University of Victoria
URL: http://hdl.handle.net/1828/5160
► Work may be a potential source of physical activity for adults with ID, and therefore may be beneficial to their health. Using a cross-sectional descriptive…
(more)
▼ Work may be a potential source of physical activity for adults with ID, and therefore may be beneficial to their health. Using a cross-sectional descriptive research design this study examined the contribution of work to the overall physical activity levels of adults with
intellectual disabilities. GT3X Actigraph accelerometers were used to measure the physical activity intensity levels of six employed adults with
intellectual disabilities over eight consecutive days. Intensity levels were categorized into sedentary, light, or moderate-to-vigorous physical activity (MVPA). The overall physical activity levels were determined to establish whether participants met the Canadian physical activity guidelines for adults. In addition physical activity levels during work were compared to physical activity during non-work. Five out of the six participants met the Canadian physical activity guidelines of 150 minutes of MVPA per week. There were no significant differences between the amount of sedentary, light or MVPA during participant’s work and non-work. There were, however, medium and large effect sizes for physical activity levels during work versus non-work, showing that work had a substantial impact on physical activity behaviours.
Advisors/Committee Members: Stuart-Hill, Lynneth Ann (supervisor).
Subjects/Keywords: Intellectual Disability; Physical Activity; Work
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❌
APA ·
Chicago ·
MLA ·
Vancouver ·
CSE |
Export
to Zotero / EndNote / Reference
Manager
APA (6th Edition):
Rawlings, K. (2014). The Contribution of Work to Overall Levels of Physical Activity in Adults with Intellectual Disabilities. (Masters Thesis). University of Victoria. Retrieved from http://hdl.handle.net/1828/5160
Chicago Manual of Style (16th Edition):
Rawlings, Kayla. “The Contribution of Work to Overall Levels of Physical Activity in Adults with Intellectual Disabilities.” 2014. Masters Thesis, University of Victoria. Accessed February 27, 2021.
http://hdl.handle.net/1828/5160.
MLA Handbook (7th Edition):
Rawlings, Kayla. “The Contribution of Work to Overall Levels of Physical Activity in Adults with Intellectual Disabilities.” 2014. Web. 27 Feb 2021.
Vancouver:
Rawlings K. The Contribution of Work to Overall Levels of Physical Activity in Adults with Intellectual Disabilities. [Internet] [Masters thesis]. University of Victoria; 2014. [cited 2021 Feb 27].
Available from: http://hdl.handle.net/1828/5160.
Council of Science Editors:
Rawlings K. The Contribution of Work to Overall Levels of Physical Activity in Adults with Intellectual Disabilities. [Masters Thesis]. University of Victoria; 2014. Available from: http://hdl.handle.net/1828/5160

University of Cape Town
13.
Strachan, Sarah-Jessica.
An investigation of stress experienced by caregivers of children with intellectual disability in a Western Cape Province population.
Degree: MPhil, Psychiatry and Mental Health, 2019, University of Cape Town
URL: http://hdl.handle.net/11427/30993
► Background: Intellectual disability (ID) is described as a neurodevelopmental disorder which occurs during the developmental period and impacts intellectual as well as adaptive functioning across…
(more)
▼ Background:
Intellectual disability (ID) is described as a neurodevelopmental disorder which occurs during the developmental period and impacts
intellectual as well as adaptive functioning across social, cognitive and practical domains. Approximately 3 percent of the South African population has mild to severe forms of ID. It is well described that caregivers of children with ID and other developmental disorders have higher levels of stress related to caring for their child than parents with typically developing children. However, little research has been reported in the South African context. Objectives: 1. To determine the nature and extent of self-reported symptoms of stress in caregivers of children with
intellectual disabilities. 2. To establish which demographic variables and child factors are associated with carer stress. 3. To compare the nature and extent of self-reported stress and demographic and child variables associated with stress in carers of children with
intellectual disability with the same measures reported by carers whose children are developing typically. Methods: This was a purposive, descriptive analytical study. Participants were 59 caregivers whose children attended Red Cross War Memorial Children’s Hospital outpatient clinics. The ID group comprised 35 caregivers of children with ID. The control Non-ID group had 24 caregivers of typically developing children. The children’s ages ranged from 2 to 10 years. Caregivers were administered a set of four questionnaires: a demographic questionnaire; the Parent Stress Index; the Hospital Anxiety and Depression Scale and the Aberrant Behaviour Checklist that rated the children’s behaviour. The data were analysed using IBM SPSS. Results: Both the ID and Non-ID groups showed elevated scores for self-reported anxiety. The ID group of caregivers reported significantly more problem behaviours in their children than the caregivers in the Non-ID group. Hyperactive behaviour predicted for depression in the caregiver ID group which also reported higher levels of stress and significantly higher levels of depression than the Non-ID group. 49 percent of the ID group caregivers reported levels of depression in the clinical range. Further, the ID group reported significantly more financial difficulties and also more appointments for their child at health facilities than the control group. Conclusion: Carers in this study setting experienced similar stresses and described similar child behavioural problems as those reported internationally. A significant finding was the high rate of caregivers of children with ID whose depression scores were in the clinical range. Child behaviour was a significant factor associated with caregiver stress and anxiety in both study groups and with depression in caregivers of children with ID. The study findings have implications for the mental health and behavioural support needs of both caregivers of typically developing children and caregivers of children with ID and for a range of services that provide this support.
Advisors/Committee Members: Adnams, Colleen (advisor).
Subjects/Keywords: Intellectual Disability Mental Health
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APA ·
Chicago ·
MLA ·
Vancouver ·
CSE |
Export
to Zotero / EndNote / Reference
Manager
APA (6th Edition):
Strachan, S. (2019). An investigation of stress experienced by caregivers of children with intellectual disability in a Western Cape Province population. (Thesis). University of Cape Town. Retrieved from http://hdl.handle.net/11427/30993
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation
Chicago Manual of Style (16th Edition):
Strachan, Sarah-Jessica. “An investigation of stress experienced by caregivers of children with intellectual disability in a Western Cape Province population.” 2019. Thesis, University of Cape Town. Accessed February 27, 2021.
http://hdl.handle.net/11427/30993.
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation
MLA Handbook (7th Edition):
Strachan, Sarah-Jessica. “An investigation of stress experienced by caregivers of children with intellectual disability in a Western Cape Province population.” 2019. Web. 27 Feb 2021.
Vancouver:
Strachan S. An investigation of stress experienced by caregivers of children with intellectual disability in a Western Cape Province population. [Internet] [Thesis]. University of Cape Town; 2019. [cited 2021 Feb 27].
Available from: http://hdl.handle.net/11427/30993.
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation
Council of Science Editors:
Strachan S. An investigation of stress experienced by caregivers of children with intellectual disability in a Western Cape Province population. [Thesis]. University of Cape Town; 2019. Available from: http://hdl.handle.net/11427/30993
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation

