subject:(Special needs adoption)

University of Cincinnati

1. Gladstone, Amy R. Assessing the Genetic Counseling Needs of Parents who have Adopted a Child with Duchenne or Becker Muscular Dystrophy.

Degree: MS, Medicine: Genetic Counseling, 2013, University of Cincinnati

URL: http://rave.ohiolink.edu/etdc/view?acc_num=ucin1367924226

► Introduction: Duchenne / Becker muscular dystrophy (DBMD) is an x-linked condition with a wide variation of clinical presentation due to specific gene mutations and the… (more)

▼ Introduction: Duchenne / Becker muscular dystrophy (DBMD) is an x-linked condition with a wide variation of clinical presentation due to specific gene mutations and the gender of the affected individual. For families of the most severely affected male patients, care needs, natural history, and potential interventions are paramount. In contrast, reproductive risks may be important for less severely affected individuals as in the case of Becker phenotype or DBMD carrier females. The published literature has suggested the caregiver burden and poor prognosis of DBMD has an impact on the biological family as a whole. Additionally, published literature suggests a high disruption rate of adoptions that involve a child with special needs. However, the literature does not currently describe the role of genetic counselors in addressing the needs of families who have adopted a child with DBMD. Purpose: The purpose of this study was to determine the needs of adoptive families with sons diagnosed with DBMD, and how genetic counseling could be tailored to improve this population's experience.Methods: Participants were adoptive parents of males who were under age 18 and had a DBMD Diagnosis. They were recruited through Cincinnati Children's Hospital Medical Center or Duchenne Connect. Semi-structured qualitative interviews were conducted by telephone with use of an interview guide. The interview content was analyzed for recurrent themes using NVivo© software. These themes were organized into categories to summarize the findings.Results: Thirteen adoptive parents were interviewed. Their needs, relative to the diagnosis of DBMD, genetic counseling, and the genetics information, were not specific to adoptive families. In addition to the anticipated themes, 2 adoption specific points were described. Parents of adopted children with DBMD place importance on communicating the diagnostic implication of DBMD to the biological parents. Second, adoptive parents who questioned their ability to raise a child with special needs prior to the adoption re-considered their negative preconception.Conclusion: This study indicates that adoptive parents need psychosocial support in adjusting to the DBMD diagnosis; although this is not specific to adoptive parents, the parents also indicated that the diagnosis caused a short-term reconsideration of whether the adoption was the right choice. Interestingly, adoptive parents indicated a strong and unexpected desire for recurrence risk information and placed importance on communicating this risk with the biological parents. Due to the frequent inclusion of genetic counselors in diagnosing DBMD, an awareness of the adoption-specific and non-specific informational needs are important in tailoring a genetic counseling session to best meet an adoptive parent's needs. Advisors/Committee Members: Hopkin, Robert (Committee Chair).

Subjects/Keywords: Surgery; Adoption; Genetic Counseling; Duchenne Muscular Dystrophy; Becker Muscular Dystrophy; Qualitative Research; Special-Needs Adoption

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APA (6^th Edition):

Gladstone, A. R. (2013). Assessing the Genetic Counseling Needs of Parents who have Adopted a Child with Duchenne or Becker Muscular Dystrophy. (Masters Thesis). University of Cincinnati. Retrieved from http://rave.ohiolink.edu/etdc/view?acc_num=ucin1367924226

Chicago Manual of Style (16^th Edition):

Gladstone, Amy R. “Assessing the Genetic Counseling Needs of Parents who have Adopted a Child with Duchenne or Becker Muscular Dystrophy.” 2013. Masters Thesis, University of Cincinnati. Accessed December 08, 2019. http://rave.ohiolink.edu/etdc/view?acc_num=ucin1367924226.

MLA Handbook (7^th Edition):

Gladstone, Amy R. “Assessing the Genetic Counseling Needs of Parents who have Adopted a Child with Duchenne or Becker Muscular Dystrophy.” 2013. Web. 08 Dec 2019.

