You searched for subject:(advance care planning)
.
Showing records 1 – 30 of
92 total matches.
◁ [1] [2] [3] [4] ▶

California State University – Sacramento
1.
Sanchez, Amy.
Social work and medical student professionals' perspectives on advance care planning.
Degree: MSW, Social Work, 2012, California State University – Sacramento
URL: http://hdl.handle.net/10211.9/1668
► This study examined social work and medical students??? perspectives on beliefs and attitudes on Advance Care Planning (ACP) by writing a self-reflection describing the ACP…
(more)
▼ This study examined social work and medical students??? perspectives on beliefs and attitudes on
Advance Care Planning (ACP) by writing a self-reflection describing the ACP experience. The study sample for this research included eleven third-year Master???s of Social Work students at California State University, Sacramento, and seven medical students from UC Davis, Sacramento School of Medicine (SOM). The study findings indicate that cultural values related to the ACP process was important for
Advance Directives execution. The significant findings indicate that fear of death was a barrier to ACP particularly in the social work students, and only half of medical students identified fear of death as a factor in ACP. Concurrent with the literature review, cultural values and the attitudes and beliefs seem to impact the presence around ACP. The key recommendations of the researcher is to implement an elective course in palliative
care in the Master???s program in social work to strengthen the social work professionals??? competencies around preparing their clients toward an effective ACP process, and for medical professionals to make timely referrals.
Advisors/Committee Members: Antonyappan, Jude M..
Subjects/Keywords: Advance directives; Advance care planning
Record Details
Similar Records
Cite
Share »
Record Details
Similar Records
Cite
« Share





❌
APA ·
Chicago ·
MLA ·
Vancouver ·
CSE |
Export
to Zotero / EndNote / Reference
Manager
APA (6th Edition):
Sanchez, A. (2012). Social work and medical student professionals' perspectives on advance care planning. (Masters Thesis). California State University – Sacramento. Retrieved from http://hdl.handle.net/10211.9/1668
Chicago Manual of Style (16th Edition):
Sanchez, Amy. “Social work and medical student professionals' perspectives on advance care planning.” 2012. Masters Thesis, California State University – Sacramento. Accessed March 03, 2021.
http://hdl.handle.net/10211.9/1668.
MLA Handbook (7th Edition):
Sanchez, Amy. “Social work and medical student professionals' perspectives on advance care planning.” 2012. Web. 03 Mar 2021.
Vancouver:
Sanchez A. Social work and medical student professionals' perspectives on advance care planning. [Internet] [Masters thesis]. California State University – Sacramento; 2012. [cited 2021 Mar 03].
Available from: http://hdl.handle.net/10211.9/1668.
Council of Science Editors:
Sanchez A. Social work and medical student professionals' perspectives on advance care planning. [Masters Thesis]. California State University – Sacramento; 2012. Available from: http://hdl.handle.net/10211.9/1668

Wake Forest University
2.
Whicker, Courtney Alexandra.
Got Plans? A Regional Partnership for Advance Care Planning in North Carolina.
Degree: 2014, Wake Forest University
URL: http://hdl.handle.net/10339/39399
► In the years 2011, 2012, and 2013, I was met with the loss of several important people in my life. The loss of my loved…
(more)
▼ In the years 2011, 2012, and 2013, I was met with the loss of several important people in my life. The loss of my loved ones made me reflect about death and dying multiple times. More specifically, I reflected on how our society and local communities approach conversations about the end of life. I became increasingly concerned about the discomfort associated with death. Due to this, I became very interested in recognizing our mortality and using advance care planning to achieve a "good death" if possible.
Subjects/Keywords: Advance care planning
Record Details
Similar Records
Cite
Share »
Record Details
Similar Records
Cite
« Share





❌
APA ·
Chicago ·
MLA ·
Vancouver ·
CSE |
Export
to Zotero / EndNote / Reference
Manager
APA (6th Edition):
Whicker, C. A. (2014). Got Plans? A Regional Partnership for Advance Care Planning in North Carolina. (Thesis). Wake Forest University. Retrieved from http://hdl.handle.net/10339/39399
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation
Chicago Manual of Style (16th Edition):
Whicker, Courtney Alexandra. “Got Plans? A Regional Partnership for Advance Care Planning in North Carolina.” 2014. Thesis, Wake Forest University. Accessed March 03, 2021.
http://hdl.handle.net/10339/39399.
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation
MLA Handbook (7th Edition):
Whicker, Courtney Alexandra. “Got Plans? A Regional Partnership for Advance Care Planning in North Carolina.” 2014. Web. 03 Mar 2021.
Vancouver:
Whicker CA. Got Plans? A Regional Partnership for Advance Care Planning in North Carolina. [Internet] [Thesis]. Wake Forest University; 2014. [cited 2021 Mar 03].
Available from: http://hdl.handle.net/10339/39399.
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation
Council of Science Editors:
Whicker CA. Got Plans? A Regional Partnership for Advance Care Planning in North Carolina. [Thesis]. Wake Forest University; 2014. Available from: http://hdl.handle.net/10339/39399
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation

McMaster University
3.
Wickson-Griffiths, Abigail.
THE PALLIATIVE AND THERAPEUTIC HARMONIZATION (PATH) PROGRAM IN THE LONG TERM CARE HOME SETTING.
Degree: PhD, 2014, McMaster University
URL: http://hdl.handle.net/11375/16357
► The Palliative and Therapeutic Harmonization (PATH) program was designed to help frail older adults and their family members prepare for and make medical decisions, in…
(more)
▼ The Palliative and Therapeutic Harmonization (PATH) program was designed to help frail older adults and their family members prepare for and make medical decisions, in the context of frailty and dementia. This sandwich thesis includes three manuscripts that present the findings from a mixed methods study exploring the implementation and outcomes of the PATH program, in three long-term care (LTC) home settings. The purpose of the first sub study was to describe both the perceived need for the PATH program, and initial reactions following its training and implementation. Quantitative surveys and qualitative interviews with bereaved family members showed that prior to implementation, they were mostly satisfied with their relatives’ end-of-life care. Through qualitative interviews, clinical leaders shared a positive impression of the training and PATH principles. They also explained how the PATH program could help them improve palliative and end-of-life care planning and communication with residents and families. In the second sub study, qualitative interviews were conducted with family members to learn about their experiences with and perceived outcomes from the PATH program. All family members had a positive experience. They shared perceived outcomes such as, opportunities to share and learn about their relative’s health status and trajectory, creating a mutual understanding of directions for care, and receiving support and reassurance for health care decision making. Finally, the purpose of the third sub study was to describe both the perceived outcomes of the staff who implemented the PATH program, and differences in documenting residents’ advance care plans and discussions. Staff described both personal and practice related outcomes. In addition, documentation around advance care planning changed with the program’s implementation. Overall, the PATH program offered frail older adults, their family members and their professional caregivers an opportunity to communicate about and prepare to make decisions for palliative and end-of-life care.
Dissertation
Doctor of Philosophy (PhD)
Advisors/Committee Members: Kaasalainen, Sharon, Nursing.
Subjects/Keywords: advance care planning; long-term care home
Record Details
Similar Records
Cite
Share »
Record Details
Similar Records
Cite
« Share





❌
APA ·
Chicago ·
MLA ·
Vancouver ·
CSE |
Export
to Zotero / EndNote / Reference
Manager
APA (6th Edition):
Wickson-Griffiths, A. (2014). THE PALLIATIVE AND THERAPEUTIC HARMONIZATION (PATH) PROGRAM IN THE LONG TERM CARE HOME SETTING. (Doctoral Dissertation). McMaster University. Retrieved from http://hdl.handle.net/11375/16357
Chicago Manual of Style (16th Edition):
Wickson-Griffiths, Abigail. “THE PALLIATIVE AND THERAPEUTIC HARMONIZATION (PATH) PROGRAM IN THE LONG TERM CARE HOME SETTING.” 2014. Doctoral Dissertation, McMaster University. Accessed March 03, 2021.
http://hdl.handle.net/11375/16357.
MLA Handbook (7th Edition):
Wickson-Griffiths, Abigail. “THE PALLIATIVE AND THERAPEUTIC HARMONIZATION (PATH) PROGRAM IN THE LONG TERM CARE HOME SETTING.” 2014. Web. 03 Mar 2021.
Vancouver:
Wickson-Griffiths A. THE PALLIATIVE AND THERAPEUTIC HARMONIZATION (PATH) PROGRAM IN THE LONG TERM CARE HOME SETTING. [Internet] [Doctoral dissertation]. McMaster University; 2014. [cited 2021 Mar 03].
Available from: http://hdl.handle.net/11375/16357.
Council of Science Editors:
Wickson-Griffiths A. THE PALLIATIVE AND THERAPEUTIC HARMONIZATION (PATH) PROGRAM IN THE LONG TERM CARE HOME SETTING. [Doctoral Dissertation]. McMaster University; 2014. Available from: http://hdl.handle.net/11375/16357

University of Arizona
4.
Jones, Theresa Danzalan.
Discovering the Barriers to Addressing Advance Care Planning in the Primary Care Setting
.
Degree: 2017, University of Arizona
URL: http://hdl.handle.net/10150/626350
► Advance care planning (ACP) is a process of discussing the patient’s wishes and preferences for future health care. ACP allows for the patient to retain…
(more)
▼ Advance care planning (ACP) is a process of discussing the patient’s wishes and preferences for future health
care. ACP allows for the patient to retain their autonomy and involves informing the patient about their illness, prognosis, and their health
care options. Despite the known advantages of completion of ACP forms, ACP discussions are minimal during primary
care visits. The purpose of this DNP project was to identify primary
care providers (PCP) beliefs and attitudes regarding barriers to addressing ACP with patients with a chronic illness in the primary
care setting at one family practice clinic in Tucson, Arizona, and to determine if providing educational information will increase the PCPs intent to address ACP within clinical practice. A pre-survey, educational handout, and post-survey containing Likert-type scale questions and one ranking format question was created and sent via email to potential participants within the family practice clinic. The pre-survey requested demographic characteristics, and both the pre and post surveys assessed the PCPs beliefs and attitudes towards barriers to addressing ACP. 42 potential PCPs were asked to participate in the online surveys, eight (19%) completed the pre-survey, and four (9.5%) completed the post-survey. The data obtain from the surveys indicate lack of time, discomfort with the
subject, and communication barriers as the most frequently reported perceived barriers to addressing ACP in the primary
care setting. The results from this project can be used to understand PCPs beliefs and attitudes towards addressing ACP in the primary
care setting and how this can affect future
care of the patient when a serious illness occurs.
Advisors/Committee Members: Prettyman, Allen (advisor), Gregg, Shawnte R (advisor), Prettyman, Allen (committeemember), Gregg, Shawnte R. (committeemember), Baldwin, Carolina (committeemember).
Subjects/Keywords: Advance Care Planning;
Barriers;
Primary care
Record Details
Similar Records
Cite
Share »
Record Details
Similar Records
Cite
« Share





❌
APA ·
Chicago ·
MLA ·
Vancouver ·
CSE |
Export
to Zotero / EndNote / Reference
Manager
APA (6th Edition):
Jones, T. D. (2017). Discovering the Barriers to Addressing Advance Care Planning in the Primary Care Setting
. (Doctoral Dissertation). University of Arizona. Retrieved from http://hdl.handle.net/10150/626350
Chicago Manual of Style (16th Edition):
Jones, Theresa Danzalan. “Discovering the Barriers to Addressing Advance Care Planning in the Primary Care Setting
.” 2017. Doctoral Dissertation, University of Arizona. Accessed March 03, 2021.
http://hdl.handle.net/10150/626350.
MLA Handbook (7th Edition):
Jones, Theresa Danzalan. “Discovering the Barriers to Addressing Advance Care Planning in the Primary Care Setting
.” 2017. Web. 03 Mar 2021.
Vancouver:
Jones TD. Discovering the Barriers to Addressing Advance Care Planning in the Primary Care Setting
. [Internet] [Doctoral dissertation]. University of Arizona; 2017. [cited 2021 Mar 03].
Available from: http://hdl.handle.net/10150/626350.
Council of Science Editors:
Jones TD. Discovering the Barriers to Addressing Advance Care Planning in the Primary Care Setting
. [Doctoral Dissertation]. University of Arizona; 2017. Available from: http://hdl.handle.net/10150/626350

Rhode Island College
5.
Dellava, Cherish.
Nurse Practitioner Perspectives on the Barriers and Facilitators of Advance Care Planning.
Degree: MSN, 2017, Rhode Island College
URL: https://digitalcommons.ric.edu/etd/185
► Every year, thousands of residents in the United States die while receiving end of life (EOL) care that is inconsistent with their wishes. Research…
(more)
▼ Every year, thousands of residents in the United States die while receiving end of life (EOL) care that is inconsistent with their wishes. Research evidence has shown that advance care planning (ACP) improves congruity between patients’ preference and actual care received at EOL. Despite medical guidelines supporting ACP, these discussions rarely occur. The purpose of this study was to explore the perspectives of nurse practitioners (NPs) on the barriers and facilitators of ACP. The web-based ACP survey was distributed to the members of the New Hampshire Nurse Practitioner Association (NHNPA). The participants (n = 65) were mostly women (96.9%), had a Master’s degree (83.1%), and had 16 to 25 years of practice as NPs (37.5%). Results indicated that the most common barriers to ACP were related to time including type of appointment, lack of time, and length of appointment. The most common facilitators were personal experience, comfort with the topic, long-term relationship with the patient, and previous education and training. Implications for advance nursing practice include conducting research on the patients’ perspective on ACP, and development of evidence-based tools and methods to facilitate ACP discussions. Improving education and training of healthcare providers on ACP and EOL care issues, increasing advocacy for payment and scheduling systems that facilitate ACP, supporting policies that require ACP to patients with chronic, progressive or terminal conditions, and improving public awareness of ACP are recommended.
Subjects/Keywords:
Record Details
Similar Records
Cite
Share »
Record Details
Similar Records
Cite
« Share