University of Southern California
14.
Seymour, William.
The everyday Olympics: an introduction to the many faces of
Special Olympics.
Degree: MA, Specialized Journalism, 2013, University of Southern California
URL: http://digitallibrary.usc.edu/cdm/compoundobject/collection/p15799coll3/id/294482/rec/6699
► Special Olympics International has a goal of serving 200 million people around the world who have intellectual disabilities (ID). Despite working in more than 170…
(more)
▼ Special Olympics International has a goal of serving
200 million people around the world who have
intellectual
disabilities (ID). Despite working in more than 170 countries,
Special Olympics works in relative obscurity for an organization of
its size and scope. Many people access Special Olympics through the
sporting events it organizes, but there are more facets to the
movement’s advocacy and activity. Special Olympics provides health
screenings in an attempt to address the gap in health outcomes
between people with ID and the general population. Special Olympics
is partnering with schools to reach younger potential athletes and
spokespeople. These youth leaders will hopefully work to foster a
more inclusive environment in their schools and communities.
Adapted physical therapy and an emphasis on Unified Sports, where
people with and without ID play as teammates, are other avenues for
this school outreach. Adult Special Olympics athletes are also
interviewed to explore what competition means for them and how
Special Olympics has improved their lives on and off the
field.
Advisors/Committee Members: Abrahamson, Alan Y. (Committee Chair), Morgan, William J. (Committee Member), Durbin, Daniel T. (Committee Member).
Subjects/Keywords: Special Olympics; sport; intellectual disability
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APA ·
Chicago ·
MLA ·
Vancouver ·
CSE |
Export
to Zotero / EndNote / Reference
Manager
APA (6th Edition):
Seymour, W. (2013). The everyday Olympics: an introduction to the many faces of
Special Olympics. (Masters Thesis). University of Southern California. Retrieved from http://digitallibrary.usc.edu/cdm/compoundobject/collection/p15799coll3/id/294482/rec/6699
Chicago Manual of Style (16th Edition):
Seymour, William. “The everyday Olympics: an introduction to the many faces of
Special Olympics.” 2013. Masters Thesis, University of Southern California. Accessed February 27, 2021.
http://digitallibrary.usc.edu/cdm/compoundobject/collection/p15799coll3/id/294482/rec/6699.
MLA Handbook (7th Edition):
Seymour, William. “The everyday Olympics: an introduction to the many faces of
Special Olympics.” 2013. Web. 27 Feb 2021.
Vancouver:
Seymour W. The everyday Olympics: an introduction to the many faces of
Special Olympics. [Internet] [Masters thesis]. University of Southern California; 2013. [cited 2021 Feb 27].
Available from: http://digitallibrary.usc.edu/cdm/compoundobject/collection/p15799coll3/id/294482/rec/6699.
Council of Science Editors:
Seymour W. The everyday Olympics: an introduction to the many faces of
Special Olympics. [Masters Thesis]. University of Southern California; 2013. Available from: http://digitallibrary.usc.edu/cdm/compoundobject/collection/p15799coll3/id/294482/rec/6699

Louisiana State University
15.
Belva, Brian Christopher.
Examining the Psychometrics of the Psychopathology Inventory for Mentally Retarded Adults-II for Adults with Mild and Moderate Intellectual Disabilities.
Degree: PhD, Psychology, 2014, Louisiana State University
URL: etd-08192014-010829
;
https://digitalcommons.lsu.edu/gradschool_dissertations/1029
► With growing recognition of the occurrence of psychological disorders in individuals with intellectual disability (ID), researchers and clinicians alike have placed emphasis on developing measures…
(more)
▼ With growing recognition of the occurrence of psychological disorders in individuals with intellectual disability (ID), researchers and clinicians alike have placed emphasis on developing measures to assess for psychopathologies in this population. Despite an increased interest in the topic, there is still a dearth of psychometrically robust measures available to assess for psychopathology in adults with mild and moderate ID. The purpose of this study was to examine the psychometric properties of a revised measure for psychopathology in individuals with mild and moderate ID, the Psychopathology Inventory for Mentally Retarded Adults – Second Edition (PIMRA-II). Internal consistency, inter-rater reliability, and test-retest reliability was investigated. Validity was studied via convergent validity by comparing the PIMRA-II to the Assessment of Dual Diagnosis (ADD) and via discriminate validity by comparing the PIMRA-II to the Social Performance Survey Schedule (SPSS) prosocial scores. Lastly, an exploratory factor analysis was conducted to determine the factor structure of the scale.
Subjects/Keywords: psychopathology; intellectual disability; assessment
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APA ·
Chicago ·
MLA ·
Vancouver ·
CSE |
Export
to Zotero / EndNote / Reference
Manager
APA (6th Edition):
Belva, B. C. (2014). Examining the Psychometrics of the Psychopathology Inventory for Mentally Retarded Adults-II for Adults with Mild and Moderate Intellectual Disabilities. (Doctoral Dissertation). Louisiana State University. Retrieved from etd-08192014-010829 ; https://digitalcommons.lsu.edu/gradschool_dissertations/1029
Chicago Manual of Style (16th Edition):
Belva, Brian Christopher. “Examining the Psychometrics of the Psychopathology Inventory for Mentally Retarded Adults-II for Adults with Mild and Moderate Intellectual Disabilities.” 2014. Doctoral Dissertation, Louisiana State University. Accessed February 27, 2021.
etd-08192014-010829 ; https://digitalcommons.lsu.edu/gradschool_dissertations/1029.
MLA Handbook (7th Edition):
Belva, Brian Christopher. “Examining the Psychometrics of the Psychopathology Inventory for Mentally Retarded Adults-II for Adults with Mild and Moderate Intellectual Disabilities.” 2014. Web. 27 Feb 2021.
Vancouver:
Belva BC. Examining the Psychometrics of the Psychopathology Inventory for Mentally Retarded Adults-II for Adults with Mild and Moderate Intellectual Disabilities. [Internet] [Doctoral dissertation]. Louisiana State University; 2014. [cited 2021 Feb 27].
Available from: etd-08192014-010829 ; https://digitalcommons.lsu.edu/gradschool_dissertations/1029.
Council of Science Editors:
Belva BC. Examining the Psychometrics of the Psychopathology Inventory for Mentally Retarded Adults-II for Adults with Mild and Moderate Intellectual Disabilities. [Doctoral Dissertation]. Louisiana State University; 2014. Available from: etd-08192014-010829 ; https://digitalcommons.lsu.edu/gradschool_dissertations/1029

University of Sydney
16.
Chung, Alison Margaret Janet.
Do people with intellectual disability use Nintendo WiiTM when placed in their home as part of a physiotherapy program?
.
Degree: 2014, University of Sydney
URL: http://hdl.handle.net/2123/12252
► Purpose: To examine how much, and in what way, Nintendo WiiTM (Wii) is used when prescribed as part of a home-physiotherapy program for people with…
(more)
▼ Purpose: To examine how much, and in what way, Nintendo WiiTM (Wii) is used when prescribed as part of a home-physiotherapy program for people with intellectual disability. Method: Twenty people with intellectual disability were recruited. The following parameters were recorded about play patterns over a 12-week period: frequency, duration, perceived exertion, play position, play mode, initiation of play, and games from Wii Sports and Wii Fit Plus. Results: Participants used the Wii for a median of 101 minutes per week (IQR 50 to 172) in weeks one and two across a median of three days per week (IQR 3 to 4), decreasing down to a median of 35 minutes per week (IQR 0 to 141) in weeks 11 and 12 across a median of one day per week (IQR 0 to 3). Conclusions: Usage of the Wii drops off rapidly when it is placed in the homes of people with intellectual disability as part of a physiotherapy program.
Subjects/Keywords: Intellectual disability;
Physiotherapy;
Nintendo WiiTM
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APA ·
Chicago ·
MLA ·
Vancouver ·
CSE |
Export
to Zotero / EndNote / Reference
Manager
APA (6th Edition):
Chung, A. M. J. (2014). Do people with intellectual disability use Nintendo WiiTM when placed in their home as part of a physiotherapy program?
. (Thesis). University of Sydney. Retrieved from http://hdl.handle.net/2123/12252
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation
Chicago Manual of Style (16th Edition):
Chung, Alison Margaret Janet. “Do people with intellectual disability use Nintendo WiiTM when placed in their home as part of a physiotherapy program?
.” 2014. Thesis, University of Sydney. Accessed February 27, 2021.
http://hdl.handle.net/2123/12252.
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation
MLA Handbook (7th Edition):
Chung, Alison Margaret Janet. “Do people with intellectual disability use Nintendo WiiTM when placed in their home as part of a physiotherapy program?
.” 2014. Web. 27 Feb 2021.
Vancouver:
Chung AMJ. Do people with intellectual disability use Nintendo WiiTM when placed in their home as part of a physiotherapy program?
. [Internet] [Thesis]. University of Sydney; 2014. [cited 2021 Feb 27].
Available from: http://hdl.handle.net/2123/12252.
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation
Council of Science Editors:
Chung AMJ. Do people with intellectual disability use Nintendo WiiTM when placed in their home as part of a physiotherapy program?
. [Thesis]. University of Sydney; 2014. Available from: http://hdl.handle.net/2123/12252
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation

University of Sydney
17.
Field, Barbara.
Intellectual Disability and Society
.
Degree: 2012, University of Sydney
URL: http://hdl.handle.net/2123/9390
► The aim of this thesis is to outline the story of intellectual disability from a medical perspective as experienced by the author during more than…
(more)
▼ The aim of this thesis is to outline the story of intellectual disability from a medical perspective as experienced by the author during more than 40 years working in the NSW Health system. Most of the writing over the last 30 years is from a sociological perspective after the idea of normalization changed the philosophy of care, and medical perspectives have been largely absent. The first chapter provides an introduction and historical background to the concept of intellectual disability. The story over the centuries is one of parallels and conflicts in the medical and sociological discourses. The second chapter examines the representation of intellectual disability both in the symbolic sense in art, literature and film, and the political sense as advocacy and human rights and the effect of the social rights discourse on processes of inclusion and exclusion. The third chapter is an account of the history of intellectual disability in NSW, Australia since colonization, and the impact of the social rights movement on changes of policy and provision of services. The conclusion looks at the future and the structure of the Ideal Society. The thread, which runs throughout these aspects of intellectual disability and unites the themes, is that of changing discourses. New discourses emerge as others are silenced and the same discourse can also have different meanings at different times in history. The ideas were presented as papers at international meetings of the International Association for the Scientific Study of Intellectual Disability (IASSID): Foucault’s Power Knowledge Model applied to Genetic Screening. (Helsinki 1996); Intellectual Disability in Literature and Film. (Seattle 2000); Prejudice and Identity in Intellectual Disability. (Montpellier 2004);Intellectual Disability in Literature and Film was presented at Health Illness and Representation, The Association for Medical Humanities UK meeting (London 2006).
Subjects/Keywords: intellectual disability;
New South Wales
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APA ·
Chicago ·
MLA ·
Vancouver ·
CSE |
Export
to Zotero / EndNote / Reference
Manager
APA (6th Edition):
Field, B. (2012). Intellectual Disability and Society
. (Thesis). University of Sydney. Retrieved from http://hdl.handle.net/2123/9390
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation
Chicago Manual of Style (16th Edition):
Field, Barbara. “Intellectual Disability and Society
.” 2012. Thesis, University of Sydney. Accessed February 27, 2021.
http://hdl.handle.net/2123/9390.
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation
MLA Handbook (7th Edition):
Field, Barbara. “Intellectual Disability and Society
.” 2012. Web. 27 Feb 2021.
Vancouver:
Field B. Intellectual Disability and Society
. [Internet] [Thesis]. University of Sydney; 2012. [cited 2021 Feb 27].
Available from: http://hdl.handle.net/2123/9390.
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation
Council of Science Editors:
Field B. Intellectual Disability and Society
. [Thesis]. University of Sydney; 2012. Available from: http://hdl.handle.net/2123/9390
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation

University of Rochester
18.
Christensen, Julie J.
Leisure and recreation preferences of adolescents with
intellectual and developmental disabilities.
Degree: PhD, 2014, University of Rochester
URL: http://hdl.handle.net/1802/28461
► Quality of life for many adolescents with intellectual and developmental disabilities (IDD) is hindered by limited social connections, adversely impacting their ability to develop meaningful…
(more)
▼ Quality of life for many adolescents with
intellectual and developmental
disabilities (IDD) is hindered by
limited social connections, adversely impacting their
ability to
develop meaningful relationships. Leisure and recreation programs
represent an
important forum to increase opportunities for social
engagement. However, research is
needed to better understand how
youth with IDD experience and utilize programs.
The purpose of
this study was to describe the experiences of adolescents with
IDD
within the leisure and recreation context. This qualitative
descriptive study explored
the factors considered when adolescents
with IDD select leisure or recreation settings, the
barriers and
facilitators to participation, and the perception of the quality of
social
interactions experienced in programs. Two mixed group and
two segregated leisure and
recreation programs in Upstate New York
were selected for participation, and eleven
youth with IDD,
between the ages of 11-19 years of age, were recruited for this
study. A
modified version of photovoice was utilized for data
collection, allowing youth to capture
and describe their
experiences in their programs through the use of digital
photography.
Results of this study indicate that the opportunity
to meet new people, develop
intimate friendships, and have fun is
most important to youth with IDD. This study also
suggests that
there is a need for both mixed group and segregated program
settings. The
quality of social interactions and feelings of
social acceptance and inclusion were
experienced differently
between settings. Youth in mixed group programs often chose not
disclose their disabilities, and opted to be passive participants
in their programs.
However, in segregated programs, youth openly
identified as persons with disabilities,
and were more willing to
fully engage in program activities and take social risks.
Recommendations for practice are provided, with emphasis on
strategies to
promote enhanced participation and acceptance of
adolescents with IDD in leisure and
recreation programs.
Additionally, a discussion of potential changes in policy that
might
lead to improvements in program responsiveness to the needs
of youth with IDD is
offered.
Subjects/Keywords: Leisure; Recreation; Adolescents; Intellectual disability; Developmental disability
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❌
APA ·
Chicago ·
MLA ·
Vancouver ·
CSE |
Export
to Zotero / EndNote / Reference
Manager
APA (6th Edition):
Christensen, J. J. (2014). Leisure and recreation preferences of adolescents with
intellectual and developmental disabilities. (Doctoral Dissertation). University of Rochester. Retrieved from http://hdl.handle.net/1802/28461
Chicago Manual of Style (16th Edition):
Christensen, Julie J. “Leisure and recreation preferences of adolescents with
intellectual and developmental disabilities.” 2014. Doctoral Dissertation, University of Rochester. Accessed February 27, 2021.
http://hdl.handle.net/1802/28461.
MLA Handbook (7th Edition):
Christensen, Julie J. “Leisure and recreation preferences of adolescents with
intellectual and developmental disabilities.” 2014. Web. 27 Feb 2021.
Vancouver:
Christensen JJ. Leisure and recreation preferences of adolescents with
intellectual and developmental disabilities. [Internet] [Doctoral dissertation]. University of Rochester; 2014. [cited 2021 Feb 27].
Available from: http://hdl.handle.net/1802/28461.
Council of Science Editors:
Christensen JJ. Leisure and recreation preferences of adolescents with
intellectual and developmental disabilities. [Doctoral Dissertation]. University of Rochester; 2014. Available from: http://hdl.handle.net/1802/28461

Cornell University
19.
Buhrer, Eliza.
Inventing Idiocy: Law, Land And The Construction Of Intellectual Disability In Late Medieval England.
Degree: PhD, Medieval Studies, 2013, Cornell University
URL: http://hdl.handle.net/1813/33850
► During the late thirteenth century the English Crown claimed the right to take the lands of so-called idiots into its possession, and developed a set…
(more)
▼ During the late thirteenth century the English Crown claimed the right to take the lands of so-called idiots into its possession, and developed a set of juridical practices to assess whether these individuals were mentally competent enough to rule themselves and their property. This dissertation examines how these developments informed the way society imagined
intellectual disability in the Middle Ages and beyond. Since the publication of Foucault's Madness and Civilization, scholars have treated insanity as a concept with a cultural history. Less however has been written about the conceptual history of "idiocy." People outside the academy naturally assume that intelligence and its absence are natural categories, while historians who work on the cultural history of
intellectual disability tend to locate its emergence in early modern medical discourses. Rejecting both of these claims, Inventing Idiocy suggests that
intellectual disability was not initially a medical concept, but an invention of medieval jurists and administrators concerned with practical matters of land and inheritance. For while a concept of idiocy existed in the Middle Ages, the idiocy that preoccupied medieval jurists had little to do with a specific idea of intelligence. Rather it was a narrow legal term, used to refer to people who were unable to manage landed wealth. People outside the legal profession had little idea what idiocy entailed, and no disorder resembling the law's idea of idiocy-or our own-existed in medieval medicine. Nevertheless hundreds of alleged idiots were called before the courts between the late thirteenth and early fifteenth centuries. Examining records of these inquisitions, I show that qualities associated with idiocy in later medical discourses reflected the idea of mental incompetency that arose in of these contested trials. In doing so, I reject the view that
intellectual disability originated when medical discourse supplanted older religious constructions of foolishness, and is indeed medical in origin. Instead, I suggest that a stable and distinctive concept of
intellectual disability entered Western thought when a category invented by lawyers to deal with practical problems of inheritance burgeoned beyond the legal sphere, and became assimilated into general culture.
Advisors/Committee Members: Hyams, Paul R (chair), Corpis, Duane Joseph (committee member), MacDonald, Scott C (committee member).
Subjects/Keywords: medieval England; history of disability; intellectual disability
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❌
APA ·
Chicago ·
MLA ·
Vancouver ·
CSE |
Export
to Zotero / EndNote / Reference
Manager
APA (6th Edition):
Buhrer, E. (2013). Inventing Idiocy: Law, Land And The Construction Of Intellectual Disability In Late Medieval England. (Doctoral Dissertation). Cornell University. Retrieved from http://hdl.handle.net/1813/33850
Chicago Manual of Style (16th Edition):
Buhrer, Eliza. “Inventing Idiocy: Law, Land And The Construction Of Intellectual Disability In Late Medieval England.” 2013. Doctoral Dissertation, Cornell University. Accessed February 27, 2021.
http://hdl.handle.net/1813/33850.
MLA Handbook (7th Edition):
Buhrer, Eliza. “Inventing Idiocy: Law, Land And The Construction Of Intellectual Disability In Late Medieval England.” 2013. Web. 27 Feb 2021.
Vancouver:
Buhrer E. Inventing Idiocy: Law, Land And The Construction Of Intellectual Disability In Late Medieval England. [Internet] [Doctoral dissertation]. Cornell University; 2013. [cited 2021 Feb 27].
Available from: http://hdl.handle.net/1813/33850.
Council of Science Editors:
Buhrer E. Inventing Idiocy: Law, Land And The Construction Of Intellectual Disability In Late Medieval England. [Doctoral Dissertation]. Cornell University; 2013. Available from: http://hdl.handle.net/1813/33850

