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Universitat de Barcelona

1. Insa Calderón, Esther. El ser gen-ètic: etnografia de l'experiència de Malaltia Hereditària a Barcelona i Los Ángeles.

Degree: Departament d'Antropologia Cultural i Història d'Amèrica i d'Àfrica, 2016, Universitat de Barcelona

Since the 1960s, there has been unprecedented research done in the field of genetics in western societies. This has led to discoveries of new genetic diseases, some of them susceptible to here-ditary transmission. From an anthropological point of view, the approximation of genetic and hereditary diseases to the cultural dimension has been carried out mostly from an interpretive or hermeneutic paradigm. However, the approximation from a phenomenological perspective, which addresses the experience of the disease, has been less researched. The objective of the thesis is precisely to describe the types of experience lived by individuals with a hereditary di-sease, the ethical experience. Specifically, I analyzed how the ethical experience was lived and articulated by individuals diagnosed with a hereditary disease by looking into their embodied moralities, in moments of ethical choice and moral breakdown, as well as the work that they do on their sense of self according to their desires in the path to self-realization. This is, in other words, an ethnography based on a phenomenological theoretical-methodological perspective, and the fieldwork was carried out in two western societies, Barcelona and Los Angeles (California). From the narratives, the thesis provides, on one hand, evidence of how the body produces mo-rality and ethics, and how they are put into practice in day-to-day life. On the other hand, it offers intimate portraits of four individuals whose (dis)ability, symptoms, commitment to sur-vival and stigma have made them experience a remodelling of their moral personalities that can only be understood through the intersection of their particular historical, social and cultural determinants. The result is another approximation to the understanding of the body through the knowledge of moral and ethical experience, through the processes which cultivate individuals, transform their worlds and, with them, the western world. Advisors/Committee Members: [email protected] (authoremail), false (authoremailshow), Bestard Camps, Joan (director), true (authorsendemail).

Subjects/Keywords: Malalties hereditàries; Enfermedades hereditarias; Genetic diseases; Genètica; Genética; Genetics; Antropologia mèdica; Antropologia médica; Medical anthropology; Ètica mèdica; Ética médica; Medical ethics; Metodologia; Metodología; Methodology; Investigació; Investigación; Research; Los Angeles (Estats Units d'Amèrica); Los Angeles (Estados Unidos de América); Los Angeles (United States of America); Ciències Humanes i Socials; 572

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APA · Chicago · MLA · Vancouver · CSE | Export to Zotero / EndNote / Reference Manager

APA (6th Edition):

Insa Calderón, E. (2016). El ser gen-ètic: etnografia de l'experiència de Malaltia Hereditària a Barcelona i Los Ángeles. (Thesis). Universitat de Barcelona. Retrieved from http://hdl.handle.net/10803/398657

Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation

Chicago Manual of Style (16th Edition):

Insa Calderón, Esther. “El ser gen-ètic: etnografia de l'experiència de Malaltia Hereditària a Barcelona i Los Ángeles.” 2016. Thesis, Universitat de Barcelona. Accessed November 11, 2019. http://hdl.handle.net/10803/398657.

Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation

MLA Handbook (7th Edition):

Insa Calderón, Esther. “El ser gen-ètic: etnografia de l'experiència de Malaltia Hereditària a Barcelona i Los Ángeles.” 2016. Web. 11 Nov 2019.

Vancouver:

Insa Calderón E. El ser gen-ètic: etnografia de l'experiència de Malaltia Hereditària a Barcelona i Los Ángeles. [Internet] [Thesis]. Universitat de Barcelona; 2016. [cited 2019 Nov 11]. Available from: http://hdl.handle.net/10803/398657.

Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation

Council of Science Editors:

Insa Calderón E. El ser gen-ètic: etnografia de l'experiència de Malaltia Hereditària a Barcelona i Los Ángeles. [Thesis]. Universitat de Barcelona; 2016. Available from: http://hdl.handle.net/10803/398657

Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation

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