Vancouver:

Gladstone AR. Assessing the Genetic Counseling Needs of Parents who have Adopted a Child with Duchenne or Becker Muscular Dystrophy. [Internet] [Masters thesis]. University of Cincinnati; 2013. [cited 2019 Dec 08]. Available from: http://rave.ohiolink.edu/etdc/view?acc_num=ucin1367924226.

Council of Science Editors:

Gladstone AR. Assessing the Genetic Counseling Needs of Parents who have Adopted a Child with Duchenne or Becker Muscular Dystrophy. [Masters Thesis]. University of Cincinnati; 2013. Available from: http://rave.ohiolink.edu/etdc/view?acc_num=ucin1367924226

Leiden University

2. Fikse, Marissa. Probleemgedrag van adoptiekinderen met en zonder Special Needs uit Taiwan en China.

Degree: 2013, Leiden University

URL: http://hdl.handle.net/1887/21456

► There is a growing number of foreign-born adopted children with Special Needs. Despite this increase little is known about these adopted children and their needs.… (more)

Subjects/Keywords: adoption; special needs; problem behavior; SDQ; CBCL; Taiwan; China

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APA (6^th Edition):

Fikse, M. (2013). Probleemgedrag van adoptiekinderen met en zonder Special Needs uit Taiwan en China. (Masters Thesis). Leiden University. Retrieved from http://hdl.handle.net/1887/21456

Chicago Manual of Style (16^th Edition):

Fikse, Marissa. “Probleemgedrag van adoptiekinderen met en zonder Special Needs uit Taiwan en China.” 2013. Masters Thesis, Leiden University. Accessed December 08, 2019. http://hdl.handle.net/1887/21456.

MLA Handbook (7^th Edition):

Fikse, Marissa. “Probleemgedrag van adoptiekinderen met en zonder Special Needs uit Taiwan en China.” 2013. Web. 08 Dec 2019.

Vancouver:

Fikse M. Probleemgedrag van adoptiekinderen met en zonder Special Needs uit Taiwan en China. [Internet] [Masters thesis]. Leiden University; 2013. [cited 2019 Dec 08]. Available from: http://hdl.handle.net/1887/21456.

Council of Science Editors:

Fikse M. Probleemgedrag van adoptiekinderen met en zonder Special Needs uit Taiwan en China. [Masters Thesis]. Leiden University; 2013. Available from: http://hdl.handle.net/1887/21456

Penn State University

3. Ehrmann, Lois Ann Pessolano. Characteristic Predictors of Parental Stress in Special Needs Children Adopted Out of the U.S. Foster Care System.

Degree: M. Arch., Counselor Education, 2007, Penn State University

URL: https://etda.libraries.psu.edu/catalog/7571

► ABSTRACT This study examined relationships between characteristics of children adopted from the U.S. foster care program and measures of parenting, personal, and marital stress in… (more)

Subjects/Keywords: pareting stress; special needs; adoption

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APA (6^th Edition):

Ehrmann, L. A. P. (2007). Characteristic Predictors of Parental Stress in Special Needs Children Adopted Out of the U.S. Foster Care System. (Masters Thesis). Penn State University. Retrieved from https://etda.libraries.psu.edu/catalog/7571

Chicago Manual of Style (16^th Edition):

Ehrmann, Lois Ann Pessolano. “Characteristic Predictors of Parental Stress in Special Needs Children Adopted Out of the U.S. Foster Care System.” 2007. Masters Thesis, Penn State University. Accessed December 08, 2019. https://etda.libraries.psu.edu/catalog/7571.

MLA Handbook (7^th Edition):

Ehrmann, Lois Ann Pessolano. “Characteristic Predictors of Parental Stress in Special Needs Children Adopted Out of the U.S. Foster Care System.” 2007. Web. 08 Dec 2019.

Vancouver:

Ehrmann LAP. Characteristic Predictors of Parental Stress in Special Needs Children Adopted Out of the U.S. Foster Care System. [Internet] [Masters thesis]. Penn State University; 2007. [cited 2019 Dec 08]. Available from: https://etda.libraries.psu.edu/catalog/7571.