❌
APA ·
Chicago ·
MLA ·
Vancouver ·
CSE |
Export
to Zotero / EndNote / Reference
Manager
APA (6th Edition):
Dellava, C. (2017). Nurse Practitioner Perspectives on the Barriers and Facilitators of Advance Care Planning. (Masters Thesis). Rhode Island College. Retrieved from https://digitalcommons.ric.edu/etd/185
Chicago Manual of Style (16th Edition):
Dellava, Cherish. “Nurse Practitioner Perspectives on the Barriers and Facilitators of Advance Care Planning.” 2017. Masters Thesis, Rhode Island College. Accessed March 03, 2021.
https://digitalcommons.ric.edu/etd/185.
MLA Handbook (7th Edition):
Dellava, Cherish. “Nurse Practitioner Perspectives on the Barriers and Facilitators of Advance Care Planning.” 2017. Web. 03 Mar 2021.
Vancouver:
Dellava C. Nurse Practitioner Perspectives on the Barriers and Facilitators of Advance Care Planning. [Internet] [Masters thesis]. Rhode Island College; 2017. [cited 2021 Mar 03].
Available from: https://digitalcommons.ric.edu/etd/185.
Council of Science Editors:
Dellava C. Nurse Practitioner Perspectives on the Barriers and Facilitators of Advance Care Planning. [Masters Thesis]. Rhode Island College; 2017. Available from: https://digitalcommons.ric.edu/etd/185

University of Kansas
6.
Jozwick, Christopher Steven.
Creating a Protocol to Increase Advance Care Planning Conversations with Heart Failure Patients in an Outpatient Clinic.
Degree: D.N.P., Nursing, 2019, University of Kansas
URL: http://hdl.handle.net/1808/29523
► Problem: Heart failure is a chronic, progressive disease with a high symptom burden and mortality rate. Many patients in this population do not understand the…
(more)
▼ Problem: Heart failure is a chronic, progressive disease with a high symptom burden and mortality rate. Many patients in this population do not understand the disease trajectory, nor do many cardiologists have
advance care planning (ACP) conversations with their patients. This combination increases the probability that patients and families will experience aggressive
care with unnecessary pain at the end of their lives. ACP conversations can decrease the distress of both families and patients with chronic diseases; however, only 5-15% of physicians have these discussions with their patients. There are various tools available in the literature to assist providers in engaging in ACP conversations, but there is a lack of protocol that addresses comprehensive aspects of ACP conversations at outpatient heart failure clinics. Project Aim: The aim of this quality improvement project was to chronicle the development and evaluation of an evidenced-based protocol to improve ACP processes in a heart failure clinic. This comprehensive protocol incorporated various tools and resources regarding ACP. Project Method: This quality improvement project was conducted using a literature search, gathering, analyzing and synthesizing the data and producing a protocol for ACP in an outpatient heart failure clinic. The protocol was reviewed and evaluated by cardiology experts in the field using the modified AGREE II tool. Results: Two cardiology providers with expertise in heart failure reviewed the protocol and responded with quantitative data from the modified AGREE II tool and qualitative data including implementation feasibility, protocol usefulness, and suggested protocol improvements. There were five domains in the modified AGREE II tool, with a score of 70% required to be considered high quality. Domain scores ranged from 79%-92%. Both experts stated the protocol would be useful but did identify barriers including administrative barriers, length of appointment times, and need for additional staff. Conclusion: A protocol for increasing ACP conversations in an outpatient heart failure clinic is feasible and would be useful to both patients and staff, however known barriers would need to be overcome to facilitate implementation.
Advisors/Committee Members: Buller, Carol (advisor), Shen, Qiuhua (advisor).
Subjects/Keywords: Nursing; Health care management; Public health education; Advance Care Planning; Advance Care Planning Conversations; Advance Directives; Heart Failure; Protocol
Record Details
Similar Records
Cite
Share »
Record Details
Similar Records
Cite
« Share





❌
APA ·
Chicago ·
MLA ·
Vancouver ·
CSE |
Export
to Zotero / EndNote / Reference
Manager
APA (6th Edition):
Jozwick, C. S. (2019). Creating a Protocol to Increase Advance Care Planning Conversations with Heart Failure Patients in an Outpatient Clinic. (Doctoral Dissertation). University of Kansas. Retrieved from http://hdl.handle.net/1808/29523
Chicago Manual of Style (16th Edition):
Jozwick, Christopher Steven. “Creating a Protocol to Increase Advance Care Planning Conversations with Heart Failure Patients in an Outpatient Clinic.” 2019. Doctoral Dissertation, University of Kansas. Accessed March 03, 2021.
http://hdl.handle.net/1808/29523.
MLA Handbook (7th Edition):
Jozwick, Christopher Steven. “Creating a Protocol to Increase Advance Care Planning Conversations with Heart Failure Patients in an Outpatient Clinic.” 2019. Web. 03 Mar 2021.
Vancouver:
Jozwick CS. Creating a Protocol to Increase Advance Care Planning Conversations with Heart Failure Patients in an Outpatient Clinic. [Internet] [Doctoral dissertation]. University of Kansas; 2019. [cited 2021 Mar 03].
Available from: http://hdl.handle.net/1808/29523.
Council of Science Editors:
Jozwick CS. Creating a Protocol to Increase Advance Care Planning Conversations with Heart Failure Patients in an Outpatient Clinic. [Doctoral Dissertation]. University of Kansas; 2019. Available from: http://hdl.handle.net/1808/29523

Boise State University
7.
Fernández, Alexandra A.
College Students’ Understanding of Advance Care Planning Concepts: The Impact of the Willoop™ Mobile Application on Readiness to Change.
Degree: 2016, Boise State University
URL: https://scholarworks.boisestate.edu/td/1149
► While advance care planning (ACP) is generally acknowledged as an important health activity, there is little research on ACP engagement amongst otherwise healthy young adults.…
(more)
▼ While advance care planning (ACP) is generally acknowledged as an important health activity, there is little research on ACP engagement amongst otherwise healthy young adults. The current study aimed to determine whether using a new mobile application designed for ACP, called Willoop™, had any impact on Boise State University students’ perceptions of ACP concepts and readiness to engage in ACP activities including designating a health agent, creating a living will, and discussing care wishes with a loved one. A convenience sample of 99 students enrolled into the study and were invited to test Willoop™ on their mobile device and subsequently take an anonymous online survey. Twenty-one participants completed the survey. The findings suggest that young adults are aware of ACP concepts but are not typically ready to engage in ACP activities, consistent with previous literature. In addition, Willoop™ may improve familiarity and comfort with ACP concepts and may increase readiness to engage in ACP activities. The conclusions drawn from these findings must be interpreted with caution due to the small sample size and other study limitations, but further research is warranted. Accurately describing the readiness and willingness to engage in ACP activities is a first step in informing and improving interventions, such as Willoop™, that aim to increase levels of ACP engagement in the population as a whole.
Subjects/Keywords: advance care planning; app; Public Health
Record Details
Similar Records
Cite
Share »
Record Details
Similar Records
Cite
« Share





❌
APA ·
Chicago ·
MLA ·
Vancouver ·
CSE |
Export
to Zotero / EndNote / Reference
Manager
APA (6th Edition):
Fernández, A. A. (2016). College Students’ Understanding of Advance Care Planning Concepts: The Impact of the Willoop™ Mobile Application on Readiness to Change. (Thesis). Boise State University. Retrieved from https://scholarworks.boisestate.edu/td/1149
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation
Chicago Manual of Style (16th Edition):
Fernández, Alexandra A. “College Students’ Understanding of Advance Care Planning Concepts: The Impact of the Willoop™ Mobile Application on Readiness to Change.” 2016. Thesis, Boise State University. Accessed March 03, 2021.
https://scholarworks.boisestate.edu/td/1149.
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation
MLA Handbook (7th Edition):
Fernández, Alexandra A. “College Students’ Understanding of Advance Care Planning Concepts: The Impact of the Willoop™ Mobile Application on Readiness to Change.” 2016. Web. 03 Mar 2021.
Vancouver:
Fernández AA. College Students’ Understanding of Advance Care Planning Concepts: The Impact of the Willoop™ Mobile Application on Readiness to Change. [Internet] [Thesis]. Boise State University; 2016. [cited 2021 Mar 03].
Available from: https://scholarworks.boisestate.edu/td/1149.
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation
Council of Science Editors:
Fernández AA. College Students’ Understanding of Advance Care Planning Concepts: The Impact of the Willoop™ Mobile Application on Readiness to Change. [Thesis]. Boise State University; 2016. Available from: https://scholarworks.boisestate.edu/td/1149
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation
8.
Russell, Sarah.
Advance care planning and living with dying : the views of hospice patients.
Degree: Thesis (D.H.Res.), 2017, University of Hertfordshire
URL: http://hdl.handle.net/2299/17474
► Advance care planning for adults is a process of consideration, discussion and decisions about care at the end of life. There is evidence that advance…
(more)
▼ Advance care planning for adults is a process of consideration, discussion and decisions about care at the end of life. There is evidence that advance care planning improves outcomes such as the achievement of preferred place of death and the quality of dying. However, the uptake of advance care planning is variable. There are calls for more research to understand what influences people to carry it out to plan services and improve the quality of life of patients and their families. This dissertation reports on a qualitative, video interview study of 15 adult hospice patients. The study was interpretative influenced by the narrative approach with data driven thematic analysis and a video aide memoir. Coding was carried out using the Computer Assisted Qualitative Data Software programme Transana. The rigour and credibility of the study was viewed through the lens of trustworthiness which included the development of a Continuous Conversation Framework. The aim of the study was to investigate what would influence hospice patients to discuss their advance care planning to develop future education programmes based upon the perspectives of people at the end of their life: 1. What influences hospice patients in their advance care planning? 2. What communication skills do hospice patients find helpful when clinicians discuss advance care planning? Three findings are reported. These suggest that the influences on advance care planning activity and conversations is the less reported relationship of the personal context of a person's life (as well as services, diagnosis and prognosis considerations). First, the findings highlight the relevance of how people with an incurable illness live with and talk about their dying within the individual context of their daily lives. Secondly, differences are illustrated between how people prepare (for themselves) and plan (for others) in their dying. Thirdly, clinician communication behaviours such as empathy (through mutual connection and visible behaviours), tailored conversations (through accessible and selective honesty) and the design and use of space empower people to carry out conversations which support them as they live with, prepare and plan for dying. The three findings contribute to the perspective which supports the complexity of advance care planning that should focus on the context of person's life as well as the paperwork, prognosis or diagnosis. A contribution to person-centred care is suggested through a model of relational advance care planning.
Subjects/Keywords: 362.17; advance care planning; hospice; communication skills
Record Details
Similar Records
Cite
Share »
Record Details
Similar Records
Cite
« Share





❌
APA ·
Chicago ·
MLA ·
Vancouver ·
CSE |
Export
to Zotero / EndNote / Reference
Manager
APA (6th Edition):
Russell, S. (2017). Advance care planning and living with dying : the views of hospice patients. (Doctoral Dissertation). University of Hertfordshire. Retrieved from http://hdl.handle.net/2299/17474
Chicago Manual of Style (16th Edition):
Russell, Sarah. “Advance care planning and living with dying : the views of hospice patients.” 2017. Doctoral Dissertation, University of Hertfordshire. Accessed March 03, 2021.
http://hdl.handle.net/2299/17474.
MLA Handbook (7th Edition):
Russell, Sarah. “Advance care planning and living with dying : the views of hospice patients.” 2017. Web. 03 Mar 2021.
Vancouver:
Russell S. Advance care planning and living with dying : the views of hospice patients. [Internet] [Doctoral dissertation]. University of Hertfordshire; 2017. [cited 2021 Mar 03].
Available from: http://hdl.handle.net/2299/17474.
Council of Science Editors:
Russell S. Advance care planning and living with dying : the views of hospice patients. [Doctoral Dissertation]. University of Hertfordshire; 2017. Available from: http://hdl.handle.net/2299/17474