University of Saskatchewan
20.
Thiemann, Tara.
Mental Health and Intellectual Disability: The Experiences of Disability Support Workers in Relation to the Mental Health Needs of Clients.
Degree: 2017, University of Saskatchewan
URL: http://hdl.handle.net/10388/7795
► Adults with intellectual disabilities are known to have a high prevalence of mental health problems. As with other Canadians, access to adequate mental health services…
(more)
▼ Adults with
intellectual disabilities are known to have a high prevalence of mental health problems. As with other Canadians, access to adequate mental health services for this group is a challenge. As a result, these individuals along with their family members are turning to
intellectual disability services for assistance with issues of mental health regardless of the fact that employees do not receive specialized training in this area. Research indicates that
intellectual disability service providers play an important role in the mental health of these individuals, are supporting service users with a variety of mental health issues, and are in need of specialized training. What is missing from this research, is the experience, of Canadian support workers as they support the mental health of adults with
intellectual disabilities. Through the use of a general qualitative research design, this study attempted to explore and understand the experiences of direct support workers as they support adults with
intellectual disabilities where issues of mental health and well-being appear. A semi-structured interview was utilized to elicit descriptions of these experiences in addition to the perceptions of direct support workers in relation to training competencies and needs. It is anticipated that through understanding the experiences and perceptions of direct support workers, a better service model can be delineated.
Advisors/Committee Members: Claypool, Tim, Claypool, Tim, Brenna, Beverley, Squires, Vicki, Mousavi, Amin.
Subjects/Keywords: mental health; intellectual disability; disability support workers
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❌
APA ·
Chicago ·
MLA ·
Vancouver ·
CSE |
Export
to Zotero / EndNote / Reference
Manager
APA (6th Edition):
Thiemann, T. (2017). Mental Health and Intellectual Disability: The Experiences of Disability Support Workers in Relation to the Mental Health Needs of Clients. (Thesis). University of Saskatchewan. Retrieved from http://hdl.handle.net/10388/7795
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation
Chicago Manual of Style (16th Edition):
Thiemann, Tara. “Mental Health and Intellectual Disability: The Experiences of Disability Support Workers in Relation to the Mental Health Needs of Clients.” 2017. Thesis, University of Saskatchewan. Accessed February 27, 2021.
http://hdl.handle.net/10388/7795.
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation
MLA Handbook (7th Edition):
Thiemann, Tara. “Mental Health and Intellectual Disability: The Experiences of Disability Support Workers in Relation to the Mental Health Needs of Clients.” 2017. Web. 27 Feb 2021.
Vancouver:
Thiemann T. Mental Health and Intellectual Disability: The Experiences of Disability Support Workers in Relation to the Mental Health Needs of Clients. [Internet] [Thesis]. University of Saskatchewan; 2017. [cited 2021 Feb 27].
Available from: http://hdl.handle.net/10388/7795.
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation
Council of Science Editors:
Thiemann T. Mental Health and Intellectual Disability: The Experiences of Disability Support Workers in Relation to the Mental Health Needs of Clients. [Thesis]. University of Saskatchewan; 2017. Available from: http://hdl.handle.net/10388/7795
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation

University of Manitoba
21.
Ratnayake, Iresha.
Characteristics that determine complete physical examination rates in Manitobans with an intellectual or developmental disability: a retrospective cohort study.
Degree: Community Health Sciences, 2017, University of Manitoba
URL: http://hdl.handle.net/1993/32825
► Research shows significant health disparities between persons with and without intellectual and developmental disabilities (IDD). An annual comprehensive preventive care assessment which includes a complete…
(more)
▼ Research shows significant health disparities between persons with and without
intellectual and developmental disabilities (IDD). An annual comprehensive preventive care assessment which includes a complete physical exam (CPE) is a recommendation to reduce health disparities experienced by this population. The main purpose of this study was to report rates of CPE among the IDD and non-IDD population over time and to identify characteristics that lead to one receiving a CPE. This was a retrospective cohort study based on several years of administrative data (1995/96 - 2014/15). The study found that CPE rates were higher among the IDD population. History of CPE, history of mental illness, majority of care, region of residence, sex, and socioeconomic status were significant predictors of one receiving a CPE. The results from this study have potential to influence policies, programs and in turn contribute to improving the health of this population.
Advisors/Committee Members: Shooshtari, Shahin (Community Health Sciences) (supervisor), Chateau, Dan (Community Health Sciences) .
Subjects/Keywords: Intellectual disability; Developmental disability; Complete physical examination
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❌
APA ·
Chicago ·
MLA ·
Vancouver ·
CSE |
Export
to Zotero / EndNote / Reference
Manager
APA (6th Edition):
Ratnayake, I. (2017). Characteristics that determine complete physical examination rates in Manitobans with an intellectual or developmental disability: a retrospective cohort study. (Masters Thesis). University of Manitoba. Retrieved from http://hdl.handle.net/1993/32825
Chicago Manual of Style (16th Edition):
Ratnayake, Iresha. “Characteristics that determine complete physical examination rates in Manitobans with an intellectual or developmental disability: a retrospective cohort study.” 2017. Masters Thesis, University of Manitoba. Accessed February 27, 2021.
http://hdl.handle.net/1993/32825.
MLA Handbook (7th Edition):
Ratnayake, Iresha. “Characteristics that determine complete physical examination rates in Manitobans with an intellectual or developmental disability: a retrospective cohort study.” 2017. Web. 27 Feb 2021.
Vancouver:
Ratnayake I. Characteristics that determine complete physical examination rates in Manitobans with an intellectual or developmental disability: a retrospective cohort study. [Internet] [Masters thesis]. University of Manitoba; 2017. [cited 2021 Feb 27].
Available from: http://hdl.handle.net/1993/32825.
Council of Science Editors:
Ratnayake I. Characteristics that determine complete physical examination rates in Manitobans with an intellectual or developmental disability: a retrospective cohort study. [Masters Thesis]. University of Manitoba; 2017. Available from: http://hdl.handle.net/1993/32825