Council of Science Editors:

Ehrmann LAP. Characteristic Predictors of Parental Stress in Special Needs Children Adopted Out of the U.S. Foster Care System. [Masters Thesis]. Penn State University; 2007. Available from: https://etda.libraries.psu.edu/catalog/7571

Colorado State University

4. Hulings, Kathryn U. Michael : life in the progressive tense.

Degree: MA, English, 2007, Colorado State University

URL: http://hdl.handle.net/10217/67503

► This creative nonfiction book chronicles a family's adventures in raising an adopted child who has Down syndrome. Thematically, it focuses on how this child positively… (more)

Subjects/Keywords: disability; special needs; parenting; adoption; chronic pain; Down syndrome

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APA (6^th Edition):

Hulings, K. U. (2007). Michael : life in the progressive tense. (Masters Thesis). Colorado State University. Retrieved from http://hdl.handle.net/10217/67503

Chicago Manual of Style (16^th Edition):

Hulings, Kathryn U. “Michael : life in the progressive tense.” 2007. Masters Thesis, Colorado State University. Accessed December 08, 2019. http://hdl.handle.net/10217/67503.

MLA Handbook (7^th Edition):

Hulings, Kathryn U. “Michael : life in the progressive tense.” 2007. Web. 08 Dec 2019.

Vancouver:

Hulings KU. Michael : life in the progressive tense. [Internet] [Masters thesis]. Colorado State University; 2007. [cited 2019 Dec 08]. Available from: http://hdl.handle.net/10217/67503.

Council of Science Editors:

Hulings KU. Michael : life in the progressive tense. [Masters Thesis]. Colorado State University; 2007. Available from: http://hdl.handle.net/10217/67503

Jönköping University

5. Parantainen, Johanna. The experiences of adoptive parents rearing children with reactive attachment disorder : A systematic literature review.

Degree: CHILD, 2019, Jönköping University

URL: http://urn.kb.se/resolve?urn=urn:nbn:se:hj:diva-43984

► Reactive attachment disorder (RAD) is characterised by severely underdeveloped or absent attachment between a child and a caregiver. Adopted children who have experienced adverse… (more)

Subjects/Keywords: reactive attachment disorder; attachment; special needs adoption; adoption; adoptive parents; parental perspective; experience; Other Social Sciences not elsewhere specified; Övrig annan samhällsvetenskap

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APA (6^th Edition):

Parantainen, J. (2019). The experiences of adoptive parents rearing children with reactive attachment disorder : A systematic literature review. (Thesis). Jönköping University. Retrieved from http://urn.kb.se/resolve?urn=urn:nbn:se:hj:diva-43984

Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation

Chicago Manual of Style (16^th Edition):

Parantainen, Johanna. “The experiences of adoptive parents rearing children with reactive attachment disorder : A systematic literature review.” 2019. Thesis, Jönköping University. Accessed December 08, 2019. http://urn.kb.se/resolve?urn=urn:nbn:se:hj:diva-43984.

Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation

MLA Handbook (7^th Edition):

Parantainen, Johanna. “The experiences of adoptive parents rearing children with reactive attachment disorder : A systematic literature review.” 2019. Web. 08 Dec 2019.

Vancouver:

Parantainen J. The experiences of adoptive parents rearing children with reactive attachment disorder : A systematic literature review. [Internet] [Thesis]. Jönköping University; 2019. [cited 2019 Dec 08]. Available from: http://urn.kb.se/resolve?urn=urn:nbn:se:hj:diva-43984.

Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation

Council of Science Editors:

Parantainen J. The experiences of adoptive parents rearing children with reactive attachment disorder : A systematic literature review. [Thesis]. Jönköping University; 2019. Available from: http://urn.kb.se/resolve?urn=urn:nbn:se:hj:diva-43984

Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation

University of North Texas

6. Meland, Angela M. Differences in Mother and Father Perceptions, Interactions and Responses to Intervention with a Special-needs Adoptive Child.