University of Arizona
9.
Mrozinski, Yuiho.
Community Engagement to Improve Advance Care Planning Knowledge with Healthy Adults
.
Degree: 2020, University of Arizona
URL: http://hdl.handle.net/10150/650839
► Purpose. This quality improvement (QI) project aimed to improve advance care planning (ACP) knowledge and comfort level in end-of-life (EOL) discussions of healthy adults through…
(more)
▼ Purpose. This quality improvement (QI) project aimed to improve
advance care planning (ACP) knowledge and comfort level in end-of-life (EOL) discussions of healthy adults through an online community engagement session teaching ACP education and playing an EOL conversation game Hello.Background. ACP is highly underutilized, with only 25% of Americans having an
advance directive (Weathers et al., 2016). ACP helps people receive
care consistent with their values and preferences, which improves quality of EOL
care (Weathers et al., 2016). It also reduces healthcare costs by the decreasing utilization of futile healthcare services and burdensome transitions of
care (Institute of Medicine [IOM], 2015; Kelley & Bollens-Lund, 2018; Smith et al., 2012). Barriers to ACP include lack of awareness and the belief that it only applies to older, sicker individuals. The coronavirus 2019 (COVID-19) pandemic, however, gave reason for people of all health-states and ages to voice their healthcare priorities in the case of a life-threatening illness. This provided an opportunistic time to normalize ACP, especially for people living near the first COVID-19 outbreak.
Methods. Participants were ages 18 to 45, lived within 45 minutes of Bothell, WA, and were self-identified as healthy. Flyers were posted at local businesses and on social media, and disclosure forms and the invitation to an online Zoom meeting were sent to those who volunteered. Pre and posttest surveys via SoGoSurvey were sent to assess baseline and post-engagement session knowledge and comfort level regarding ACP and EOL conversations and assess the stage of change from the transtheoretical model in regards to ACP behavior. Data analysis occurred on Excel.
Results. The project was implemented over a 60-minute Zoom meeting. Data analysis showed an increase in ACP knowledge and comfort level discussing EOL, and a forward shift in the stage of change. Seminar evaluation revealed that participants viewed the seminar as worthwhile.
Conclusions. Effective dissemination of ACP information and exposure to EOL conversations targeted towards healthy, community-dwelling adults can be successfully accomplished through an online engagement session for the community of Bothell, Washington. Future studies should include participants from a wider variety of locations and results from multiple online sessions.
Advisors/Committee Members: Martin-Plank, Lorraine M (advisor), Davis, Mary P. (committeemember), Elliott, Cynthia M. (committeemember).
Subjects/Keywords: Advance care planning;
Advance directives;
Conversation game;
End of life
Record Details
Similar Records
Cite
Share »
Record Details
Similar Records
Cite
« Share





❌
APA ·
Chicago ·
MLA ·
Vancouver ·
CSE |
Export
to Zotero / EndNote / Reference
Manager
APA (6th Edition):
Mrozinski, Y. (2020). Community Engagement to Improve Advance Care Planning Knowledge with Healthy Adults
. (Doctoral Dissertation). University of Arizona. Retrieved from http://hdl.handle.net/10150/650839
Chicago Manual of Style (16th Edition):
Mrozinski, Yuiho. “Community Engagement to Improve Advance Care Planning Knowledge with Healthy Adults
.” 2020. Doctoral Dissertation, University of Arizona. Accessed March 03, 2021.
http://hdl.handle.net/10150/650839.
MLA Handbook (7th Edition):
Mrozinski, Yuiho. “Community Engagement to Improve Advance Care Planning Knowledge with Healthy Adults
.” 2020. Web. 03 Mar 2021.
Vancouver:
Mrozinski Y. Community Engagement to Improve Advance Care Planning Knowledge with Healthy Adults
. [Internet] [Doctoral dissertation]. University of Arizona; 2020. [cited 2021 Mar 03].
Available from: http://hdl.handle.net/10150/650839.
Council of Science Editors:
Mrozinski Y. Community Engagement to Improve Advance Care Planning Knowledge with Healthy Adults
. [Doctoral Dissertation]. University of Arizona; 2020. Available from: http://hdl.handle.net/10150/650839

University of Utah
10.
Brohard, Cheryl Lynne.
The feasability and efficacy of an autobiographical memory intervention on advance care planning with people with terminal cancer.
Degree: PhD, Nursing (College of), 2012, University of Utah
URL: http://content.lib.utah.edu/cdm/singleitem/collection/etd3/id/2045/rec/2523
► More than 1,500 people die of cancer each day. The majority of people, including thosein hospice care, die without a living will, without designating a…
(more)
▼ More than 1,500 people die of cancer each day. The majority of people, including thosein hospice care, die without a living will, without designating a surrogate decision maker, andwithout communicating their health-care wishes. To date, education has been the sole focus offacilitating the completion of advance care plans.The purpose of this exploratory, quasi-experimental study was to test the feasibility andefficacy of a novel autobiographical memory (ABM) intervention to promote advance careplanning (ACP) with older persons with terminally ill cancer in hospice care. Using a two-phasestudy design, data were collected from two independent groups. Data were collected on the ACPoutcomes from a control group in Phase 1. Phase 2 introduced the ABM intervention to theexperimental group and collected data on ACP outcomes and the ABM intervention.The findings showed the study was feasible with no attrition by screening with a reliableprognostic tool, accessing data from the electronic medical record, and designing processes andprocedures to minimize the challenges and barriers of end-of-life research. Using Mann-WhitneyU test, the experimental group, which had received the ABM intervention, had a higherstatistically significant likelihood of communicating about the decision for antibiotics (U (48) =211.00, Z = -2.83, p = 0.005) compared to the control group. There was a meaningful trendtoward significance with five other variables: decision making about a feeding tube (U (48) =231.00, Z = -1.86, p = 0.063), IV therapy (U (48) = 203.00, Z = -2.28, p = 0.023), andcommunicating about the decision for a feeding tube (U (48) = 234.50, Z = -2.37, p = 0.018),blood (U (48) = 250.00, Z = -1.68, p = 0.094), and an Out of Hospital Do Not Resuscitate form (U(48) = 262.50, Z = -2.06, p = 0.039).ivIn conclusion, utilizing an ABM intervention may be effective in influencing the decisionmaking and communication of ACP for terminally ill participants with cancer. Further researchstudies are needed with the ABM intervention and with the ACP Survey, including reliabilitystudies.
Subjects/Keywords: advance care planning; advance directives; autobiographical memory; hospice; palliative care; terminal cancer
Record Details
Similar Records
Cite
Share »
Record Details
Similar Records
Cite
« Share





❌
APA ·
Chicago ·
MLA ·
Vancouver ·
CSE |
Export
to Zotero / EndNote / Reference
Manager
APA (6th Edition):
Brohard, C. L. (2012). The feasability and efficacy of an autobiographical memory intervention on advance care planning with people with terminal cancer. (Doctoral Dissertation). University of Utah. Retrieved from http://content.lib.utah.edu/cdm/singleitem/collection/etd3/id/2045/rec/2523
Chicago Manual of Style (16th Edition):
Brohard, Cheryl Lynne. “The feasability and efficacy of an autobiographical memory intervention on advance care planning with people with terminal cancer.” 2012. Doctoral Dissertation, University of Utah. Accessed March 03, 2021.
http://content.lib.utah.edu/cdm/singleitem/collection/etd3/id/2045/rec/2523.
MLA Handbook (7th Edition):
Brohard, Cheryl Lynne. “The feasability and efficacy of an autobiographical memory intervention on advance care planning with people with terminal cancer.” 2012. Web. 03 Mar 2021.
Vancouver:
Brohard CL. The feasability and efficacy of an autobiographical memory intervention on advance care planning with people with terminal cancer. [Internet] [Doctoral dissertation]. University of Utah; 2012. [cited 2021 Mar 03].
Available from: http://content.lib.utah.edu/cdm/singleitem/collection/etd3/id/2045/rec/2523.
Council of Science Editors:
Brohard CL. The feasability and efficacy of an autobiographical memory intervention on advance care planning with people with terminal cancer. [Doctoral Dissertation]. University of Utah; 2012. Available from: http://content.lib.utah.edu/cdm/singleitem/collection/etd3/id/2045/rec/2523

University of Arizona
11.
Clouser, Heidi.
Arizona Community Health Center Providers Practices, Knowledge and Attitudes Related to Advance Care Planning
.
Degree: 2017, University of Arizona
URL: http://hdl.handle.net/10150/622986
► Background: Numerous studies demonstrate benefits of using advance care planning (ACP) in the general practice setting. Despite this, providers do not regularly initiate ACP and…
(more)
▼ Background: Numerous studies demonstrate benefits of using
advance care planning (ACP) in the general practice setting. Despite this, providers do not regularly initiate ACP and only one third of Americans have completed an
advance directive (AD). This number is even lower among ethnic and minority groups. Community health center (CHC) providers have the opportunity to improve the quality of end-of-life (EOL)
care and reduce healthcare disparities affecting medically underserved populations, yet no research has been conducted to identify CHC providers' practices, knowledge and attitudes towards ACP. Addressing this query may assist researchers in identifying optimal strategies for improving ACP delivery in this setting, ultimately leading to improved quality of EOL
care for the populations served. Purpose: The study purpose was to assess Arizona CHC providers' practices, knowledge and attitudes towards ACP. Setting: The study setting was federally qualified community health centers located in urban and rural sites throughout Arizona. Participants: Study participants (N = 38) were predominantly middle-aged females practicing for an average of 13 years. 60% of providers were Master's or Doctor of Nursing Practice (DNP) prepared providers while 40% were Doctor of Medicine (MD) or Doctor of Osteopathy (MD). Methods: This study used a descriptive correlational quantitative research design. The "EOL Decision Making Survey" instrument was adapted into an electronic survey and distributed to 514 physician and non-physician CHC providers. Data analysis was performed using PASS and SPSS statistical software. Results: This sample of Arizona CHC providers was reasonably knowledgeable about Arizona state law and clinical application of ACP. Physician providers had greater knowledge and greater confidence in their answers related to Arizona state law compared to non-physician providers. Participants were largely comfortable with counseling patients in ACP and exhibited mostly positive attitudes toward ACP. Older respondents with greater years' experience tended to have greater knowledge of the clinical application of ACP as well as greater positive attitudes towards ACP. Providers with greater years' experience tended to have greater comfort in counseling patients in ACP. Despite these positive findings, routine initiation of ACP in this setting was low (44%). Conclusions: Though Arizona CHC providers have reasonable knowledge related to ACP, are comfortable with counseling patients in ACP and have positive attitudes towards ACP, less than half routinely initiate ACP conversations with their patients. Though more research is needed to validate these findings, targeted educational interventions and process changes may help improve ACP delivery rates in this setting.
Advisors/Committee Members: Reel, Sally J (advisor), Reel, Sally J. (committeemember), Pacheco, Christy L. (committeemember), Wiley, Luz (committeemember).
Subjects/Keywords: Advance Directives;
Attitudes;
Community Health Centers;
Practices;
Primary Care Providers;
Advance Care Planning
Record Details
Similar Records
Cite
Share »
Record Details
Similar Records
Cite
« Share





❌
APA ·
Chicago ·
MLA ·
Vancouver ·
CSE |
Export
to Zotero / EndNote / Reference
Manager
APA (6th Edition):
Clouser, H. (2017). Arizona Community Health Center Providers Practices, Knowledge and Attitudes Related to Advance Care Planning
. (Doctoral Dissertation). University of Arizona. Retrieved from http://hdl.handle.net/10150/622986
Chicago Manual of Style (16th Edition):
Clouser, Heidi. “Arizona Community Health Center Providers Practices, Knowledge and Attitudes Related to Advance Care Planning
.” 2017. Doctoral Dissertation, University of Arizona. Accessed March 03, 2021.
http://hdl.handle.net/10150/622986.
MLA Handbook (7th Edition):
Clouser, Heidi. “Arizona Community Health Center Providers Practices, Knowledge and Attitudes Related to Advance Care Planning
.” 2017. Web. 03 Mar 2021.
Vancouver:
Clouser H. Arizona Community Health Center Providers Practices, Knowledge and Attitudes Related to Advance Care Planning
. [Internet] [Doctoral dissertation]. University of Arizona; 2017. [cited 2021 Mar 03].
Available from: http://hdl.handle.net/10150/622986.
Council of Science Editors:
Clouser H. Arizona Community Health Center Providers Practices, Knowledge and Attitudes Related to Advance Care Planning
. [Doctoral Dissertation]. University of Arizona; 2017. Available from: http://hdl.handle.net/10150/622986

University of Kansas
12.
Koss, Catheryn Sophia.
Advance Care Planning in the Marital Context: Dyadic Analyses of Advance Directive Completion by Older Married Adults.
Degree: PhD, Gerontology, 2016, University of Kansas
URL: http://hdl.handle.net/1808/24200
► Advance directive completion is associated with higher quality care at the end of life and increased odds of receiving hospice care and of dying at…
(more)
▼ Advance directive completion is associated with higher quality
care at the end of life and increased odds of receiving hospice
care and of dying at home. Researchers seeking to understand why some older adults complete
advance directives while others do not tend to treat the decision as an individual choice. This individualistic approach fails to account for the interdependent nature of many health decisions made by married persons. I developed a relational model of end-of-life
planning adapted from the transtheoretical model of behavioral change (TTM) to more accurately represent
advance directive completion by married older adults To evaluate this relational model, I investigated
advance directive completion by older married adults as a dyadic process through two interrelated studies. First, with quantitative couple data from the Health and Retirement Study, I examined the relationships between husbands’ and wives’
advance directive completion and each spouse’s age, education, health status, prior hospitalization or outpatient surgery, and regular health
care provider using the Actor-Partner Interdependence Model. These variables have been found to be associated with higher odds of
advance directive completion in previous studies, but this is the first study to test whether these predictors also exert spousal effects. I found that personal and spousal age and education were positively associated with
advance directive completion. Those whose spouses were in poorer health were less likely to have
advance directives. Men’s hospitalization or outpatient surgery, but not women’s, was related to an increased probability of having an
advance directive for both themselves and their spouses. Women who had a regular source of health
care were more likely to have
advance directives, but whether a man had a regular health
care provider did not affect the likelihood of
advance directive completion for either spouse. Taken as a whole, these findings support the proposition underlying the relational model that
advance directive completion is associated with both personal and spousal attributes and encounters with health
care providers. Second, I interviewed eight married adults (four couples) who had engaged in end-of-life
planning including completing
advance directives. Through these interviews, I was able to assess whether participants’ accounts of the events leading up to their end-of-life
planning corresponded to the decisional stages described in the proposed relational model. I also observed to what extent they presented their motivations and decisions as independent of or interdependent with their spouses’
planning.
Advance directive completion was just one part of a broader end-of-life
planning process. Participants’ described a gradual process of growing awareness of and interest in end-of-life
planning, obstacles that had to be overcome, and triggering events that prompted concrete steps toward completion of
advance directives. Many of the factors influencing participants’ progress up to and through end-of-life…
Advisors/Committee Members: Ekerdt, David J (advisor), LaPierre, Tracey A (cmtemember), Baker, Tamara A (cmtemember), Watts Hall, Amber (cmtemember), Saint Onge, Jarron M (cmtemember).
Subjects/Keywords: Gerontology; Aging; Medical ethics; advance care planning; advance directive; end-of-life; marriage
Record Details
Similar Records
Cite
Share »
Record Details
Similar Records
Cite
« Share