University of Manchester
22.
Powney, Melanie.
Attachment and trauma in people with intellectual disabilities.
Degree: Thesis (D.Clin.Psy.), 2014, University of Manchester
URL: https://www.research.manchester.ac.uk/portal/en/theses/attachment-and-trauma-in-people-with-intellectual-disabilities(865e3b4c-be4a-4f80-ba5b-154c647aba9d).html
;
http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.626962
► This thesis explored attachment in individuals with intellectual disability (ID). It investigated the role that attachment may have in presenting difficulties, including trauma symptoms, which…
(more)
▼ This thesis explored attachment in individuals with intellectual disability (ID). It investigated the role that attachment may have in presenting difficulties, including trauma symptoms, which has a growing body of literature, particularly in people without ID. Paper 1 describes a systematic review of the available literature relating to the psychological well-being of young people with ID in the UK who are 'looked after children' (LAC) or who live away from their birth families. Evidence suggests that both LAC and people with ID, may be vulnerable to developing mental health difficulties. However, there is a paucity of research investigating the psychological well-being of young people with ID who are LAC or who live away from birth families. 17 studies were reviewed, which ranged between 21% and 71% in quality as measured by the QATSDD (Sirriyeh, Lawton, Gardner, & Armitage, 2012). . Only one study was found that directly focused on the psychological well-being of LAC with an ID. The available studies offered some insights into the prevalence, characteristics of young people with ID who are LAC or who live away from their birth families and some of the psychological difficulties they encounter. However, given the methodological limitations of the included studies, no firm conclusions could be drawn. Paper 2 describes an empirical study that investigated the relationship between attachment security and trauma symptoms in adults with ID. 27 staff and service users participated in the research. Service user participants completed a self-report questionnaire regarding trauma symptoms with the researcher and staff participants provided demographic information and completed questionnaires that measured attachment security, trauma symptoms, depressive mood and traumatic events in relation to the service user. No relationship was found between attachment security and trauma symptoms. However, it provided tentative evidence with respect to the type of traumatic events experienced by people with ID and of the prevalence of mental health difficulties in people with ID. There were however several methodological limitations, including a small sample size. Implications for future research and clinical practice are outlined. Paper 3 provides a critical and personally reflective account of undertaking the systematic review and empirical study as outlined above. Strengths and limitations of the research are interwoven throughout. Recommendations for future research and implications for practice are also considered.
Subjects/Keywords: 616.85; intellectual disability, learning disability, attachment, trauma
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❌
APA ·
Chicago ·
MLA ·
Vancouver ·
CSE |
Export
to Zotero / EndNote / Reference
Manager
APA (6th Edition):
Powney, M. (2014). Attachment and trauma in people with intellectual disabilities. (Doctoral Dissertation). University of Manchester. Retrieved from https://www.research.manchester.ac.uk/portal/en/theses/attachment-and-trauma-in-people-with-intellectual-disabilities(865e3b4c-be4a-4f80-ba5b-154c647aba9d).html ; http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.626962
Chicago Manual of Style (16th Edition):
Powney, Melanie. “Attachment and trauma in people with intellectual disabilities.” 2014. Doctoral Dissertation, University of Manchester. Accessed February 27, 2021.
https://www.research.manchester.ac.uk/portal/en/theses/attachment-and-trauma-in-people-with-intellectual-disabilities(865e3b4c-be4a-4f80-ba5b-154c647aba9d).html ; http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.626962.
MLA Handbook (7th Edition):
Powney, Melanie. “Attachment and trauma in people with intellectual disabilities.” 2014. Web. 27 Feb 2021.
Vancouver:
Powney M. Attachment and trauma in people with intellectual disabilities. [Internet] [Doctoral dissertation]. University of Manchester; 2014. [cited 2021 Feb 27].
Available from: https://www.research.manchester.ac.uk/portal/en/theses/attachment-and-trauma-in-people-with-intellectual-disabilities(865e3b4c-be4a-4f80-ba5b-154c647aba9d).html ; http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.626962.
Council of Science Editors:
Powney M. Attachment and trauma in people with intellectual disabilities. [Doctoral Dissertation]. University of Manchester; 2014. Available from: https://www.research.manchester.ac.uk/portal/en/theses/attachment-and-trauma-in-people-with-intellectual-disabilities(865e3b4c-be4a-4f80-ba5b-154c647aba9d).html ; http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.626962

Louisiana State University
23.
Hattier, Megan Alice.
Factor Analysis and Cut-Off Scores for the Autism Spectrum Disorders-Observation for Children.
Degree: PhD, Psychology, 2014, Louisiana State University
URL: etd-07072014-115319
;
https://digitalcommons.lsu.edu/gradschool_dissertations/1200
► Optimal prognoses for children with Autism Spectrum Disorders (ASDs) often rely upon early intervention; thus, there has been a call for reliable and valid assessment…
(more)
▼ Optimal prognoses for children with Autism Spectrum Disorders (ASDs) often rely upon early intervention; thus, there has been a call for reliable and valid assessment tools in order to ensure accurate diagnoses among youth at risk for developmental disabilities (DDs) such as autism. The target of this paper is to inspect the underlying factor structure of a recently developed observation tool for assessing autistic symptoms, the Autism Spectrum Disorders – Observation for Children (ASD-OC). More importantly, cutoff scores were also developed for clinical use in order to distinguish between those with and without an ASD. Given that marked changed were made to ASD diagnostic criteria with the release of the most recent Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition (DSM-5), two sets of cutoff scores were developed according to the DSM-IV-TR and DSM-5. Study 1 found that the underlying factor structure of the ASD-OC was best explained by two components (i.e., social/communicative behaviors and repetitive/restricted behaviors and interests). Studies 2 and 3 found the ASD-OC to have excellent discriminating ability when differentiating between those with and without ASD according to both the DSM-IV-TR and the DSM-5. Corresponding cutoff scores were developed based upon these analyses. Although there are a number of ASD observation tools already in existence, the ability of the ASD-OC to satisfy many of the shortcomings of these pre-existing measures appears to be promising.
Subjects/Keywords: autistic disorder; diagnosis; intellectual disability; developmental disability
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❌
APA ·
Chicago ·
MLA ·
Vancouver ·
CSE |
Export
to Zotero / EndNote / Reference
Manager
APA (6th Edition):
Hattier, M. A. (2014). Factor Analysis and Cut-Off Scores for the Autism Spectrum Disorders-Observation for Children. (Doctoral Dissertation). Louisiana State University. Retrieved from etd-07072014-115319 ; https://digitalcommons.lsu.edu/gradschool_dissertations/1200
Chicago Manual of Style (16th Edition):
Hattier, Megan Alice. “Factor Analysis and Cut-Off Scores for the Autism Spectrum Disorders-Observation for Children.” 2014. Doctoral Dissertation, Louisiana State University. Accessed February 27, 2021.
etd-07072014-115319 ; https://digitalcommons.lsu.edu/gradschool_dissertations/1200.
MLA Handbook (7th Edition):
Hattier, Megan Alice. “Factor Analysis and Cut-Off Scores for the Autism Spectrum Disorders-Observation for Children.” 2014. Web. 27 Feb 2021.
Vancouver:
Hattier MA. Factor Analysis and Cut-Off Scores for the Autism Spectrum Disorders-Observation for Children. [Internet] [Doctoral dissertation]. Louisiana State University; 2014. [cited 2021 Feb 27].
Available from: etd-07072014-115319 ; https://digitalcommons.lsu.edu/gradschool_dissertations/1200.
Council of Science Editors:
Hattier MA. Factor Analysis and Cut-Off Scores for the Autism Spectrum Disorders-Observation for Children. [Doctoral Dissertation]. Louisiana State University; 2014. Available from: etd-07072014-115319 ; https://digitalcommons.lsu.edu/gradschool_dissertations/1200