Degree: 2004, University of North Texas

URL: https://digital.library.unt.edu/ark:/67531/metadc4545/

► Parents' perceptions of their child's behavior may differ for mothers and fathers. Differences in parental perception may also be apparent in cases of special needs… (more)

Subjects/Keywords: Parent and child.; Special needs adoption.; Adopted children – Family relationships.; Children with disabilities – Family relationships.; adoption; mothers and fathers; special-needs child

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APA (6^th Edition):

Meland, A. M. (2004). Differences in Mother and Father Perceptions, Interactions and Responses to Intervention with a Special-needs Adoptive Child. (Thesis). University of North Texas. Retrieved from https://digital.library.unt.edu/ark:/67531/metadc4545/

Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation

Chicago Manual of Style (16^th Edition):

Meland, Angela M. “Differences in Mother and Father Perceptions, Interactions and Responses to Intervention with a Special-needs Adoptive Child.” 2004. Thesis, University of North Texas. Accessed December 08, 2019. https://digital.library.unt.edu/ark:/67531/metadc4545/.

Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation

MLA Handbook (7^th Edition):

Meland, Angela M. “Differences in Mother and Father Perceptions, Interactions and Responses to Intervention with a Special-needs Adoptive Child.” 2004. Web. 08 Dec 2019.

Vancouver:

Meland AM. Differences in Mother and Father Perceptions, Interactions and Responses to Intervention with a Special-needs Adoptive Child. [Internet] [Thesis]. University of North Texas; 2004. [cited 2019 Dec 08]. Available from: https://digital.library.unt.edu/ark:/67531/metadc4545/.

Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation

Council of Science Editors:

Meland AM. Differences in Mother and Father Perceptions, Interactions and Responses to Intervention with a Special-needs Adoptive Child. [Thesis]. University of North Texas; 2004. Available from: https://digital.library.unt.edu/ark:/67531/metadc4545/

Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation

7. Gallinger, Bailey. Motivations and Characteristics of Families who Adopt Children with Special Needs: A Qualitative Study.

Degree: 2012, Brandeis University

URL: http://hdl.handle.net/10192/46

► A substantial body of research on special needs adoption characterizes the adoption process itself and the outcomes. However, much of this research lacks an in-depth… (more)

Subjects/Keywords: special needs; genetic counseling; birth parents; adoptive families; international adoption; disabilities; private adoption

…frequencies �� …...............16 viii INTRODUCTION Special needs adoption has distinguished… …However, in private domestic adoption, ‘special needs’ often refers to children with… …special needs adoption. Research on the process addresses the challenges of caring for children… …with special needs and important steps to be considered with special needs adoption. While a… …address adoption of children with a broader scope of special needs. To better understand these…

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APA (6^th Edition):

Gallinger, B. (2012). Motivations and Characteristics of Families who Adopt Children with Special Needs: A Qualitative Study. (Thesis). Brandeis University. Retrieved from http://hdl.handle.net/10192/46

Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation

Chicago Manual of Style (16^th Edition):

Gallinger, Bailey. “Motivations and Characteristics of Families who Adopt Children with Special Needs: A Qualitative Study.” 2012. Thesis, Brandeis University. Accessed December 08, 2019. http://hdl.handle.net/10192/46.

Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation

MLA Handbook (7^th Edition):

Gallinger, Bailey. “Motivations and Characteristics of Families who Adopt Children with Special Needs: A Qualitative Study.” 2012. Web. 08 Dec 2019.

Vancouver:

Gallinger B. Motivations and Characteristics of Families who Adopt Children with Special Needs: A Qualitative Study. [Internet] [Thesis]. Brandeis University; 2012. [cited 2019 Dec 08]. Available from: http://hdl.handle.net/10192/46.

Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation

Council of Science Editors:

Gallinger B. Motivations and Characteristics of Families who Adopt Children with Special Needs: A Qualitative Study. [Thesis]. Brandeis University; 2012. Available from: http://hdl.handle.net/10192/46

Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation

Texas Christian University

8. Purvis, Karyn Brand. Correlates of behavioral change in a sample of at-risk adopted children : a preliminary study / by Karyn Brand Purvis.