❌
APA ·
Chicago ·
MLA ·
Vancouver ·
CSE |
Export
to Zotero / EndNote / Reference
Manager
APA (6th Edition):
Koss, C. S. (2016). Advance Care Planning in the Marital Context: Dyadic Analyses of Advance Directive Completion by Older Married Adults. (Doctoral Dissertation). University of Kansas. Retrieved from http://hdl.handle.net/1808/24200
Chicago Manual of Style (16th Edition):
Koss, Catheryn Sophia. “Advance Care Planning in the Marital Context: Dyadic Analyses of Advance Directive Completion by Older Married Adults.” 2016. Doctoral Dissertation, University of Kansas. Accessed March 03, 2021.
http://hdl.handle.net/1808/24200.
MLA Handbook (7th Edition):
Koss, Catheryn Sophia. “Advance Care Planning in the Marital Context: Dyadic Analyses of Advance Directive Completion by Older Married Adults.” 2016. Web. 03 Mar 2021.
Vancouver:
Koss CS. Advance Care Planning in the Marital Context: Dyadic Analyses of Advance Directive Completion by Older Married Adults. [Internet] [Doctoral dissertation]. University of Kansas; 2016. [cited 2021 Mar 03].
Available from: http://hdl.handle.net/1808/24200.
Council of Science Editors:
Koss CS. Advance Care Planning in the Marital Context: Dyadic Analyses of Advance Directive Completion by Older Married Adults. [Doctoral Dissertation]. University of Kansas; 2016. Available from: http://hdl.handle.net/1808/24200

University of Melbourne
13.
Knight, Kerstin Astrid.
The inconsistent philosophy of advance care planning.
Degree: 2016, University of Melbourne
URL: http://hdl.handle.net/11343/122071
► This thesis examines the cross-disciplinary interpretational variety of the three philosophical concepts central to advance care planning (ACP): autonomy, beneficence and personal identity. Through exposing…
(more)
▼ This thesis examines the cross-disciplinary interpretational variety of the three philosophical concepts central to advance care planning (ACP): autonomy, beneficence and personal identity. Through exposing incongruities in the philosophical framework of ACP I offer an alternative explanation of why ACP must fail to live up to the high expectations it commonly raises, especially about respecting autonomy. I argue that such failure results from the pursuit of paradox goals and that this is only resolvable through abandoning some of ACP's ambitions.
Subjects/Keywords: advance care planning; autonomy; ethics; health care; best interest; narrative identity
Record Details
Similar Records
Cite
Share »
Record Details
Similar Records
Cite
« Share





❌
APA ·
Chicago ·
MLA ·
Vancouver ·
CSE |
Export
to Zotero / EndNote / Reference
Manager
APA (6th Edition):
Knight, K. A. (2016). The inconsistent philosophy of advance care planning. (Doctoral Dissertation). University of Melbourne. Retrieved from http://hdl.handle.net/11343/122071
Chicago Manual of Style (16th Edition):
Knight, Kerstin Astrid. “The inconsistent philosophy of advance care planning.” 2016. Doctoral Dissertation, University of Melbourne. Accessed March 03, 2021.
http://hdl.handle.net/11343/122071.
MLA Handbook (7th Edition):
Knight, Kerstin Astrid. “The inconsistent philosophy of advance care planning.” 2016. Web. 03 Mar 2021.
Vancouver:
Knight KA. The inconsistent philosophy of advance care planning. [Internet] [Doctoral dissertation]. University of Melbourne; 2016. [cited 2021 Mar 03].
Available from: http://hdl.handle.net/11343/122071.
Council of Science Editors:
Knight KA. The inconsistent philosophy of advance care planning. [Doctoral Dissertation]. University of Melbourne; 2016. Available from: http://hdl.handle.net/11343/122071

University of New South Wales
14.
Rhee, Joel.
Advance Care Planning in the Australian Primary Care Context.
Degree: Centre for Primary Health Care & Equity, 2014, University of New South Wales
URL: http://handle.unsw.edu.au/1959.4/53469
;
https://unsworks.unsw.edu.au/fapi/datastream/unsworks:12164/SOURCE02?view=true
► In addition to its role in improving patient autonomy, Advance Care Planning (ACP) is increasingly being recognised as an important component of quality end-of-life care.…
(more)
▼ In addition to its role in improving patient autonomy,
Advance Care Planning (ACP) is increasingly being recognised as an important component of quality end-of-life
care. However, the literature suggests a number of problems with ACP, including the low uptake and lack of impact that
Advance Care Plans currently have on future patient
care. Moreover, ACP has not been incorporated into primary
care in Australia despite its recognition as an ideal setting for ACP.This thesis therefore aimed to explore: the current state of ACP and how it is conceptualised in Australia; the perspectives of Australian general practitioners (GPs) on how end-of-life
care decisions are made; and Australian GPs’ perspectives on the influence that various contextual factors have on the facilitation and implementation of ACP. The study was guided by Qualitative Description and Grounded Theory methodologies. Study data was collected from interviews with the representatives of key stakeholder organisations, policymakers, expert clinicians and GPs.The findings showed that ACP is conceptualised as having both autonomy-centric and non-autonomy-centric functions and aims. The low uptake and the lack of impact of
Advance Care Plans on patient
care were identified as major problems affecting ACP in Australia. Recommended strategies to address this involved increasing the general awareness of ACP and implementing a system-wide program of ACP that: (i) shifts the focus away fromdocumentation to a process of communication about patient’s wishes; (ii) improves the response of health professionals to
Advance Care Plans; and (iii) improves the facilitation, documentation and accessibility of
Advance Care Plans. The findings also highlighted the importance of individualising the process of ACP – particularly the role of formal documentation, and the flexibility in the implementation of the
Advance Care Plan – to suit the unique needs and context of each patient. A range of contextual factors that should be taken into account when individualising ACP were identified. In summary, this thesis provides important evidence to inform the development of an individualised, patient-centred approach to ACP that is suitable for a successful implementation in the Australian primary
care setting.
Advisors/Committee Members: Zwar, Nicholas, Public Health & Community Medicine, Faculty of Medicine, UNSW, Kemp, Lynn, Centre for Primary Health Care & Equity, Faculty of Medicine, UNSW.
Subjects/Keywords: End-of-life decision-making; Advance Care Planning; Primary Care
Record Details
Similar Records
Cite
Share »
Record Details
Similar Records
Cite
« Share





❌
APA ·
Chicago ·
MLA ·
Vancouver ·
CSE |
Export
to Zotero / EndNote / Reference
Manager
APA (6th Edition):
Rhee, J. (2014). Advance Care Planning in the Australian Primary Care Context. (Doctoral Dissertation). University of New South Wales. Retrieved from http://handle.unsw.edu.au/1959.4/53469 ; https://unsworks.unsw.edu.au/fapi/datastream/unsworks:12164/SOURCE02?view=true
Chicago Manual of Style (16th Edition):
Rhee, Joel. “Advance Care Planning in the Australian Primary Care Context.” 2014. Doctoral Dissertation, University of New South Wales. Accessed March 03, 2021.
http://handle.unsw.edu.au/1959.4/53469 ; https://unsworks.unsw.edu.au/fapi/datastream/unsworks:12164/SOURCE02?view=true.
MLA Handbook (7th Edition):
Rhee, Joel. “Advance Care Planning in the Australian Primary Care Context.” 2014. Web. 03 Mar 2021.
Vancouver:
Rhee J. Advance Care Planning in the Australian Primary Care Context. [Internet] [Doctoral dissertation]. University of New South Wales; 2014. [cited 2021 Mar 03].
Available from: http://handle.unsw.edu.au/1959.4/53469 ; https://unsworks.unsw.edu.au/fapi/datastream/unsworks:12164/SOURCE02?view=true.
Council of Science Editors:
Rhee J. Advance Care Planning in the Australian Primary Care Context. [Doctoral Dissertation]. University of New South Wales; 2014. Available from: http://handle.unsw.edu.au/1959.4/53469 ; https://unsworks.unsw.edu.au/fapi/datastream/unsworks:12164/SOURCE02?view=true

Cornell University
15.
Chen, Emily.
Understanding Academic Research Priorities And Indivdual Choices About Palliative Care And Advance Care Planning.
Degree: PhD, Human Development and Family Studies, 2014, Cornell University
URL: http://hdl.handle.net/1813/38802
► This dissertation compiles three papers that focus on challenges in research on and practice of palliative care. The first chapter reports on a survey of…
(more)
▼ This dissertation compiles three papers that focus on challenges in research on and practice of palliative
care. The first chapter reports on a survey of 61 leading academic researchers in palliative
care, who were asked their opinions on research priorities and barriers to better research in the field. Qualitative methods were used to extract the seven leading research recommendations and four barriers to better research generated by the purposively interdisciplinary group. The next two chapters use the Wisconsin Longitudinal Study to test hypotheses about the correlates and triggers of
advance care planning (ACP) in older adults, cross-sectionally and, for non-planners, at a follow-up seven years later. The results presented in Chapter 2 identify several dimensions of health that are associated with formal and informal ACP cross-sectionally. Over time, changes in health have little affect on the likelihood of a non-planner completing ACP by Time 2, seven years later. In Chapter 3, I applied theory of social diffusion to ACP, hypothesizing that the
planning status of a spouse or sibling would increase a non-planner's likelihood of doing
planning by Time 2. The cross-sectional analysis found strong associations between spouse only and spouse and sibling status on formal and informal ACP of the focal individual, respectively. Over time, however, having a spouse or sibling with formal (but not informal) ACP affected the focal individual's likelihood of going on to do
planning, but having both a spouse and sibling with formal ACP at Time 1 had an attenuating effect on the focal individual's likelihood of
planning. In the final chapter I draw connections between the three research activities and suggest directions for future research. Most pressing is the need for evaluation of existing education programs to support older adults as they complete ACP and the development of novel programs targeting individuals who are least likely to engage in ACP. The growing body of academic research on factors that facilitate ACP should be translated into more effective supports for conversations about end-of-life health
care.
Advisors/Committee Members: Pillemer, Karl Andrew (chair), Pillemer, Karl Andrew (chair), Eckenrode, John Joseph (committee member), Eckenrode, John Joseph (committee member), Reid, Manney C (committee member).
Subjects/Keywords: palliative care; advance care planning; end of life
Record Details
Similar Records
Cite
Share »
Record Details
Similar Records
Cite
« Share





❌
APA ·
Chicago ·
MLA ·
Vancouver ·
CSE |
Export
to Zotero / EndNote / Reference
Manager
APA (6th Edition):
Chen, E. (2014). Understanding Academic Research Priorities And Indivdual Choices About Palliative Care And Advance Care Planning. (Doctoral Dissertation). Cornell University. Retrieved from http://hdl.handle.net/1813/38802
Chicago Manual of Style (16th Edition):
Chen, Emily. “Understanding Academic Research Priorities And Indivdual Choices About Palliative Care And Advance Care Planning.” 2014. Doctoral Dissertation, Cornell University. Accessed March 03, 2021.
http://hdl.handle.net/1813/38802.
MLA Handbook (7th Edition):
Chen, Emily. “Understanding Academic Research Priorities And Indivdual Choices About Palliative Care And Advance Care Planning.” 2014. Web. 03 Mar 2021.
Vancouver:
Chen E. Understanding Academic Research Priorities And Indivdual Choices About Palliative Care And Advance Care Planning. [Internet] [Doctoral dissertation]. Cornell University; 2014. [cited 2021 Mar 03].
Available from: http://hdl.handle.net/1813/38802.
Council of Science Editors:
Chen E. Understanding Academic Research Priorities And Indivdual Choices About Palliative Care And Advance Care Planning. [Doctoral Dissertation]. Cornell University; 2014. Available from: http://hdl.handle.net/1813/38802

Harvard University
16.
Epstein, Samantha.
Innovative Training Program in Advance Care Planning.
Degree: Doctor of Medicine, 2016, Harvard University
URL: http://nrs.harvard.edu/urn-3:HUL.InstRepos:40620222
► Background: Advance care planning (ACP) is a key component in achieving high quality care for patients approaching the end of life. Clinician factors, such as…
(more)
▼ Background: Advance care planning (ACP) is a key component in achieving high quality care for patients approaching the end of life. Clinician factors, such as self-doubt and fear of taking away hope, are among the most significant barriers to carrying out successful ACP discussions in current clinical practice. These barriers may be related to inadequate training in end of life communication and care at all levels of medical education. These training deficits have been shown to exist even within the field of oncology, where the need for proper ACP is especially high. Here we describe a training program for oncology clinicians at the Dana-Farber Cancer Institute (DFCI), designed based on the methods known to be most effective in adult continuous professional development.
Methods: As part of the larger Serious Illness Care Project at DFCI, 52 oncology clinicians attended a 2.5 hour training session in ACP and communication skills led by 1-2 experienced palliative care educators. Training sessions were composed of three main parts: cognitive input (interactive lecture with review of current status of end-of-life care and a structured approach for carrying out ACP discussions); modeling (demonstration of an ACP discussion between faculty and standardized patient); and practice of key skills (observed role-play exercise between clinicians and standardized patient with feedback). Before and immediately after the session, all clinicians completed surveys regarding their attitudes towards ACP and their confidence in skills related to ACP/communication. Clinicians also completed an anonymous training evaluation form.
Results: The mean rating of the session was 4.38/5, accompanied by positive open text feedback. Clinicians felt the most effective aspects of the session were the demonstration and role-play exercise. There were no statistically significant changes in confidence or attitudes following the intervention based on self-rated surveys. On anonymous evaluation forms, 90.2% of clinicians reported that they felt the session enhanced their confidence in talking to patients and 92.2% felt it improved their skill in conduction discussions about end-of-life care. 98% of clinicians carried out at least one conversation within their clinical practice following the session.
Conclusions: Our results suggest that this model of training might be a means to promoting a needed change in ACP practices within the field of oncology, in a manner that is both time-effective and acceptable to clinicians.
Scholarly Project
Subjects/Keywords: Advance Care Planning; Palliative Care; Serious Illness Conversation
Record Details
Similar Records
Cite
Share »
Record Details
Similar Records
Cite
« Share





