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You searched for +publisher:"The Catholic University of America" +contributor:("Leary-Warsaw, Jacqueline"). One record found.

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1. Kurfess, Mary. Understanding the Lived Experience of Caregivers Whose Spouses have Frontotemporal Dementia.

Degree: 2020, The Catholic University of America

Frontotemporal dementia (FTD) is the most widely occurring type of early onset dementia, with an average age of 57 at the time of diagnosis (Onyike, 2017). Spouses are most often caregivers for persons with chronic illness (Adelman, 2014) yet little is known about the experience of the FTD spouse caregiver (FTDSC), although they have higher levels of burden and distress than Alzheimer’s Disease spouse caregivers (deVugt, et al., 2006). The purpose of this qualitative phenomenological study was to explore the lived experience of FTDSCs, and to find commonalities, if any, that emerged from the data. Thirteen FTDSCs were interviewed, providing approximately 24 hours of recorded oral data. Their spouses were at varying stages of FTD. Symbolic Interaction theory (Blumer, 1969; Bury, 1980) and the tasks of mourning (Worden, 2018) provided a framework for analyzing the data. The results indicate that there are commonalities, including continuously adapting andrenegotiating the spousal relationship (Blumer, 1969), and seeking routine in a deteriorating situation that is disruptive (Bury, 1980) to normal life. A pattern of loss emerged among all of the FTDSCs interviewed: intense frustration and anger with the medical system in the difficulty of getting a diagnosis; shock with a terminal diagnosis for which there is no treatment; grief for a life partner as he or she used to be; loss of a shared way of life and expected future; frustration and desperation related to a lack of appropriate support, respite, and care. The findings also reveal a common pattern of response to these losses. Using Worden’s (2018) tasks of mourning, modified to reflect the loss of someone still physically present: 1) acceptance of the reality of the loss, reflected in the FTDSCs’ continuing adaptation; 2) working through the pain, demonstrated by finding humor, and continued enjoyment, when possible, in the relationship; participation in a support group; seeing a therapist; 3) adjusting to an environment where life is changing; such as realizing that the FTDSC’s own health and future cannot be sacrificed; and 4) preparing for life after caregiving, expressed by these FTDSCs as hopes or plans.

Social work

Individual & family studies

caregiver, dementia, disruption, frontotemporal, phenomenological, spouse

Social Work

Degree Awarded: Ph.D. Social Work. The Catholic University of America

Advisors/Committee Members: The Catholic University of America (Degree granting institution), Shields, Joseph (Thesis advisor), Dombo, Eileen (Committee member), Mayer, Lynn (Committee member), Leary-Warsaw, Jacqueline (Committee member), Goodman, Petra (Committee member).

Subjects/Keywords: caregiver; dementia; disruption; frontotemporal; phenomenological; spouse

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APA · Chicago · MLA · Vancouver · CSE | Export to Zotero / EndNote / Reference Manager

APA (6th Edition):

Kurfess, M. (2020). Understanding the Lived Experience of Caregivers Whose Spouses have Frontotemporal Dementia. (Thesis). The Catholic University of America. Retrieved from http://hdl.handle.net/1961/cuislandora:214751

Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation

Chicago Manual of Style (16th Edition):

Kurfess, Mary. “Understanding the Lived Experience of Caregivers Whose Spouses have Frontotemporal Dementia.” 2020. Thesis, The Catholic University of America. Accessed November 29, 2020. http://hdl.handle.net/1961/cuislandora:214751.

Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation

MLA Handbook (7th Edition):

Kurfess, Mary. “Understanding the Lived Experience of Caregivers Whose Spouses have Frontotemporal Dementia.” 2020. Web. 29 Nov 2020.

Vancouver:

Kurfess M. Understanding the Lived Experience of Caregivers Whose Spouses have Frontotemporal Dementia. [Internet] [Thesis]. The Catholic University of America; 2020. [cited 2020 Nov 29]. Available from: http://hdl.handle.net/1961/cuislandora:214751.

Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation

Council of Science Editors:

Kurfess M. Understanding the Lived Experience of Caregivers Whose Spouses have Frontotemporal Dementia. [Thesis]. The Catholic University of America; 2020. Available from: http://hdl.handle.net/1961/cuislandora:214751

Note: this citation may be lacking information needed for this citation format:
Not specified: Masters Thesis or Doctoral Dissertation

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