Degree: 2003, Texas Christian University

URL: https://repository.tcu.edu/handle/116099117/34868

Subjects/Keywords: Intercountry adoption; Special needs adoption; Attachment behavior; Attachment behavior in children; Adopted children – Family relationships

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APA (6^th Edition):

Purvis, K. B. (2003). Correlates of behavioral change in a sample of at-risk adopted children : a preliminary study / by Karyn Brand Purvis. (Thesis). Texas Christian University. Retrieved from https://repository.tcu.edu/handle/116099117/34868

Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation

Chicago Manual of Style (16^th Edition):

Purvis, Karyn Brand. “Correlates of behavioral change in a sample of at-risk adopted children : a preliminary study / by Karyn Brand Purvis.” 2003. Thesis, Texas Christian University. Accessed December 08, 2019. https://repository.tcu.edu/handle/116099117/34868.

Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation

MLA Handbook (7^th Edition):

Purvis, Karyn Brand. “Correlates of behavioral change in a sample of at-risk adopted children : a preliminary study / by Karyn Brand Purvis.” 2003. Web. 08 Dec 2019.

Vancouver:

Purvis KB. Correlates of behavioral change in a sample of at-risk adopted children : a preliminary study / by Karyn Brand Purvis. [Internet] [Thesis]. Texas Christian University; 2003. [cited 2019 Dec 08]. Available from: https://repository.tcu.edu/handle/116099117/34868.

Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation

Council of Science Editors:

Purvis KB. Correlates of behavioral change in a sample of at-risk adopted children : a preliminary study / by Karyn Brand Purvis. [Thesis]. Texas Christian University; 2003. Available from: https://repository.tcu.edu/handle/116099117/34868

Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation

California State University – San Bernardino

9. Duran, Stephanie Frances. Achieving permanency in the adoptions of special needs children: What factors lead to adoption disruption?.

Degree: MSW, School of Social Work, 2011, California State University – San Bernardino

URL: https://scholarworks.lib.csusb.edu/etd-project/3316

► The purpose of this study was to look at the factors that lead to disruption in the adoption of special needs children. Families that… (more)

Subjects/Keywords: Adoptive parents Services for; Special needs adoption; Adopted children Family relationships; Children with disabilities Services for; Children with disabilities Family relationships; Foster children Services for; Foster home care; Family social work; Adopted children Family relationships; Adoptive parents Services for; Children with disabilities Family relationships; Children with disabilities Services for; Family social work; Foster children Services for; Foster home care; Special needs adoption.; Social Work

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APA (6^th Edition):

Duran, S. F. (2011). Achieving permanency in the adoptions of special needs children: What factors lead to adoption disruption?. (Thesis). California State University – San Bernardino. Retrieved from https://scholarworks.lib.csusb.edu/etd-project/3316

Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation

Chicago Manual of Style (16^th Edition):

Duran, Stephanie Frances. “Achieving permanency in the adoptions of special needs children: What factors lead to adoption disruption?.” 2011. Thesis, California State University – San Bernardino. Accessed December 08, 2019. https://scholarworks.lib.csusb.edu/etd-project/3316.

Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation

MLA Handbook (7^th Edition):

Duran, Stephanie Frances. “Achieving permanency in the adoptions of special needs children: What factors lead to adoption disruption?.” 2011. Web. 08 Dec 2019.

Vancouver:

Duran SF. Achieving permanency in the adoptions of special needs children: What factors lead to adoption disruption?. [Internet] [Thesis]. California State University – San Bernardino; 2011. [cited 2019 Dec 08]. Available from: https://scholarworks.lib.csusb.edu/etd-project/3316.

Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation

Council of Science Editors:

Duran SF. Achieving permanency in the adoptions of special needs children: What factors lead to adoption disruption?. [Thesis]. California State University – San Bernardino; 2011. Available from: https://scholarworks.lib.csusb.edu/etd-project/3316

Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation

California State University – San Bernardino

10. Larson, Brooke Noelle. Preferred developmental disabilties among prospective adoptive parents.

Degree: MSW, School of Social Work, 2007, California State University – San Bernardino

URL: https://scholarworks.lib.csusb.edu/etd-project/3288

► This study was done to examine prospective adoptive parents' perceptions of one particular group of special needs children waiting for adoption: those children with developmental… (more)

Subjects/Keywords: Adoptive parents Attitudes; Adoptive parents Counseling of; Developmentally disabled children; Parents of children with disabilities; Special needs adoption; Older child adoption; Children with disabilities; Children of minorities; Adoptive parents Attitudes; Children of minorities; Children with disabilities; Developmentally disabled children; Older child adoption; Parents of children with disabilities; Special needs adoption.; Social Work

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APA (6^th Edition):

Larson, B. N. (2007). Preferred developmental disabilties among prospective adoptive parents. (Thesis). California State University – San Bernardino. Retrieved from https://scholarworks.lib.csusb.edu/etd-project/3288

Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation

Chicago Manual of Style (16^th Edition):

Larson, Brooke Noelle. “Preferred developmental disabilties among prospective adoptive parents.” 2007. Thesis, California State University – San Bernardino. Accessed December 08, 2019. https://scholarworks.lib.csusb.edu/etd-project/3288.

Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation

MLA Handbook (7^th Edition):

Larson, Brooke Noelle. “Preferred developmental disabilties among prospective adoptive parents.” 2007. Web. 08 Dec 2019.

Vancouver:

Larson BN. Preferred developmental disabilties among prospective adoptive parents. [Internet] [Thesis]. California State University – San Bernardino; 2007. [cited 2019 Dec 08]. Available from: https://scholarworks.lib.csusb.edu/etd-project/3288.

Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation

Council of Science Editors:

Larson BN. Preferred developmental disabilties among prospective adoptive parents. [Thesis]. California State University – San Bernardino; 2007. Available from: https://scholarworks.lib.csusb.edu/etd-project/3288

Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation

Texas Christian University

11. Asbury, Edward Trey. Biological, adopted and mixed families : the impact of the special needs child / by Edward Trey Asbury.

Degree: 2001, Texas Christian University

URL: https://repository.tcu.edu/handle/116099117/34855

Subjects/Keywords: Children with disabilities – Family relationships; Adopted children – Family relationships; Special needs adoption; Family; Marriage

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APA (6^th Edition):

Asbury, E. T. (2001). Biological, adopted and mixed families : the impact of the special needs child / by Edward Trey Asbury. (Thesis). Texas Christian University. Retrieved from https://repository.tcu.edu/handle/116099117/34855

Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation

Chicago Manual of Style (16^th Edition):

Asbury, Edward Trey. “Biological, adopted and mixed families : the impact of the special needs child / by Edward Trey Asbury.” 2001. Thesis, Texas Christian University. Accessed December 08, 2019. https://repository.tcu.edu/handle/116099117/34855.

Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation

MLA Handbook (7^th Edition):

Asbury, Edward Trey. “Biological, adopted and mixed families : the impact of the special needs child / by Edward Trey Asbury.” 2001. Web. 08 Dec 2019.

Vancouver:

Asbury ET. Biological, adopted and mixed families : the impact of the special needs child / by Edward Trey Asbury. [Internet] [Thesis]. Texas Christian University; 2001. [cited 2019 Dec 08]. Available from: https://repository.tcu.edu/handle/116099117/34855.

Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation

Council of Science Editors:

Asbury ET. Biological, adopted and mixed families : the impact of the special needs child / by Edward Trey Asbury. [Thesis]. Texas Christian University; 2001. Available from: https://repository.tcu.edu/handle/116099117/34855

Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation

12. Tawde, Sanjukta. Exploring Birthparent’s Experiences of Creating an Adoption Plan for Their Children with Special Needs.