❌
APA ·
Chicago ·
MLA ·
Vancouver ·
CSE |
Export
to Zotero / EndNote / Reference
Manager
APA (6th Edition):
Epstein, S. (2016). Innovative Training Program in Advance Care Planning. (Doctoral Dissertation). Harvard University. Retrieved from http://nrs.harvard.edu/urn-3:HUL.InstRepos:40620222
Chicago Manual of Style (16th Edition):
Epstein, Samantha. “Innovative Training Program in Advance Care Planning.” 2016. Doctoral Dissertation, Harvard University. Accessed March 03, 2021.
http://nrs.harvard.edu/urn-3:HUL.InstRepos:40620222.
MLA Handbook (7th Edition):
Epstein, Samantha. “Innovative Training Program in Advance Care Planning.” 2016. Web. 03 Mar 2021.
Vancouver:
Epstein S. Innovative Training Program in Advance Care Planning. [Internet] [Doctoral dissertation]. Harvard University; 2016. [cited 2021 Mar 03].
Available from: http://nrs.harvard.edu/urn-3:HUL.InstRepos:40620222.
Council of Science Editors:
Epstein S. Innovative Training Program in Advance Care Planning. [Doctoral Dissertation]. Harvard University; 2016. Available from: http://nrs.harvard.edu/urn-3:HUL.InstRepos:40620222

University of Kansas
17.
Montgomery, Samantha Dawn.
The Effects of Education and Process Development with Providers on Advance Care Planning in the Rural Primary Care Clinic.
Degree: D.N.P., Nursing, 2019, University of Kansas
URL: http://hdl.handle.net/1808/29527
► Timely advance care planning (ACP) conversations, with a health care provider, can lead to better care and increased satisfaction for patient and family at the…
(more)
▼ Timely
advance care planning (ACP) conversations, with a health
care provider, can lead to better
care and increased satisfaction for patient and family at the end of life. One rural health clinic had no formal plan in place to implement ACP conversations until presentation of a health crisis; limited ACP during the Medicare wellness visit; and no use of the ACP Current Procedural Terminology (CPT) codes. The purpose of this quality improvement project was to implement a process to improve ACP for persons age 65 and older in a rural health clinic. The Iowa Model of Evidence Based Practice to Promote Quality of
Care was used to guide this project. All providers and frontline staff were surveyed about ACP to assess process barriers, comfort with initiating ACP, and learning needs. An education session on initiating ACP with patients age 65 and older during the initial or subsequent Medicare wellness exam and the use of new CPT billing codes for ACP occurred. After three months, the providers and frontline staff were surveyed about their comfort level with ACP and frequency of ACP CPT billing codes were determined. Survey results did not show an increased comfort level; however, the clinic implemented the use of the ACP packet and flow chart successfully, with 38% of the ACP packets being utilized. This resulted in two return visits for beginning ACP conversations. The implementation of the ACP packet and flow chart assisted to improve the process of ACP at one rural primary
care clinic.
Advisors/Committee Members: Buller, Carol (advisor), Nelson-Brantley, Heather (cmtemember).
Subjects/Keywords: Nursing; Aging; advance care planning; primary care; rural elderly population
Record Details
Similar Records
Cite
Share »
Record Details
Similar Records
Cite
« Share





❌
APA ·
Chicago ·
MLA ·
Vancouver ·
CSE |
Export
to Zotero / EndNote / Reference
Manager
APA (6th Edition):
Montgomery, S. D. (2019). The Effects of Education and Process Development with Providers on Advance Care Planning in the Rural Primary Care Clinic. (Doctoral Dissertation). University of Kansas. Retrieved from http://hdl.handle.net/1808/29527
Chicago Manual of Style (16th Edition):
Montgomery, Samantha Dawn. “The Effects of Education and Process Development with Providers on Advance Care Planning in the Rural Primary Care Clinic.” 2019. Doctoral Dissertation, University of Kansas. Accessed March 03, 2021.
http://hdl.handle.net/1808/29527.
MLA Handbook (7th Edition):
Montgomery, Samantha Dawn. “The Effects of Education and Process Development with Providers on Advance Care Planning in the Rural Primary Care Clinic.” 2019. Web. 03 Mar 2021.
Vancouver:
Montgomery SD. The Effects of Education and Process Development with Providers on Advance Care Planning in the Rural Primary Care Clinic. [Internet] [Doctoral dissertation]. University of Kansas; 2019. [cited 2021 Mar 03].
Available from: http://hdl.handle.net/1808/29527.
Council of Science Editors:
Montgomery SD. The Effects of Education and Process Development with Providers on Advance Care Planning in the Rural Primary Care Clinic. [Doctoral Dissertation]. University of Kansas; 2019. Available from: http://hdl.handle.net/1808/29527

Miami University
18.
Thoelke, Greg Richard.
Millennials Musing About Advance Care Planning.
Degree: Master of Gerontological Studies, Gerontology, 2018, Miami University
URL: http://rave.ohiolink.edu/etdc/view?acc_num=miami1533295054008494
► Advance care planning (ACP) is a process recommended for all adults to help understand and articulate their choices regarding future medical care. ACP is considered…
(more)
▼ Advance care planning (ACP) is a process recommended
for all adults to help understand and articulate their choices
regarding future medical
care. ACP is considered an integral
component of high quality end-of-life (EoL)
care, yet only 1 in 3
US adults completes ACP and little is known about ACP in
college-aged adults. The objectives of this study was to better
understand what a group of millennial college students (aged 18-25)
reflect upon after completing an ACP assignment and how students
interact with a commercially available ACP tool. Qualitative
content analysis was used to analyze 21 ACP tools and 27 student
reflections. Most students choose to complete sections of the ACP
tool related to choosing a health
care proxy (~76%), how they
wanted people to treat them (~66%) and their personal comfort
(~66%). Three themes: the reality of mortality, importance/value of
ACP, and concern for others were most prevalent after completing
the qualitative analysis process.
Advisors/Committee Members: de Medeiros, Kate (Committee Chair).
Subjects/Keywords: Gerontology; Millennials; Advance Care Planning; End of Life Planning; Young Adults
Record Details
Similar Records
Cite
Share »
Record Details
Similar Records
Cite
« Share





❌
APA ·
Chicago ·
MLA ·
Vancouver ·
CSE |
Export
to Zotero / EndNote / Reference
Manager
APA (6th Edition):
Thoelke, G. R. (2018). Millennials Musing About Advance Care Planning. (Masters Thesis). Miami University. Retrieved from http://rave.ohiolink.edu/etdc/view?acc_num=miami1533295054008494
Chicago Manual of Style (16th Edition):
Thoelke, Greg Richard. “Millennials Musing About Advance Care Planning.” 2018. Masters Thesis, Miami University. Accessed March 03, 2021.
http://rave.ohiolink.edu/etdc/view?acc_num=miami1533295054008494.
MLA Handbook (7th Edition):
Thoelke, Greg Richard. “Millennials Musing About Advance Care Planning.” 2018. Web. 03 Mar 2021.
Vancouver:
Thoelke GR. Millennials Musing About Advance Care Planning. [Internet] [Masters thesis]. Miami University; 2018. [cited 2021 Mar 03].
Available from: http://rave.ohiolink.edu/etdc/view?acc_num=miami1533295054008494.
Council of Science Editors:
Thoelke GR. Millennials Musing About Advance Care Planning. [Masters Thesis]. Miami University; 2018. Available from: http://rave.ohiolink.edu/etdc/view?acc_num=miami1533295054008494

Miami University
19.
Yauk, Jessica Ann.
Planning for Long-Term Care.
Degree: Master of Gerontological Studies, Gerontology, 2020, Miami University
URL: http://rave.ohiolink.edu/etdc/view?acc_num=miami1605102319925788
► Long-term care planning (LTCP) reduces older adults' risk of financial instability as they age. The risk of needing long-term care (LTC) increases with age, and…
(more)
▼ Long-term
care planning (LTCP) reduces older adults'
risk of financial instability as they age. The risk of needing
long-term
care (LTC) increases with age, and there is no universal
government program. The study assesses what factors are associated
with LTCP, focusing on the factors closely associated with LTC use
and sociodemographic variables. Using data from the 2016 wave of
the Health and Retirement Study, a series of logistic regression
models were fitted looking at LTCP. LTCP was a composite of two
variables:
planning via the purchase of LTC insurance or
planning
by living in a retirement community. The two variables were
combined, and a respondent who completed one, or both, types of
planning were considered LTC planners. Sociodemographic factors,
including age, gender, education level, relationship status, and
household size, were significantly associated with LTCP. A
participant's belief that a relative or friend would help with
future
care also increased the odds of LTCP. Those who were female
and had higher levels of education were more likely to plan.
Sociodemographic variables were found to play a more significant
role than health status and functional health, suggesting that
focusing on demographics will be more effective in understanding
who plans for LTC.
Advisors/Committee Members: Applebaum, Robert (Committee Chair).
Subjects/Keywords: Gerontology; long-term care; advance care planning; older adults; care planning; caregivers
Record Details
Similar Records
Cite
Share »
Record Details
Similar Records
Cite
« Share





❌
APA ·
Chicago ·
MLA ·
Vancouver ·
CSE |
Export
to Zotero / EndNote / Reference
Manager
APA (6th Edition):
Yauk, J. A. (2020). Planning for Long-Term Care. (Masters Thesis). Miami University. Retrieved from http://rave.ohiolink.edu/etdc/view?acc_num=miami1605102319925788
Chicago Manual of Style (16th Edition):
Yauk, Jessica Ann. “Planning for Long-Term Care.” 2020. Masters Thesis, Miami University. Accessed March 03, 2021.
http://rave.ohiolink.edu/etdc/view?acc_num=miami1605102319925788.
MLA Handbook (7th Edition):
Yauk, Jessica Ann. “Planning for Long-Term Care.” 2020. Web. 03 Mar 2021.
Vancouver:
Yauk JA. Planning for Long-Term Care. [Internet] [Masters thesis]. Miami University; 2020. [cited 2021 Mar 03].
Available from: http://rave.ohiolink.edu/etdc/view?acc_num=miami1605102319925788.
Council of Science Editors:
Yauk JA. Planning for Long-Term Care. [Masters Thesis]. Miami University; 2020. Available from: http://rave.ohiolink.edu/etdc/view?acc_num=miami1605102319925788
20.
Kirkpatrick, Haley.
Technology-Based End-of-Life Planning for an Underserved Population.
Degree: DNP, 2020, University of San Francisco
URL: https://repository.usfca.edu/dnp/204
► Problem: Research indicates a low-income status and ethnic and racial diversity is a barrier to ACP engagement. Context: This project took place at a…
(more)
▼ Problem: Research indicates a low-income status and ethnic and racial diversity is a barrier to ACP engagement.
Context: This project took place at a Federally Qualified Heath Center located in Northern California which serves approximately 200,000 diverse and economically disadvantaged patients.
Methods: The primary intervention was dissemination of an email to patients 50 and older, via their health system email account. The email included a direct link to PREPARE, an online
advance care planning technology tool. A secondary intervention was a presentation to primary
care providers that focused on end-of-life-
care planning tools and communication strategies.
Results: The email was distributed to 22,296 patients and received a total of 895 clicks on the link to PREPARE. Pre- and post-email data did not show a significant change in ACP engagement. The provider presentation pre-and post-survey results revealed an increase in mean scores for comfort with ACP discussions, best practices for ACP discussion, and communication resources.
Conclusions: Engaging patients in ACP is a persistent challenge for primary
care providers working with diverse groups within healthcare systems. As the U.S. geriatric population becomes larger and more diverse,
advance health
care planning needs to be prioritized in a culturally sensitive manner.
Advisors/Committee Members: Dr. Robin Buccheri, Dr. Timothy Godfrey.
Subjects/Keywords: end-of-life-care planning; diverse patients; underserved patients; advance directive; advance care planning; ACP interventions; Family Practice Nursing; Nursing
Record Details
Similar Records
Cite
Share »
Record Details
Similar Records
Cite
« Share