California State University – Sacramento
24.
Haney, Pamela J.
Perceptions of customized employment among employment support professionals.
Degree: MSW, Social Work, 2020, California State University – Sacramento
URL: http://hdl.handle.net/10211.3/216477
► Customized Employment is a relatively new service offered to job seekers with Intellectual and Developmental Disabilities. As with any new service, there are significant challenges…
(more)
▼ Customized Employment is a relatively new service offered to job seekers with
Intellectual and Developmental Disabilities. As with any new service, there are significant challenges in implementation. This paper focuses on an early adopter organization and the perceptions of employees throughout a time of transition towards best practice implementation. By interviewing staff, the researcher found significant knowledge gaps regarding how Customized Employment should work, what it should look like, and how it is different from other modalities of employment supports. Support professionals largely expressed positive views of Customized Employment while also misunderstanding what it is and how it is achieved. While issues of funding and organizational structure are certainly barriers to new service development, direct support professionals did not seem to view these elements as specific hindrances to their work or provision of services.
Advisors/Committee Members: Nam, Kisun.
Subjects/Keywords: Developmental disability; Vocational rehabilitation; Intellectual disability
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❌
APA ·
Chicago ·
MLA ·
Vancouver ·
CSE |
Export
to Zotero / EndNote / Reference
Manager
APA (6th Edition):
Haney, P. J. (2020). Perceptions of customized employment among employment support professionals. (Masters Thesis). California State University – Sacramento. Retrieved from http://hdl.handle.net/10211.3/216477
Chicago Manual of Style (16th Edition):
Haney, Pamela J. “Perceptions of customized employment among employment support professionals.” 2020. Masters Thesis, California State University – Sacramento. Accessed February 27, 2021.
http://hdl.handle.net/10211.3/216477.
MLA Handbook (7th Edition):
Haney, Pamela J. “Perceptions of customized employment among employment support professionals.” 2020. Web. 27 Feb 2021.
Vancouver:
Haney PJ. Perceptions of customized employment among employment support professionals. [Internet] [Masters thesis]. California State University – Sacramento; 2020. [cited 2021 Feb 27].
Available from: http://hdl.handle.net/10211.3/216477.
Council of Science Editors:
Haney PJ. Perceptions of customized employment among employment support professionals. [Masters Thesis]. California State University – Sacramento; 2020. Available from: http://hdl.handle.net/10211.3/216477
25.
Morgan, Sheri A.
Health Services Utilized by Community Dwelling Adults with Developmental Disability and Risk for Cardiovascular Disease Across Two Residential Settings.
Degree: PhD, Nursing, 2013, The Catholic University of America
URL: http://hdl.handle.net/1961/etd:354
► Degree awarded: Ph.D. Nursing. The Catholic University of America
This descriptive, correlational study (N = 33) examined health-care services (services) used by community-dwelling adults with…
(more)
▼ Degree awarded: Ph.D. Nursing. The Catholic University of America
This descriptive, correlational study (N = 33) examined health-care services (services) used by community-dwelling adults with developmental disability (DD) who have risk for developing cardiovascular disease (CVD). Tremendous change has occurred for adults with DD as they are living longer and have adopted lifestyles similar to their non-disabled peers. They have experienced increased rates of CVD and frequently die sudden deaths from untreated CVD. Using Aday's Theoretical Framework for the Study of Access to Medical Care, the purposes of this study were; 1) to describe the types of services used by these adults, 2) to determine if services used were those recommended by national treatment guidelines for prevention of CVD, and 3) to explore the relationships between the recommended services used and risk scores (measured by the 10-Year CVD Risk Calculator), residential setting, and functional status (measured by the World Health Organization's Disability Assessment Schedule II). Study participants and their knowledgeable proxies provided documents describing services used during the past year. Services used were compared to those recommended by the American Heart Association and American College of Cardiology Guidelines for the Prevention and Treatment of CVD. Study participants used publicly funded health insurance plans to obtain a myriad of services. Statistical analysis showed no correlation between the use of all services and the use of recommended services for CVD. Correlations were found between age (r = .711, p < 0.01, N = 33, 2-tailed) and need (r = .365, p < 0.05, N = 33, 2-tailed) and the use of recommended services for CVD. Use of recommended services was not related to residential setting or functional status of the study participants. Post hoc findings included: recommended services to prevent CVD were being delivered by family practice physicians during visits to address CVD, and no correlations were found between common socioeconomic health determinants (knowledgeable proxies' and adults' with DD education and income levels) and the use of recommended services for adults with DD. More research with larger sample sizes is needed to better understand the factors that influence the use of recommended services given this population's multitude of vulnerabilities.
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Advisors/Committee Members: Paterson, Mary A. (Advisor), Moran, Barbara (Other), Jairath, Nalini (Other), Safer, Martin A. (Other), Donaldson, Linda P. (Other).
Subjects/Keywords: Nursing; Health sciences; Health care management; adults with developmental disability; adults with intellectual disability; cardiovascular disease and intellectual disability; disability; health services and intellectual disability; intellectual disability
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❌
APA ·
Chicago ·
MLA ·
Vancouver ·
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APA (6th Edition):
Morgan, S. A. (2013). Health Services Utilized by Community Dwelling Adults with Developmental Disability and Risk for Cardiovascular Disease Across Two Residential Settings. (Doctoral Dissertation). The Catholic University of America. Retrieved from http://hdl.handle.net/1961/etd:354
Chicago Manual of Style (16th Edition):
Morgan, Sheri A. “Health Services Utilized by Community Dwelling Adults with Developmental Disability and Risk for Cardiovascular Disease Across Two Residential Settings.” 2013. Doctoral Dissertation, The Catholic University of America. Accessed February 27, 2021.
http://hdl.handle.net/1961/etd:354.
MLA Handbook (7th Edition):
Morgan, Sheri A. “Health Services Utilized by Community Dwelling Adults with Developmental Disability and Risk for Cardiovascular Disease Across Two Residential Settings.” 2013. Web. 27 Feb 2021.
Vancouver:
Morgan SA. Health Services Utilized by Community Dwelling Adults with Developmental Disability and Risk for Cardiovascular Disease Across Two Residential Settings. [Internet] [Doctoral dissertation]. The Catholic University of America; 2013. [cited 2021 Feb 27].
Available from: http://hdl.handle.net/1961/etd:354.
Council of Science Editors:
Morgan SA. Health Services Utilized by Community Dwelling Adults with Developmental Disability and Risk for Cardiovascular Disease Across Two Residential Settings. [Doctoral Dissertation]. The Catholic University of America; 2013. Available from: http://hdl.handle.net/1961/etd:354
26.
Morgan, Sheri A.
Health Services Utilized by Community Dwelling Adults with Developmental Disability and Risk for Cardiovascular Disease Across Two Residential Settings.
Degree: PhD, Nursing, 2013, The Catholic University of America
URL: http://hdl.handle.net/1961/14889
► Degree awarded: Ph.D. Nursing. The Catholic University of America
This descriptive, correlational study (N = 33) examined health-care services (services) used by community-dwelling adults with…
(more)
▼ Degree awarded: Ph.D. Nursing. The Catholic University of America
This descriptive, correlational study (N = 33) examined health-care services (services) used by community-dwelling adults with developmental disability (DD) who have risk for developing cardiovascular disease (CVD). Tremendous change has occurred for adults with DD as they are living longer and have adopted lifestyles similar to their non-disabled peers. They have experienced increased rates of CVD and frequently die sudden deaths from untreated CVD. Using Aday's Theoretical Framework for the Study of Access to Medical Care, the purposes of this study were; 1) to describe the types of services used by these adults, 2) to determine if services used were those recommended by national treatment guidelines for prevention of CVD, and 3) to explore the relationships between the recommended services used and risk scores (measured by the 10-Year CVD Risk Calculator), residential setting, and functional status (measured by the World Health Organization's Disability Assessment Schedule II). Study participants and their knowledgeable proxies provided documents describing services used during the past year. Services used were compared to those recommended by the American Heart Association and American College of Cardiology Guidelines for the Prevention and Treatment of CVD. Study participants used publicly funded health insurance plans to obtain a myriad of services. Statistical analysis showed no correlation between the use of all services and the use of recommended services for CVD. Correlations were found between age (r = .711, p < 0.01, N = 33, 2-tailed) and need (r = .365, p < 0.05, N = 33, 2-tailed) and the use of recommended services for CVD. Use of recommended services was not related to residential setting or functional status of the study participants. Post hoc findings included: recommended services to prevent CVD were being delivered by family practice physicians during visits to address CVD, and no correlations were found between common socioeconomic health determinants (knowledgeable proxies' and adults' with DD education and income levels) and the use of recommended services for adults with DD. More research with larger sample sizes is needed to better understand the factors that influence the use of recommended services given this population's multitude of vulnerabilities.
Made available in DSpace on 2013-06-25T14:59:01Z (GMT). No. of bitstreams: 1
Morgan_cua_0043A_10439display.pdf: 1467734 bytes, checksum: da4e6c9232ec06a3880a86f304a0b409 (MD5)
Advisors/Committee Members: Paterson, Mary A. (Advisor), Moran, Barbara (Other), Jairath, Nalini (Other), Safer, Martin A. (Other), Donaldson, Linda P. (Other).
Subjects/Keywords: Nursing; Health sciences; Health care management; adults with developmental disability; adults with intellectual disability; cardiovascular disease and intellectual disability; disability; health services and intellectual disability; intellectual disability
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❌
APA ·
Chicago ·
MLA ·
Vancouver ·
CSE |
Export
to Zotero / EndNote / Reference
Manager
APA (6th Edition):
Morgan, S. A. (2013). Health Services Utilized by Community Dwelling Adults with Developmental Disability and Risk for Cardiovascular Disease Across Two Residential Settings. (Doctoral Dissertation). The Catholic University of America. Retrieved from http://hdl.handle.net/1961/14889
Chicago Manual of Style (16th Edition):
Morgan, Sheri A. “Health Services Utilized by Community Dwelling Adults with Developmental Disability and Risk for Cardiovascular Disease Across Two Residential Settings.” 2013. Doctoral Dissertation, The Catholic University of America. Accessed February 27, 2021.
http://hdl.handle.net/1961/14889.
MLA Handbook (7th Edition):
Morgan, Sheri A. “Health Services Utilized by Community Dwelling Adults with Developmental Disability and Risk for Cardiovascular Disease Across Two Residential Settings.” 2013. Web. 27 Feb 2021.
Vancouver:
Morgan SA. Health Services Utilized by Community Dwelling Adults with Developmental Disability and Risk for Cardiovascular Disease Across Two Residential Settings. [Internet] [Doctoral dissertation]. The Catholic University of America; 2013. [cited 2021 Feb 27].
Available from: http://hdl.handle.net/1961/14889.
Council of Science Editors:
Morgan SA. Health Services Utilized by Community Dwelling Adults with Developmental Disability and Risk for Cardiovascular Disease Across Two Residential Settings. [Doctoral Dissertation]. The Catholic University of America; 2013. Available from: http://hdl.handle.net/1961/14889