Degree: MSin Genetic Counseling, Genetic Counseling, 2015, University of South Carolina

URL: https://scholarcommons.sc.edu/etd/3099

► Very little information is available regarding the experience and needs of families who create an adoption plan for their child with disability. The purpose… (more)

▼ Very little information is available regarding the experience and needs of families who create an adoption plan for their child with disability. The purpose of this study was to learn more about the experiences of birthparents who created an adoption plan after the diagnosis of Down syndrome so as to understand their needs during the process. Birthparents were invited to participate in the study through National Down Syndrome Adoption Network (NDSAN) by membership emails. Information about the study was made available on the organization’s website and social media pages. Potential participants also learned about the study from one of the co-authors of the study. Participant inclusion criteria included individuals who were 18 years of age and older, who had created an adoption plan for their baby with Down syndrome, and who were willing to participate in the telephone interview. Semi-structured telephone interviews were conducted with five mothers who had created adoption plans for their children with Down syndrome. Conventional content analysis methods were used for systematic coding and identification of emergent themes. All five participants were Caucasian, over 35 years of age, and all but one were married and had previous children. All except one chose to create an open adoption plan. The interviews focused on three major areas: (1) families’ reasons for creating an adoption plan, (2) informational and emotional needs of these families, and (3) messages to other birthparents and medical health professionals about special needs adoption. Participants reported various reasons for creating an adoption plan including unplanned pregnancy, being unprepared to raise a child with Down syndrome, and religious and personal beliefs about termination of pregnancy. Having support of their partners, gaining acceptance from others about their decision and talking to other birthparents who have gone through the same situation were the most significant emotional needs of these birthmothers. Finding information about adoption resources was one of the informational needs experienced. Not all birthmothers interviewed received information about the option of adoption from their genetic counselors or medical healthcare providers. The birthmothers also expressed concerns that people are unaware of the option of creating an adoption plan, and suggested that more exposure is necessary. Sharing results from this study with genetic counselors and other healthcare professionals may help future birthmothers approach this option with greater ease, and hopefully help healthcare professionals provide support and referrals to clients involved in special needs adoptions. Advisors/Committee Members: Victoria Vincent.

Subjects/Keywords: Genetics; Genetics and Genomics; Life Sciences; adoption plan; Down syndrome; National Down Syndrome Adoption Network; child with disability; adoption; special needs

…special needs (Perry, 2003). These studies suggest that the creation of an adoption… …1993). However, due to the dearth of available literature about special needs adoption… …birthparents who had created adoption plans for their children with special needs and were informed… …adopt a child with special needs. However, there has been a major change in adoption practices… …full disclosure of these special needs as necessary to achieve the most desired adoption…

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APA (6^th Edition):

Tawde, S. (2015). Exploring Birthparent’s Experiences of Creating an Adoption Plan for Their Children with Special Needs. (Masters Thesis). University of South Carolina. Retrieved from https://scholarcommons.sc.edu/etd/3099

Chicago Manual of Style (16^th Edition):

Tawde, Sanjukta. “Exploring Birthparent’s Experiences of Creating an Adoption Plan for Their Children with Special Needs.” 2015. Masters Thesis, University of South Carolina. Accessed December 08, 2019. https://scholarcommons.sc.edu/etd/3099.

MLA Handbook (7^th Edition):

Tawde, Sanjukta. “Exploring Birthparent’s Experiences of Creating an Adoption Plan for Their Children with Special Needs.” 2015. Web. 08 Dec 2019.

Vancouver:

Tawde S. Exploring Birthparent’s Experiences of Creating an Adoption Plan for Their Children with Special Needs. [Internet] [Masters thesis]. University of South Carolina; 2015. [cited 2019 Dec 08]. Available from: https://scholarcommons.sc.edu/etd/3099.

Council of Science Editors:

Tawde S. Exploring Birthparent’s Experiences of Creating an Adoption Plan for Their Children with Special Needs. [Masters Thesis]. University of South Carolina; 2015. Available from: https://scholarcommons.sc.edu/etd/3099

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