❌
APA ·
Chicago ·
MLA ·
Vancouver ·
CSE |
Export
to Zotero / EndNote / Reference
Manager
APA (6th Edition):
Kirkpatrick, H. (2020). Technology-Based End-of-Life Planning for an Underserved Population. (Thesis). University of San Francisco. Retrieved from https://repository.usfca.edu/dnp/204
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation
Chicago Manual of Style (16th Edition):
Kirkpatrick, Haley. “Technology-Based End-of-Life Planning for an Underserved Population.” 2020. Thesis, University of San Francisco. Accessed March 03, 2021.
https://repository.usfca.edu/dnp/204.
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation
MLA Handbook (7th Edition):
Kirkpatrick, Haley. “Technology-Based End-of-Life Planning for an Underserved Population.” 2020. Web. 03 Mar 2021.
Vancouver:
Kirkpatrick H. Technology-Based End-of-Life Planning for an Underserved Population. [Internet] [Thesis]. University of San Francisco; 2020. [cited 2021 Mar 03].
Available from: https://repository.usfca.edu/dnp/204.
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation
Council of Science Editors:
Kirkpatrick H. Technology-Based End-of-Life Planning for an Underserved Population. [Thesis]. University of San Francisco; 2020. Available from: https://repository.usfca.edu/dnp/204
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation

University College Cork
21.
McGlade, Ciara.
The effect of simultaneous implementation of an advance care planning program and a palliative care initiative on end of life care in long term care.
Degree: 2018, University College Cork
URL: http://hdl.handle.net/10468/8062
► Introduction: International research suggests care at the end of life in long term care is suboptimal, but quality improvement initiatives incorporating advance care planning have…
(more)
▼ Introduction: International research suggests
care at the end of life in long term
care is suboptimal, but quality improvement initiatives incorporating
advance care planning have shown promising results. Little is known about the
care given at this time of life, in this environment, in Ireland, where
advance care directives are not yet part of the Irish culture. The objectives of this thesis were to examine the effect of implementation of as
advance care planning program combined with a palliative
care educational initiative on end of life
care in the long term
care setting in Ireland. Methods: A study was carried out to examine healthcare professionals’ attitudes and knowledge of
advance care directive, end of life
care and decision making for older adults with diminished decision making capacity in Ireland, Canada and the United Kingdom. The baseline educational needs of Irish nursing home staff was explored and the data used to create a palliative
care educational initiative tailored to the needs of staff. An existing
advance care planning program (Let Me Decide) was modified for use in an Irish long term
care setting. The effect of systematically implementing both these programs simultaneously on end of life
care was examined through a before and after feasibility study. Results: Attitudes to and knowledge of
advance care directives was good amongst healthcare professionals in Ireland compared with the UK and Canada, but knowledge of the legal situation for medical decision making for a person with diminished capacity was lacking, as was knowledge of the successful outcome for cardiopulmonary resuscitation. End of life
care education was suboptimal but improved subsequent to the study program initiation. The challenges faced in
advance care planning and implementing an associated educational program found lack of time and staff pressures to be key factors. The program resulted in a substantial rise in the proportion of decedents with a plan for end of life
care and a marked shift in the timing of
care conversations from the last weeks and days of life, to a median time almost 6 months before death. The proportion of long term
care residents included in
care planning decisions improved from 5.5% to 27%. Bereaved relatives commended the end of life
care received by their loved ones, they rated the quality of their loved ones dying experience highly and highlights practices of good end of life
care that could be disseminated elsewhere. In addition the prescribing practices in the last 3 months of life were examined. Though there was evidence of deprescribing in over half of decedents this tended to only happen close to death, when anticipatory prescribing for end of life symptoms also took place, albeit to a greater extent in the after period of the study. The study findings were sustained when re-examined in 2017. Conclusions:
Advance care planning with residents (or their family) was not part of the culture of end of life
care in Ireland, and decisions on resuscitation or hospitalisation tended to occur with…
Advisors/Committee Members: Molloy, D. William, Timmons, Suzanne.
Subjects/Keywords: End of life care; Palliative care; Long term care; Advance care planning
Record Details
Similar Records
Cite
Share »
Record Details
Similar Records
Cite
« Share





❌
APA ·
Chicago ·
MLA ·
Vancouver ·
CSE |
Export
to Zotero / EndNote / Reference
Manager
APA (6th Edition):
McGlade, C. (2018). The effect of simultaneous implementation of an advance care planning program and a palliative care initiative on end of life care in long term care. (Thesis). University College Cork. Retrieved from http://hdl.handle.net/10468/8062
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation
Chicago Manual of Style (16th Edition):
McGlade, Ciara. “The effect of simultaneous implementation of an advance care planning program and a palliative care initiative on end of life care in long term care.” 2018. Thesis, University College Cork. Accessed March 03, 2021.
http://hdl.handle.net/10468/8062.
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation
MLA Handbook (7th Edition):
McGlade, Ciara. “The effect of simultaneous implementation of an advance care planning program and a palliative care initiative on end of life care in long term care.” 2018. Web. 03 Mar 2021.
Vancouver:
McGlade C. The effect of simultaneous implementation of an advance care planning program and a palliative care initiative on end of life care in long term care. [Internet] [Thesis]. University College Cork; 2018. [cited 2021 Mar 03].
Available from: http://hdl.handle.net/10468/8062.
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation
Council of Science Editors:
McGlade C. The effect of simultaneous implementation of an advance care planning program and a palliative care initiative on end of life care in long term care. [Thesis]. University College Cork; 2018. Available from: http://hdl.handle.net/10468/8062
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation

University of Newcastle
22.
Ries, Nola.
Advance planning for healthcare and research participation: law, ethics and practice.
Degree: PhD, 2019, University of Newcastle
URL: http://hdl.handle.net/1959.13/1405577
► Research Doctorate - Doctor of Philosophy (PhD)
This thesis focuses on advance planning for health-related matters, including medical care and participation in research. It brings…
(more)
▼ Research Doctorate - Doctor of Philosophy (PhD)
This thesis focuses on advance planning for health-related matters, including medical care and participation in research. It brings interdisciplinary attention to the legal and ethical frameworks that govern how people can plan for future incapacity and investigates how the rights to plan ahead are acted upon and supported in practice. Dementia is a particular focus of this thesis as it is a leading cause of cognitive impairment among older people, and advance planning for incapacity is considered part of good dementia care. Advance care planning (ACP) can improve healthcare experiences and end-of-life outcomes, while advance research planning can help to support the appropriate inclusion of people with cognitive impairment in research studies. Papers 1–3 focus on advance planning for medical care, with attention to the under-examined role of lawyers in assisting older clients with ACP. Paper 1 provides a literature review and considers how collaboration between health and legal professionals can strengthen ACP. Paper 2 presents a framework for action to build connections between these typically “siloed” professions. Paper 3 presents findings from a survey of legal practitioners on their practices and experiences in advising clients on ACP. Lawyers perceive this activity as part of their professional role, but report gaps in their knowledge of health system policies and procedures relevant to ACP. These findings support the need for collaborative ACP strategies that involve the legal and health sectors. Papers 4–7 focus on advance research planning and the inclusion of older people with cognitive impairment in research studies. The under-representation of people with dementia in research limits the evidence base to inform advances in treatment and care for this population. The principles and processes that undergird ACP can be applied to planning for involvement in research activities during future periods of incapacity, allowing greater representation of people with dementia in research. Paper 4 examines the Australian ethical and legal context for inclusion of people with dementia in research. Papers 5–7 report on the results of surveys exploring the attitudes of older adults and researchers toward research involving people with dementia. Paper 5 reveals positive attitudes among older adults to involvement in a wide range of research activities in the event of future incapacity, and to making an advance research directive to document their preferences for future research participation. Papers 6 and 7 report on a national survey of Australian dementia researchers, revealing persistent ethical, legal and practical barriers to involving people who lack decisional capacity in research, but positive views on the benefits of advance research planning as a strategy to support inclusion. The thesis includes studies completed in Australia and Canada, two countries with ageing populations and similar health and legal systems. The work advances knowledge to inform strategies…
Advisors/Committee Members: University of Newcastle. Faculty of Health & Medicine, School of Medicine and Public Health.
Subjects/Keywords: advance planning; healthcare; substitute decision-making; advance directives; survey; Australia; advance research directive; thesis by publication; law; ethics; advance care; end-of-life planning; future healthcare; research ethics; dementia; consent
Record Details
Similar Records
Cite
Share »
Record Details
Similar Records
Cite
« Share





❌
APA ·
Chicago ·
MLA ·
Vancouver ·
CSE |
Export
to Zotero / EndNote / Reference
Manager
APA (6th Edition):
Ries, N. (2019). Advance planning for healthcare and research participation: law, ethics and practice. (Doctoral Dissertation). University of Newcastle. Retrieved from http://hdl.handle.net/1959.13/1405577
Chicago Manual of Style (16th Edition):
Ries, Nola. “Advance planning for healthcare and research participation: law, ethics and practice.” 2019. Doctoral Dissertation, University of Newcastle. Accessed March 03, 2021.
http://hdl.handle.net/1959.13/1405577.
MLA Handbook (7th Edition):
Ries, Nola. “Advance planning for healthcare and research participation: law, ethics and practice.” 2019. Web. 03 Mar 2021.
Vancouver:
Ries N. Advance planning for healthcare and research participation: law, ethics and practice. [Internet] [Doctoral dissertation]. University of Newcastle; 2019. [cited 2021 Mar 03].
Available from: http://hdl.handle.net/1959.13/1405577.
Council of Science Editors:
Ries N. Advance planning for healthcare and research participation: law, ethics and practice. [Doctoral Dissertation]. University of Newcastle; 2019. Available from: http://hdl.handle.net/1959.13/1405577

Virginia Commonwealth University
23.
Klein, Mariette.
Dementia Caregivers: An Exploration of Their Knowledge, Beliefs, and Behavior Regarding Advance Care Planning For End-of-Life Care.
Degree: PhD, Social Work, 2014, Virginia Commonwealth University
URL: https://doi.org/10.25772/R9T5-V313
;
https://scholarscompass.vcu.edu/etd/3310
► The purpose of this study is to explore what knowledge dementia caregivers have about advance care planning (ACP), how they learn to execute formal advance…
(more)
▼ The purpose of this study is to explore what knowledge dementia caregivers have about
advance care planning (ACP), how they learn to execute formal
advance directives (ADs) or have engaged in an informal ACP process, and how they understand their roles as decision makers for the patients. Factors that contribute to the completion of an ACP process such as demographic, psychosocial, and situational factors are identified. From the grounded theory data analysis, a theory emerged about how ACP is accomplished and used by caregivers. Findings reveal that caregivers understand ACP as having the power to shape the dying process for dementia patients. It is not just about executing formal written ADs but how caregivers exercise that power. Caregivers’ knowledge and beliefs are reflected in their behavior regarding ACP in both how they do the ACP process and how they use ACP. For the caregivers in this study, the process of ACP occurs along a trajectory from: years before dementia to dementia diagnosis to end stage and death. At each of these stages, actions taken by the caregivers and their motivation are identified. Three key features of the ACP process in all three stages are examined: conversations within the family and with trusted others, gaining knowledge of ACP, and keeping ACP documents. How caregivers use ACP is based on how they define their roles as decision makers for their patients by: accepting responsibility for making difficult decisions regarding treatment for the patients, using ACP as an effective tool to shape the dying process for their patients, and doing battle with health
care professionals to honor patients’ wishes. This definition is shaped by the meaning caregivers give to ACP, how caregivers understand life sustaining measures, and caregivers’ knowledge of patients’ end-of-life wishes. This new theory, the Dementia Caregiver
Advance Care Planning Theory, adds new knowledge as the first model specific to dementia caregivers and adds dimension and depth to the current existing ACP models by detailing an ACP process, demonstrating the impact of conversations on the process, and identifying both the most important influences and the primary relationship in the decision making process.
Advisors/Committee Members: Sarah Kye Price.
Subjects/Keywords: dementia caregivers; advance care planning; end-of-life planning; advance directives; The Dementia Caregiver Advance Care Planning Theory; Social and Behavioral Sciences; Social Work
Record Details
Similar Records
Cite
Share »
Record Details
Similar Records
Cite
« Share





❌
APA ·
Chicago ·
MLA ·
Vancouver ·
CSE |
Export
to Zotero / EndNote / Reference
Manager
APA (6th Edition):
Klein, M. (2014). Dementia Caregivers: An Exploration of Their Knowledge, Beliefs, and Behavior Regarding Advance Care Planning For End-of-Life Care. (Doctoral Dissertation). Virginia Commonwealth University. Retrieved from https://doi.org/10.25772/R9T5-V313 ; https://scholarscompass.vcu.edu/etd/3310
Chicago Manual of Style (16th Edition):
Klein, Mariette. “Dementia Caregivers: An Exploration of Their Knowledge, Beliefs, and Behavior Regarding Advance Care Planning For End-of-Life Care.” 2014. Doctoral Dissertation, Virginia Commonwealth University. Accessed March 03, 2021.
https://doi.org/10.25772/R9T5-V313 ; https://scholarscompass.vcu.edu/etd/3310.
MLA Handbook (7th Edition):
Klein, Mariette. “Dementia Caregivers: An Exploration of Their Knowledge, Beliefs, and Behavior Regarding Advance Care Planning For End-of-Life Care.” 2014. Web. 03 Mar 2021.
Vancouver:
Klein M. Dementia Caregivers: An Exploration of Their Knowledge, Beliefs, and Behavior Regarding Advance Care Planning For End-of-Life Care. [Internet] [Doctoral dissertation]. Virginia Commonwealth University; 2014. [cited 2021 Mar 03].
Available from: https://doi.org/10.25772/R9T5-V313 ; https://scholarscompass.vcu.edu/etd/3310.
Council of Science Editors:
Klein M. Dementia Caregivers: An Exploration of Their Knowledge, Beliefs, and Behavior Regarding Advance Care Planning For End-of-Life Care. [Doctoral Dissertation]. Virginia Commonwealth University; 2014. Available from: https://doi.org/10.25772/R9T5-V313 ; https://scholarscompass.vcu.edu/etd/3310