University of Illinois – Chicago
27.
Pearson, Jennifer.
Special Educators’ Math Instruction for High School Students with Significant Intellectual Disabilities.
Degree: 2018, University of Illinois – Chicago
URL: http://hdl.handle.net/10027/22725
► While federal policies such as NCLB, IDEA, and ESSA have placed increased accountability on states to deliver instruction aligned to the grade-level mathematics standards for…
(more)
▼ While federal policies such as NCLB, IDEA, and ESSA have placed increased accountability on states to deliver instruction aligned to the grade-level mathematics standards for all students, teaching functional skills to students with significant
intellectual disabilities remains a predominant practice. The purpose of this study was to explore mathematics instruction for high school students with significant
intellectual disabilities (SID), factors that influenced special education teachers’ math instruction and curriculum design at the secondary level, and to determine barriers that may interfere with the delivery of standards-based mathematics instruction. A statewide sample of 75 Illinois secondary special educators who deliver math instruction to students with SID completed a survey that examined their perceptions related to the implementation of national mathematics standards and evidence-based practices in the areas of: (a) knowledge and familiarity with mathematics topics, (b) beliefs about mathematics instruction for students with significant
intellectual disabilities, (c) preparation in mathematics instruction, (d) enactment of mathematics content and instructional strategies, and (e) challenges to teaching effective mathematics instruction. Respondents reported mostly teaching functional math skills, such as time and money to students with SID. Further, special education teachers determined the curriculum in isolation, with limited opportunities for collaboration. The findings also revealed that special education teachers endorsed stronger content knowledge of curriculum adaptations than mathematics
subject matter. Though no predictors were found that contributed to the content taught, there was a large, positive correlation between how often each content area was taught to how important teachers rated the content area for their students with SID. Implications for research and practice are discussed.
Advisors/Committee Members: Cushing, Lisa (advisor), Parker-Katz, Michelle (committee member), Maggin, Daniel (committee member), Talbott, Elizabeth (committee member), Smith, Everett (committee member), Cushing, Lisa (chair).
Subjects/Keywords: intellectual disability; math instruction; special education teacher; significant intellectual disability; severe disability; survey
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APA ·
Chicago ·
MLA ·
Vancouver ·
CSE |
Export
to Zotero / EndNote / Reference
Manager
APA (6th Edition):
Pearson, J. (2018). Special Educators’ Math Instruction for High School Students with Significant Intellectual Disabilities. (Thesis). University of Illinois – Chicago. Retrieved from http://hdl.handle.net/10027/22725
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation
Chicago Manual of Style (16th Edition):
Pearson, Jennifer. “Special Educators’ Math Instruction for High School Students with Significant Intellectual Disabilities.” 2018. Thesis, University of Illinois – Chicago. Accessed February 27, 2021.
http://hdl.handle.net/10027/22725.
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation
MLA Handbook (7th Edition):
Pearson, Jennifer. “Special Educators’ Math Instruction for High School Students with Significant Intellectual Disabilities.” 2018. Web. 27 Feb 2021.
Vancouver:
Pearson J. Special Educators’ Math Instruction for High School Students with Significant Intellectual Disabilities. [Internet] [Thesis]. University of Illinois – Chicago; 2018. [cited 2021 Feb 27].
Available from: http://hdl.handle.net/10027/22725.
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation
Council of Science Editors:
Pearson J. Special Educators’ Math Instruction for High School Students with Significant Intellectual Disabilities. [Thesis]. University of Illinois – Chicago; 2018. Available from: http://hdl.handle.net/10027/22725
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation

University of Illinois – Chicago
28.
Caldwell, Katherine E.
By the Bootstraps: Social Entrepreneurs with Intellectual Disabilities and the Reification of Success.
Degree: 2014, University of Illinois – Chicago
URL: http://hdl.handle.net/10027/18927
► Social entrepreneurship is a growing trend for people with intellectual disabilities (ID). This reflects a shift in contemporary policy towards entrepreneurship and self-employment as viable…
(more)
▼ Social entrepreneurship is a growing trend for people with
intellectual disabilities (ID).
This reflects a shift in contemporary policy towards entrepreneurship and self-employment as viable employment option for people with disabilities in general; a strategy which is intended to promote autonomy and reduce dependence on entitlement-based services as well as to reduce employment disparities and stimulate business and job creation. However, it is not well understood what exactly this means for people with ID involved in social entrepreneurial ventures. This dissertation research approached the issue by conducting dyadic interviews to explore how people with ID are participating and supported in social entrepreneurship. This dyadic approach involved conducting in-depth interviews with people with ID participating in social entrepreneurship, and also the person that they identified as being most instrumental in providing support. In exploring the experiences of social entrepreneurs with ID, interviews were structured around three foci of entrepreneurial research – motivation: why they act, management: how they act, and outcomes: what happens when they act. By drawing on Critical
Disability Studies literature to interpret social entrepreneurship within a socio-political context, this research expands upon our understanding of “success” in social entrepreneurship in a way that not only contributes to
disability theory and entrepreneurship theory, but also broadens our understanding of outcomes in employment for people with ID. Moreover, insight into how social entrepreneurship is being applied for this group can be used to influence social policy.
Advisors/Committee Members: Parker Harris, Sarah (advisor), Heller, Tamar (committee member), Fujiura, Glenn T. (committee member), Jones, Robin (committee member), Renko, Maija (committee member).
Subjects/Keywords: disability studies; intellectual disability; entrepreneurship; social entrepreneurship; citizenship; employment; disability employment
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❌
APA ·
Chicago ·
MLA ·
Vancouver ·
CSE |
Export
to Zotero / EndNote / Reference
Manager
APA (6th Edition):
Caldwell, K. E. (2014). By the Bootstraps: Social Entrepreneurs with Intellectual Disabilities and the Reification of Success. (Thesis). University of Illinois – Chicago. Retrieved from http://hdl.handle.net/10027/18927
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation
Chicago Manual of Style (16th Edition):
Caldwell, Katherine E. “By the Bootstraps: Social Entrepreneurs with Intellectual Disabilities and the Reification of Success.” 2014. Thesis, University of Illinois – Chicago. Accessed February 27, 2021.
http://hdl.handle.net/10027/18927.
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation
MLA Handbook (7th Edition):
Caldwell, Katherine E. “By the Bootstraps: Social Entrepreneurs with Intellectual Disabilities and the Reification of Success.” 2014. Web. 27 Feb 2021.
Vancouver:
Caldwell KE. By the Bootstraps: Social Entrepreneurs with Intellectual Disabilities and the Reification of Success. [Internet] [Thesis]. University of Illinois – Chicago; 2014. [cited 2021 Feb 27].
Available from: http://hdl.handle.net/10027/18927.
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation
Council of Science Editors:
Caldwell KE. By the Bootstraps: Social Entrepreneurs with Intellectual Disabilities and the Reification of Success. [Thesis]. University of Illinois – Chicago; 2014. Available from: http://hdl.handle.net/10027/18927
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation

Universiteit Utrecht
29.
Klomp, Y.D.
Visie op seksualiteit van jongeren met een licht verstandelijke beperking en hun begeleiders.
Degree: 2012, Universiteit Utrecht
URL: http://dspace.library.uu.nl:8080/handle/1874/254521
► Background: Young people with mild intellectual disabilities (MID) seem to have negative feelings about sexuality and a low level of sexual knowledge and experience. Their…
(more)
▼ Background: Young people with mild
intellectual disabilities (MID) seem to have negative feelings about sexuality and a low level of sexual knowledge and experience. Their vision is influenced by that of their caregivers. Their caregivers are often negative about sexuality in young people with MID.
Aim: Gain more knowledge about the vision towards sexuality of youngsters with MID and compare it with the vision high school students. Furthermore, to gain more insight into the vision of professional caregivers about sexuality and relationships of youngsters with MID and behavioral problems who are treated in a residential facility.
Methods: 27 youngsters with MID living in a residential institution and 138 high school students were included. For measuring the vision about sexuality, the Attitude, Behaviour, Experience and Knowledge questionnaire was used. 62 professional caregivers of youngsters with MID filled out the Sexuality and Mentally Retarded Attitude Inventory.
Results: Youngsters with MID are moderately positive about sexuality. They have a neutral vision towards masturbation, watching porn, going to a prostitute and homosexuality. Girls are more negative than boys regarding heterosexual activities such as kissing, hugging and having sex. The vision of Youngsters with MID is more negative towards homosexual than about heterosexual acts. The outcomes of Youngsters with MID were compared with high school students. The high school students were slightly more positive about impersonal things (masturbation, watching pornography and going to a prostitute). The professional caregivers of the youngsters with MID have a moderately liberal vision towards sexuality by youngsters with MID. Their vision is not related with their educational level or age.
Conclusion: Youngsters with MID have a moderately positive vision about sexuality. Youngsters with MID are slightly negative about homosexuality, but similar findings were found by high school students. The high school students were slightly more negative about impersonal things. The vision of the professional caregivers is overall positive.
Advisors/Committee Members: Douma, J., Florisson, D..
Subjects/Keywords: Sociale Wetenschappen; intellectual disability, sexuality, attitude
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❌
APA ·
Chicago ·
MLA ·
Vancouver ·
CSE |
Export
to Zotero / EndNote / Reference
Manager
APA (6th Edition):
Klomp, Y. D. (2012). Visie op seksualiteit van jongeren met een licht verstandelijke beperking en hun begeleiders. (Masters Thesis). Universiteit Utrecht. Retrieved from http://dspace.library.uu.nl:8080/handle/1874/254521
Chicago Manual of Style (16th Edition):
Klomp, Y D. “Visie op seksualiteit van jongeren met een licht verstandelijke beperking en hun begeleiders.” 2012. Masters Thesis, Universiteit Utrecht. Accessed February 27, 2021.
http://dspace.library.uu.nl:8080/handle/1874/254521.
MLA Handbook (7th Edition):
Klomp, Y D. “Visie op seksualiteit van jongeren met een licht verstandelijke beperking en hun begeleiders.” 2012. Web. 27 Feb 2021.
Vancouver:
Klomp YD. Visie op seksualiteit van jongeren met een licht verstandelijke beperking en hun begeleiders. [Internet] [Masters thesis]. Universiteit Utrecht; 2012. [cited 2021 Feb 27].
Available from: http://dspace.library.uu.nl:8080/handle/1874/254521.
Council of Science Editors:
Klomp YD. Visie op seksualiteit van jongeren met een licht verstandelijke beperking en hun begeleiders. [Masters Thesis]. Universiteit Utrecht; 2012. Available from: http://dspace.library.uu.nl:8080/handle/1874/254521

Universiteit Utrecht
30.
Bulsink, J.W.
Zorgen voor een client met een verstandelijke beperking in de laatste fase van zijn leven.
Degree: 2011, Universiteit Utrecht
URL: http://dspace.library.uu.nl:8080/handle/1874/207361
► Background - It is known that direct-care professionals of palliative care to people with intellectual disabilities experience problems. Unknown is how caregivers experience palliative care…
(more)
▼ Background - It is known that direct-care professionals of palliative care to people with
intellectual disabilities experience problems. Unknown is how caregivers experience palliative care and what this care means to them. It is unclear what affects this experience. Also unknown is how caregivers handle problems they experience.
Aim - To describe the experience from the perspective of the caregiver when caring for a person with
intellectual disabilities in palliative care and what influences this. The results will contribute to improve education and support for direct caregivers and consequently improving palliative care of people with
intellectual disabilities.
Qualitative research was performed through fifteen interviews with caregivers in a living facility with 24/7 care. Grounded Theory method was used in data collection and data analyzing.
Results – Caregivers caring for a client experience mostly wanting to be meaningful to the client in the last period of his life. To make sure they act correctly, they seek reassurance, by continuously observation and interpreting his signals.
The special atmosphere on the ward contributes to a positive experience. Because the relation with the client is necessary to recognize the clients’ signals, the caregiver is emotional involved with the client.
Conclusion - Caregivers experience an intensive time being insecure about their care giving as well as a special time because they can be of significance to the dying client. Extra staff is necessary to take good care of a client and to say goodbye. Communication and support from physician and manager can help direct-caregivers. Education is needed about background of choices that can be made. More knowledge is needed of the relation between emotional involvement and professionalism.
Advisors/Committee Members: Georges, J.J..
Subjects/Keywords: DYING; INTELLECTUAL DISABILITY; PALLIATIVE CARE; CAREGIVERS; EXPERIENCES
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APA ·
Chicago ·
MLA ·
Vancouver ·
CSE |
Export
to Zotero / EndNote / Reference
Manager
APA (6th Edition):
Bulsink, J. W. (2011). Zorgen voor een client met een verstandelijke beperking in de laatste fase van zijn leven. (Masters Thesis). Universiteit Utrecht. Retrieved from http://dspace.library.uu.nl:8080/handle/1874/207361
Chicago Manual of Style (16th Edition):
Bulsink, J W. “Zorgen voor een client met een verstandelijke beperking in de laatste fase van zijn leven.” 2011. Masters Thesis, Universiteit Utrecht. Accessed February 27, 2021.
http://dspace.library.uu.nl:8080/handle/1874/207361.
MLA Handbook (7th Edition):
Bulsink, J W. “Zorgen voor een client met een verstandelijke beperking in de laatste fase van zijn leven.” 2011. Web. 27 Feb 2021.
Vancouver:
Bulsink JW. Zorgen voor een client met een verstandelijke beperking in de laatste fase van zijn leven. [Internet] [Masters thesis]. Universiteit Utrecht; 2011. [cited 2021 Feb 27].
Available from: http://dspace.library.uu.nl:8080/handle/1874/207361.
Council of Science Editors:
Bulsink JW. Zorgen voor een client met een verstandelijke beperking in de laatste fase van zijn leven. [Masters Thesis]. Universiteit Utrecht; 2011. Available from: http://dspace.library.uu.nl:8080/handle/1874/207361
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