Penn State University
24.
Stewart, Renee Ruth.
An Analysis of Recruitment for a Non-treatment Based Advance Care Planning Research Study in Terminal Cancer Patients
.
Degree: 2014, Penn State University
URL: https://submit-etda.libraries.psu.edu/catalog/23585
► This analysis examines the recruitment for a single-blind randomized controlled study, involving the sensitive topic of advance care planning, the vulnerable population of patients with…
(more)
▼ This analysis examines the recruitment for a single-blind randomized controlled study, involving the sensitive topic of
advance care planning, the vulnerable population of patients with terminal cancer, and a non-treatment based study intervention. The purpose of this examination was to identify key differences between the groups of patients that enrolled versus those who did not participate, in order to better understand recruitment for this type of study. Statistical analysis of the non-parametric distributions of data identified significant differences in age (p = 0.021), distance to study site (p = 0.010), race (p = 0.031), and number of follow-up phone calls (p < 0.001). Gender (p = 0.88), referring specialty (p = 0.076), and season of referral (p = 0.22) were not significantly different. Specifically, non-participants were slightly older, lived farther from the medical center, required more outreach phone calls, and were more likely to report feeling too ill or being uninterested as a reason to not participate. Some barriers to participation were outside of investigators control (i.e. patients who died before contact, were too ill, or unreachable) and represent an inherent inefficiency in recruiting terminally ill participants. The present findings suggest that recruitment efforts can be prioritized to patients who live closest to the study site and towards making initial contact with potential participants.
Advisors/Committee Members: Benjamin H Levi, Thesis Advisor/Co-Advisor, Michael Jay Green, Thesis Advisor/Co-Advisor, Jane Ruth Schubart, Thesis Advisor/Co-Advisor, Elana Farace, Thesis Advisor/Co-Advisor, Chengwu Yang, Thesis Advisor/Co-Advisor.
Subjects/Keywords: Recruitment; Advance Care Planning; End of Life; Cancer; non-treatment
Record Details
Similar Records
Cite
Share »
Record Details
Similar Records
Cite
« Share





❌
APA ·
Chicago ·
MLA ·
Vancouver ·
CSE |
Export
to Zotero / EndNote / Reference
Manager
APA (6th Edition):
Stewart, R. R. (2014). An Analysis of Recruitment for a Non-treatment Based Advance Care Planning Research Study in Terminal Cancer Patients
. (Thesis). Penn State University. Retrieved from https://submit-etda.libraries.psu.edu/catalog/23585
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation
Chicago Manual of Style (16th Edition):
Stewart, Renee Ruth. “An Analysis of Recruitment for a Non-treatment Based Advance Care Planning Research Study in Terminal Cancer Patients
.” 2014. Thesis, Penn State University. Accessed March 03, 2021.
https://submit-etda.libraries.psu.edu/catalog/23585.
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation
MLA Handbook (7th Edition):
Stewart, Renee Ruth. “An Analysis of Recruitment for a Non-treatment Based Advance Care Planning Research Study in Terminal Cancer Patients
.” 2014. Web. 03 Mar 2021.
Vancouver:
Stewart RR. An Analysis of Recruitment for a Non-treatment Based Advance Care Planning Research Study in Terminal Cancer Patients
. [Internet] [Thesis]. Penn State University; 2014. [cited 2021 Mar 03].
Available from: https://submit-etda.libraries.psu.edu/catalog/23585.
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation
Council of Science Editors:
Stewart RR. An Analysis of Recruitment for a Non-treatment Based Advance Care Planning Research Study in Terminal Cancer Patients
. [Thesis]. Penn State University; 2014. Available from: https://submit-etda.libraries.psu.edu/catalog/23585
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation

University of Ottawa
25.
Nayfeh, Ayah.
Advance Care Planning for Mechanical Ventilation: Health Care Providers' Perspectives on Cross-Cultural Care
.
Degree: 2014, University of Ottawa
URL: http://hdl.handle.net/10393/31837
► Background: Advance care planning (ACP) is a method used for patients to express in advance their preferences, beliefs and values for life-sustaining treatments at the…
(more)
▼ Background: Advance care planning (ACP) is a method used for patients to express in advance their preferences, beliefs and values for life-sustaining treatments at the end-of-life. With growing ethnocultural diversity in Canada, health care providers are managing an increasing number of diverse beliefs/values that are commonly associated with preferences for mechanical ventilation (MV) at the end-of-life. The aim of this project is to explore methods used by health care providers to set care plans for MV with ethnocultural populations.
Methods: Qualitative analysis of semi-structured interviews with open-ended questions and two clinical vignette components was conducted with eight (8) health care providers who engage in ACP. Participants were recruited using a snowball-sampling approach from five acute-care hospitals within the Ottawa region.
Results: Three major themes emerged from collected dataset: 1) Goals of care across illness trajectories, 2) Respecting beliefs, values, and wishes for care, and 3) Cross-cultural support in ACP. Using a value-based approach in ACP was described as an effective method for managing and interpreting diverse beliefs/values that impact decisions for MV. However, organizational, systemic, and personnel barriers that exist continue to hinder the provision of cross-cultural ACP across health settings.
Contexte: La planification préalable des soins (PPS) est une méthode utilisée par les patients et les familles pour exprimer à l'avance leurs préférences liées aux traitements de prolongation de vie. En raison de la diversité ethnoculturelle croissante au Canada, les professionnels de la santé sont confrontés à des croyances et valeurs différentes, souvent associées à une préférence pour l’initiation et le maintien de la ventilation mécanique (VM) en fin de vie. L'objectif de ce projet consiste à explorer les stratégies utilisées par les professionnels de la santé lors des discussions associées à la VM auprès d'une clientèle multiculturelle.
Méthodes: Huit (8) participants (médecins et infirmières) impliqués dans la PPS ont accepté de participer à une entrevue semi-structurée avec des questions ouvertes et deux scénarios cliniques. Les participants ont été recrutés à l'aide de la méthode d’échantillonnage par réseau (« boule de neige ») de cinq hôpitaux de la région d'Ottawa.
Résultats: Trois grands thèmes ont émergé des entrevues: 1) les objectifs de soins à travers les trajectoires de la maladie, 2) le respect des croyances, valeurs et souhaits pour les soins,
et 3) le soutien dans la PPS en contexte interculturel. Lors de la PPS, utiliser une approche basée sur les valeurs a été décrite comme une méthode efficace pour interpréter et prendre en compte les diverses croyances et valeurs qui ont une influence sur les décisions liées à la VM. Cependant, les barrières systémiques, organisationnelles et personnelles continuent
d'entraver les services associés à la PPS en contexte interculturel dans les établissements de santé.
Subjects/Keywords: Cultural competency;
End-of-life;
Mechanical ventilation;
Advance care planning
Record Details
Similar Records
Cite
Share »
Record Details
Similar Records
Cite
« Share





❌
APA ·
Chicago ·
MLA ·
Vancouver ·
CSE |
Export
to Zotero / EndNote / Reference
Manager
APA (6th Edition):
Nayfeh, A. (2014). Advance Care Planning for Mechanical Ventilation: Health Care Providers' Perspectives on Cross-Cultural Care
. (Thesis). University of Ottawa. Retrieved from http://hdl.handle.net/10393/31837
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation
Chicago Manual of Style (16th Edition):
Nayfeh, Ayah. “Advance Care Planning for Mechanical Ventilation: Health Care Providers' Perspectives on Cross-Cultural Care
.” 2014. Thesis, University of Ottawa. Accessed March 03, 2021.
http://hdl.handle.net/10393/31837.
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation
MLA Handbook (7th Edition):
Nayfeh, Ayah. “Advance Care Planning for Mechanical Ventilation: Health Care Providers' Perspectives on Cross-Cultural Care
.” 2014. Web. 03 Mar 2021.
Vancouver:
Nayfeh A. Advance Care Planning for Mechanical Ventilation: Health Care Providers' Perspectives on Cross-Cultural Care
. [Internet] [Thesis]. University of Ottawa; 2014. [cited 2021 Mar 03].
Available from: http://hdl.handle.net/10393/31837.
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation
Council of Science Editors:
Nayfeh A. Advance Care Planning for Mechanical Ventilation: Health Care Providers' Perspectives on Cross-Cultural Care
. [Thesis]. University of Ottawa; 2014. Available from: http://hdl.handle.net/10393/31837
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation

Boston College
26.
Inoue, Megumi.
End-of-life care planning and its implementation.
Degree: PhD, Social Work, 2014, Boston College
URL: http://dlib.bc.edu/islandora/object/bc-ir:104093
► End-of-life care planning is an opportunity for people to express how they want to spend the final stage of their lives by directing what type…
(more)
▼ End-of-life
care planning is an opportunity for people
to express how they want to spend the final stage of their lives by
directing what type of medical treatment they wish or do not wish
to receive. The completion of such
planning is a way to exercise
their autonomy, which is one of the fundamental ethical principles
in medicine in the United States. Many older adults in the U.S.,
however, do not have such a plan or even discuss the topic with
anyone. In order to understand the circumstances in which
end-of-life
planning is enacted, this study investigated two
important research questions: (1) What are the sociodemographic and
psychosocial factors that enhance or impede the completion of
end-of-life
planning? (2) How consistent is the content of a living
will with the person's actual dying experience? These research
questions were developed and examined as an application of
expectancy theory, which explains the concepts of motivation and
action. A series of logistic regression analyses were conducted.
This study analyzed data from the Health and Retirement Study
(HRS), which is a nationally representative sample of Americans
over the age of 50. The analytic subsample included those who died
between 2000 and 2010 (N = 6,668). The study found that persons who
were older, who identified themselves as White, who had higher
levels of income and education, and who were widowed or separated
were more likely to be motivated to complete end-of-life
planning.
A higher level of sense of mastery was specifically relevant to
documentation of living wills. On the other hand, a lower level of
religiosity was specifically associated with having a durable power
of attorney for health
care. In addition, there was a clear
connection between a request for palliative
care and less troubling
pain. Implications include conducting a community- or
workplace-based public educational campaign, incorporating a
culturally tailored approach for racial/ethnic minorities (e.g.
faith-based interventions), using
advance directives written in
easy to understand language (e.g. Five Wishes), and funding
Medicare provision for end-of-life
care consultations between
doctors and patients during annual physical exams.
Advisors/Committee Members: Megumi Inoue (Thesis advisor).
Subjects/Keywords: Advance care planning; End-of-life decision making; Gerontology
Record Details
Similar Records
Cite
Share »
Record Details
Similar Records
Cite
« Share





❌
APA ·
Chicago ·
MLA ·
Vancouver ·
CSE |
Export
to Zotero / EndNote / Reference
Manager
APA (6th Edition):
Inoue, M. (2014). End-of-life care planning and its implementation. (Doctoral Dissertation). Boston College. Retrieved from http://dlib.bc.edu/islandora/object/bc-ir:104093
Chicago Manual of Style (16th Edition):
Inoue, Megumi. “End-of-life care planning and its implementation.” 2014. Doctoral Dissertation, Boston College. Accessed March 03, 2021.
http://dlib.bc.edu/islandora/object/bc-ir:104093.
MLA Handbook (7th Edition):
Inoue, Megumi. “End-of-life care planning and its implementation.” 2014. Web. 03 Mar 2021.
Vancouver:
Inoue M. End-of-life care planning and its implementation. [Internet] [Doctoral dissertation]. Boston College; 2014. [cited 2021 Mar 03].
Available from: http://dlib.bc.edu/islandora/object/bc-ir:104093.
Council of Science Editors:
Inoue M. End-of-life care planning and its implementation. [Doctoral Dissertation]. Boston College; 2014. Available from: http://dlib.bc.edu/islandora/object/bc-ir:104093

University of Manitoba
27.
Asagwara, Ogechi.
Advance care planning: The knowledge, attitudes and experiences of medical-surgical nurses in Winnipeg, Manitoba, Canada.
Degree: Nursing, 2015, University of Manitoba
URL: http://hdl.handle.net/1993/30723
► Advance care planning (ACP) is defined as a process of open communication and information sharing between the health care team, the patient, and his/her family…
(more)
▼ Advance care planning (ACP) is defined as a process of open communication and information sharing between the health
care team, the patient, and his/her family to enable patient’s wishes for future
care and medical treatment to be explored and supported. The purpose of this study was to investigate the knowledge, attitudes, and experiences of medical-surgical nurses working in Winnipeg, Manitoba in relation to ACP. This cross-sectional descriptive study involved the use of a questionnaire developed and used in Singapore and assessed for face validity by local experts. A sample of 218 registered nurses responded to the web-based survey. Nurses were found to have: a sound understanding of foundational ACP concepts; communal and also varied attitudes toward ACP; and reported variable levels of involvement in ACP with patients and families. The results of this study can be used to inform change within both the educational and clinical
care settings.
Advisors/Committee Members: Edwards, Marie (Nursing) (supervisor), McClement, Susan (Nursing) Martin, Bruce (Family Medicine) (examiningcommittee).
Subjects/Keywords: Advance care planning; Knowledge; Attitudes; Experiences; Nurses; Nursing; Manitoba; Winnipeg
Record Details
Similar Records
Cite
Share »
Record Details
Similar Records
Cite
« Share





❌
APA ·
Chicago ·
MLA ·
Vancouver ·
CSE |
Export
to Zotero / EndNote / Reference
Manager
APA (6th Edition):
Asagwara, O. (2015). Advance care planning: The knowledge, attitudes and experiences of medical-surgical nurses in Winnipeg, Manitoba, Canada. (Masters Thesis). University of Manitoba. Retrieved from http://hdl.handle.net/1993/30723
Chicago Manual of Style (16th Edition):
Asagwara, Ogechi. “Advance care planning: The knowledge, attitudes and experiences of medical-surgical nurses in Winnipeg, Manitoba, Canada.” 2015. Masters Thesis, University of Manitoba. Accessed March 03, 2021.
http://hdl.handle.net/1993/30723.
MLA Handbook (7th Edition):
Asagwara, Ogechi. “Advance care planning: The knowledge, attitudes and experiences of medical-surgical nurses in Winnipeg, Manitoba, Canada.” 2015. Web. 03 Mar 2021.
Vancouver:
Asagwara O. Advance care planning: The knowledge, attitudes and experiences of medical-surgical nurses in Winnipeg, Manitoba, Canada. [Internet] [Masters thesis]. University of Manitoba; 2015. [cited 2021 Mar 03].
Available from: http://hdl.handle.net/1993/30723.
Council of Science Editors:
Asagwara O. Advance care planning: The knowledge, attitudes and experiences of medical-surgical nurses in Winnipeg, Manitoba, Canada. [Masters Thesis]. University of Manitoba; 2015. Available from: http://hdl.handle.net/1993/30723

University of Victoria
28.
Jeznach, Anna.
Advance care planning: a qualitative study with families of deceased cognitively impaired older adults.
Degree: Department of Psychology, 2018, University of Victoria
URL: https://dspace.library.uvic.ca//handle/1828/9781
► Older adults with dementia are at increased risk of becoming incapable of making their own decisions and may therefore benefit from planning for care at…
(more)
▼ Older adults with dementia are at increased risk of becoming incapable of making their own decisions and may therefore benefit from
planning for
care at the end-of-life.
Advance care planning (ACP) is a complex, multifaceted process by which people can express their wishes about
care at the end-of-life in case they become incompetent to make decisions for themselves. However, we have little understanding of the ACP process among people with dementia and their families. This study addressed three questions: 1) when and how to cognitively impaired older adults and their families receive information about ACP; 2) in which aspects of the ACP process do families of cognitively impaired older adults engage, and why (and does this fit within the framework of the transtheoretical model of behaviour change [TTM]); and 3) how ACP relates to the way in which family members perceive the quality of death of their loved one. 22 family members of deceased older adults with dementia were interviewed and data was analyzed using interpretive description qualitative methods. Participants reported that information about ACP is provided in a haphazard and often incomplete manner, leading to difficulty engaging in the ACP process. Older adults were in various stages of readiness to engage in ACP behaviours, with most only engaging in a subset of ACP behaviours. Although ACP was viewed as beneficial by participants, several barriers were identified that prevented people with dementia from dying in a way that was aligned with previously-expressed wishes. Implications for the practice of clinical neuropsychology and implications for policy on ACP are discussed.
Advisors/Committee Members: Tuokko, Holly A. (supervisor).
Subjects/Keywords: Advance care planning; End-of-life; Dementia; Neuropsychology
Record Details
Similar Records
Cite
Share »
Record Details
Similar Records
Cite
« Share





❌
APA ·
Chicago ·
MLA ·
Vancouver ·
CSE |
Export
to Zotero / EndNote / Reference
Manager
APA (6th Edition):
Jeznach, A. (2018). Advance care planning: a qualitative study with families of deceased cognitively impaired older adults. (Thesis). University of Victoria. Retrieved from https://dspace.library.uvic.ca//handle/1828/9781
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation
Chicago Manual of Style (16th Edition):
Jeznach, Anna. “Advance care planning: a qualitative study with families of deceased cognitively impaired older adults.” 2018. Thesis, University of Victoria. Accessed March 03, 2021.
https://dspace.library.uvic.ca//handle/1828/9781.
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation
MLA Handbook (7th Edition):
Jeznach, Anna. “Advance care planning: a qualitative study with families of deceased cognitively impaired older adults.” 2018. Web. 03 Mar 2021.
Vancouver:
Jeznach A. Advance care planning: a qualitative study with families of deceased cognitively impaired older adults. [Internet] [Thesis]. University of Victoria; 2018. [cited 2021 Mar 03].
Available from: https://dspace.library.uvic.ca//handle/1828/9781.
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation
Council of Science Editors:
Jeznach A. Advance care planning: a qualitative study with families of deceased cognitively impaired older adults. [Thesis]. University of Victoria; 2018. Available from: https://dspace.library.uvic.ca//handle/1828/9781
Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation

Montana State University
29.
Smith, Mary Elizabeth.
Promoting advance care planning education and advance directive completion in the community setting.
Degree: Doctor of Nursing Practice, College of Nursing, 2019, Montana State University
URL: https://scholarworks.montana.edu/xmlui/handle/1/15583
► The United States population is aging due, in part, to western medicine's ability to prevent, treat, and cure disease which has allowed the prolongation of…
(more)
▼ The United States population is aging due, in part, to western medicine's ability to prevent, treat, and cure disease which has allowed the prolongation of life. End-of-life
care has become more invasive and, despite the continued focus on patient autonomy, rates of
advance directive (AD) completion remain low. Increased knowledge may increase the community dwelling adult population's ability to plan for end-of-life, have end-of-life conversations, complete ADs, and increase individual's autonomy at end-of-life. Purpose: The purpose of this project was to educate community-dwelling adults about the purpose and importance of ADs, encourage conversation about end-of-life
planning, encourage completion of ADs in community-dwelling adults of all ages and in doing so, promote personal autonomy. Method: A sample of N=16 community-dwelling adults participated in an educational intervention that contained information on end-of-life
planning with a focus on ADs. Pre- and post-intervention surveys were used to gather demographic information, assess AD knowledge and examine participant views on importance of understanding health information and autonomy. Descriptive statistics, qualitative description, and paired-sample t test was used to analyze the data. Outcome: The sample consisted of 16 community-dwelling adults between ages 30 and 84-years old. The five questions assessing AD knowledge Pre- and Post-intervention were scored as correct or incorrect for each participant and total correct responses were computed into a mean score. The results of the paired sample t-test indicates that there was a significant difference between scores for pre-intervention survey (M= 63.75, SD = 22.84) and post-intervention survey (M= 90.0, SD= 10.9, t(4)=3.015, p=.039). Conclusion: The project results indicate that this intervention was effective in increasing AD knowledge, although, the impact on actual AD completion rates was not assessed. Further research is needed to identify successful methods of increasing ACP and AD knowledge in the community-dwelling adult population and also to identify the impact of such programs on actual AD completion.
Advisors/Committee Members: Chairperson, Graduate Committee: M. Jean Shreffler-Grant (advisor).
Subjects/Keywords: Aging.; Advance directives (Medical care).; Planning.; Health.; Education.
Record Details
Similar Records
Cite
Share »
Record Details
Similar Records
Cite
« Share





❌
APA ·
Chicago ·
MLA ·
Vancouver ·
CSE |
Export
to Zotero / EndNote / Reference
Manager
APA (6th Edition):
Smith, M. E. (2019). Promoting advance care planning education and advance directive completion in the community setting. (Doctoral Dissertation). Montana State University. Retrieved from https://scholarworks.montana.edu/xmlui/handle/1/15583
Chicago Manual of Style (16th Edition):
Smith, Mary Elizabeth. “Promoting advance care planning education and advance directive completion in the community setting.” 2019. Doctoral Dissertation, Montana State University. Accessed March 03, 2021.
https://scholarworks.montana.edu/xmlui/handle/1/15583.
MLA Handbook (7th Edition):
Smith, Mary Elizabeth. “Promoting advance care planning education and advance directive completion in the community setting.” 2019. Web. 03 Mar 2021.
Vancouver:
Smith ME. Promoting advance care planning education and advance directive completion in the community setting. [Internet] [Doctoral dissertation]. Montana State University; 2019. [cited 2021 Mar 03].
Available from: https://scholarworks.montana.edu/xmlui/handle/1/15583.
Council of Science Editors:
Smith ME. Promoting advance care planning education and advance directive completion in the community setting. [Doctoral Dissertation]. Montana State University; 2019. Available from: https://scholarworks.montana.edu/xmlui/handle/1/15583

University of New South Wales
30.
Smith, Tracy.
Looking 'behind the mask' through a palliative care lens: Exploring symptoms, patient-reported experiences, and attitudes to advance care planning in the setting of respiratory failure and noninvasive ventilation.
Degree: Clinical School - St Vincent's Hospital, 2018, University of New South Wales
URL: http://handle.unsw.edu.au/1959.4/60226
;
https://unsworks.unsw.edu.au/fapi/datastream/unsworks:51015/SOURCE2?view=true
► BackgroundPeople living with chronic obstructive pulmonary disease(COPD) or heart failure have multiple symptoms. Exacerbations may result inrespiratory failure requiring treatment with noninvasive ventilation(NIV). For these…
(more)
▼ BackgroundPeople living with chronic obstructive pulmonary disease(COPD) or heart failure have multiple symptoms. Exacerbations may result inrespiratory failure requiring treatment with noninvasive ventilation(NIV). For these patients, the medium-term prognosis is uncertain,implying a role for
advance care planning(ACP).AimThis thesis aims to describe the experiences and symptoms of people with acute hypercapnic respiratory failure(AHRF) treated withNIV, and their perspectives about ACP. A survey of respiratory physicians’ attitudes to ACP is also reported. The work aims to informcare pathways, guide health
care professionals, and inform person-centred
care.MethodsA mixed methods approach is used. A systematic review analyses randomised controlled trials(RCTs) to determine if NIV reducesbreathlessness in acute exacerbations of COPD. Patients treated with NIV for AHRF reported symptom burden using the CondensedMemorial Symptom Assessment Score within 36-hours of NIV initiation. Qualitative techniques were used to explore the experience oftreatment with NIV for AHRF and to better understand patients’ perspectives about barriers and facilitators of ACP. A novelquestionnaire for Respiratory Physicians explored ACP attitudes and practices.ResultsData from RCTs are insufficient to determine if NIV relives breathlessness. The physical and psychological symptom burden reported bypatients treated with NIV is high. Patients reported relief of breathlessness and other benefits of NIV, along with hope for anotherchance at life facilitate tolerance of NIV. Concerning ACP, when patients disclose worries regarding their health, some familiesdiscourage further discussion while others foster supportive communication. Patients’ sense of mortality and their hopes for the futurecould be utilised by clinicians to improve person-centred ACP. A novel survey assessing Respiratory Physicians’ attitudes to ACPrequires further refinement before wider distribution. Preliminary findings indicate Respiratory Physicians appreciate the importance ofACP, but undertake outpatient ACP conversations infrequently and would value further education.ConclusionPeople treated with NIV for AHRF have a broad range of symptom and ACP needs. Wider understanding of these needs, collaborationbetween respiratory and palliative
care clinicians, and health system changes are required to ensure that
care of the person ‘behind themask’ is truly person-centred.
Advisors/Committee Members: Ingham, Jane, Clinical School - St Vincent's Hospital, Faculty of Medicine, UNSW, Jenkins, Christine, Concord Clinical School, University of Sydney.
Subjects/Keywords: Respiratory failure; NIV; Symptoms; Advance care planning; CMSAS; Qualitative; COPD
Record Details
Similar Records
Cite
Share »
Record Details
Similar Records
Cite
« Share





❌
APA ·
Chicago ·
MLA ·
Vancouver ·
CSE |
Export
to Zotero / EndNote / Reference
Manager
APA (6th Edition):
Smith, T. (2018). Looking 'behind the mask' through a palliative care lens: Exploring symptoms, patient-reported experiences, and attitudes to advance care planning in the setting of respiratory failure and noninvasive ventilation. (Doctoral Dissertation). University of New South Wales. Retrieved from http://handle.unsw.edu.au/1959.4/60226 ; https://unsworks.unsw.edu.au/fapi/datastream/unsworks:51015/SOURCE2?view=true
Chicago Manual of Style (16th Edition):
Smith, Tracy. “Looking 'behind the mask' through a palliative care lens: Exploring symptoms, patient-reported experiences, and attitudes to advance care planning in the setting of respiratory failure and noninvasive ventilation.” 2018. Doctoral Dissertation, University of New South Wales. Accessed March 03, 2021.
http://handle.unsw.edu.au/1959.4/60226 ; https://unsworks.unsw.edu.au/fapi/datastream/unsworks:51015/SOURCE2?view=true.
MLA Handbook (7th Edition):
Smith, Tracy. “Looking 'behind the mask' through a palliative care lens: Exploring symptoms, patient-reported experiences, and attitudes to advance care planning in the setting of respiratory failure and noninvasive ventilation.” 2018. Web. 03 Mar 2021.
Vancouver:
Smith T. Looking 'behind the mask' through a palliative care lens: Exploring symptoms, patient-reported experiences, and attitudes to advance care planning in the setting of respiratory failure and noninvasive ventilation. [Internet] [Doctoral dissertation]. University of New South Wales; 2018. [cited 2021 Mar 03].
Available from: http://handle.unsw.edu.au/1959.4/60226 ; https://unsworks.unsw.edu.au/fapi/datastream/unsworks:51015/SOURCE2?view=true.
Council of Science Editors:
Smith T. Looking 'behind the mask' through a palliative care lens: Exploring symptoms, patient-reported experiences, and attitudes to advance care planning in the setting of respiratory failure and noninvasive ventilation. [Doctoral Dissertation]. University of New South Wales; 2018. Available from: http://handle.unsw.edu.au/1959.4/60226 ; https://unsworks.unsw.edu.au/fapi/datastream/unsworks:51015/SOURCE2?view=true
◁ [1] [2] [3] [4] ▶
.